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suhcuddo

How do I get some sleep?

Posted by @suhcuddo in Sleep Health, Nov 23, 2011

For years now I've been getting real sleep every few days. Like now I've been up since two thirty this morning. I'm full of anger all the time, and for what I don't know. I have problems w/ pain,(mostly in my neck, and from severe rls), acid reflux to the point of wanting to throw up nightly and depression. It's gotta come from the lack of sleep. I've try'd all kinds of anti-depressants, talking about my problems w/ a theropist only makes things worse. I'm getting desperate. I don't want to become suicidal but I'm very close to the breaking point. Does anyone have any suggestions?

Tags: Other, sleep problems

davids1 likes this
texasbarb

Posted by @texasbarb, Nov 23, 2011

I've taken Ambien for sleep and it really works great! As far as the pain.....I have it, too....and cannot find the perfect remedy. I'm on Ultram right now, hopeing that in a week or so, the pain will ease.

suhcuddo

Posted by @suhcuddo, Nov 23, 2011

They have me on Gabapentin,Pramipexole, nightly for the rls and then Methocarbamol and trazadon as needed for pain and sleep. But I fear I've been on them so long that they just don't seem to work anymore. I know it's all tied to an underlying cause, I just wish I had a clue as to what it could be.

davids1

Posted by @davids1, Nov 26, 2011

Hi S, it,s david again. I just read the replys to your posting and they know what they are talking about. The Gabapentin,pramipexole. was a joke to my RLS and the trazadone is a heavy hitter and help only for a while. The side effects were worse than the RLS and if interested, I,ll tell you about them.. Please be careful with it. It can harm you. and maybe make you even more depressed at tjhe very least. I flushed mine with good reason. Thanks for listening and reply with update if you can. GOD BLESS U and all of us with this RLS CURSE..

suhcuddo

Posted by @suhcuddo, Nov 26, 2011

Do tell. I'm very interested in what you've learned. I know about the trazadone and only take it when I'm desperate for sleep. But then it dosen't work. How can they harm me? I've been on them for almost two years now and have been noticing personality changes. Could that be why? If so, what can I do? The requip don't work no more.

davids1

Posted by @davids1, Nov 27, 2011

Hi S, I scrolled down too late after my other reply to u. Man, I'm computer clunmsy so please be patient. Here goes....... That is great news about only taking tjhe Trazadone occasionally. I hate that crap. Please read about it online. Of course everyone reacts differently but that stuff even made my teeth hurt. It did work for about 2 montjhs and slept great. then nothing after taking the max {3}. My wife has said the same as you about the personality changes and the spouses really suffer also from this stuff.......My dear Suhcuddo,................lack of sleep, arthritis in the neck, and nasal issues have your plate pretty full. Sure we have personality changes and God knows what else........maybe because we don't get to be "normal" with RLS.............. NORMAL ain"t been around for AWHILE ,,,,,, BUT. we can hope, we can talk, we can cry, we can laugh, we can do so much {we just can't sleep}{just kiddin}, no really,,,,we are going to be alright. Our perspectives change alot with these ailments but it WILL NOT WIN. You, me and the rest of the 10% ers will have our say about tjhis crap and maybe someone with the resources to help us will do so. That's not a pep talk, only anger and determination built-iup overabout 38yrs of experience with this. I will share more as soon as I can. May the powers-that-be bless ya and keep you strong...later!!

suhcuddo

Posted by @suhcuddo, Nov 27, 2011

I'm really new at this too. My sister gave me this so we can e-mail each other (she's allergic to the phone) Yea the
trazadone for me only works for 1or2 nights so there's really no point in taking it. I took the liberty of sending you a friend request I'm not sure how that works, you'll be my first. but I guess we can find out. Do you have trouble w/ cramping? Since I've been on the gabapetin and the pramipexole my rls is better but I've been getting real bad cramps mostly in the arch of my feet and calfs. I looked up the foundation and noticed they have a chat room too. Have you been there yet? I was wondering what it was like. I guess we just have to make our own normal. It just would be nice to get some zs.

davids1

Posted by @davids1, Nov 28, 2011

Hey S........ I keep making the same mistake. I don't scroll down far enough to see all of your notes. I'm obviously no cyber geek. Gottcha about the Trazadone. It never cpamped me but I lost 50to80% joint flexibility. That coupled with aching teeth, and forgive me but the nitetime urinations were reeeealllly anoying. I was told that they put a diuretric{spelling} in it. That's so special...........chems. to make u sleep and chems to make u P. Great!!!!!!! Let's all just wet the bed and be done with it. Pharmas are jerks........Really, Really Rich jerks. I dont know for sure but the cramps that you mentioned may well be side issues of the drug. Try to trace it back to when u first noticed them. I don't know about the friend request yet cause I was anxious to reply to u. I did notice sometjhing new in Email so I'll go check and let u know....... To answer your Question, no.. I have not been on the RLS chat room yet. Don't even know why,,,,,,, . I'm learning lots from you. though so hats off to Super Suhcuddo. Just kiddn'.. talk to u later

davids1

Posted by @davids1, Nov 28, 2011

Dear S, I had a thought about your severe neck pain {whiplash}. It stands to reason that there would be inflamation in the area which, to my ignorant viewpoint, would show up as arthritis on tests. would not they look similar????? If you had no neck problems b4 the mva, then it stands to reason that it is mainly inflammed. why can't the Dr. look into or recommend the steroid injections.{three-in-a- series of cortisone or whatever it is. Please resppond cause this is really bugging me now.

suhcuddo

Posted by @suhcuddo, Nov 29, 2011

I pulled your boo boo, and didn't scroll, I have no clue why they think it's arthritis, As my doc put it, I have entered that elite age group. As for the shots...well...I haven't asked. I'm scared of needles. and as for the cramps,I've actually suffered from them all my life. They got really bad after my final growth spurt. I went from 4'9" to 5' in about 2-3 month period. That's an inch a month. The most painful summer of my life. (I was 16) but I am thankful for the extra 3". I might ask tomorrow, that's when I see my doc. I really have to thank you. You've opened up my eye's to a lot of things I wouldn't have put together. Like the side effects. I woulda just kept goin' on thinkin' I was just crazy. I see him at 11, It's like thirty miles of traffic so it'll be around 3 or four before I get back here. But I will let you know what he says. Especailly if it has to do w/ the RLS meds I'm on . I'm doin' some stuff w/ my new toy here(I got a printer/scanner ). so I'll check back later 🙂

davids1

Posted by @davids1, Nov 30, 2011

Wow Kiddo, youmade my day. your last note was very moving to me. I have to thank u also. You really are helping me too. It is very satisfying to be able to share from all this suffering and experiences that us folks are going through. The spouses see it and they can be so wonderful, but for someone who has the same miserable sensations in their body is able to relate so uniquely. My wife has witnessed me twitch, spaz, contort, twist and turn, That is so damn embarassing to male or female, She has watched me weep like a little kid when I would never have considered it even possible . Went to war at 18 yrs old and never felt like crying, ;but give me 3 or 4 bad episodes of RL freaknS, and I turn to Goo!!! Like you Lady S, I really don,t know where this will all end, but I keep saying "it could be worse", It could be worse", I have found the medical community down here totally uncaring, ignorant, apathetic,unprofessional and generally speaking....... in medicine for status ant the$$$$$$$. I realize there is only so much that they can do, but down here, it is like I,m teaching them and then I become lab-rat #1. my Nero dude did know about the foundation but has never taken the time to say much about it. {and he is suppose to be the best locally for RLfreaknS. Last visit, He threw his hands up and said the same thing that the sleep cliknic dude said. "david I'm out of bullets. see me in 4 months" Tell me S, what the hell is that. MAN!!! I,ll never get over that one. GOOD LORD SOOOOO SORRY!!! Evough of this. Oh, b4 I forget, RLS is thought to originate at the base of the spine. Sure enough, when it is hittn hard., that feels about right. just a reminder .... write down all the issues that u want addressed when u see the DR tommorrow. It is so helpful to do so. I did not know that growth spurts did that. Maybe that was dress rehearsal for what was to come. Maybe it made u tougher than u give yourself credit for.......Maybe.... just maybe lil suhcuddo is tough as nails just battered and bruised.a little. Don,t fear a needle that can make your pain and headaches go away. Best way to handle it is to psyche-up, get real angry and say DO IT. it is over in a flash. with a qualified shooter, u won,t feel much at all. they numb it as they go. I smiled when u said your Mr. slept till 10 since retirement. He probably earned that. I wish we all couild do that. Retirement is 'iffy at times isn't it. It seems to be really harder on the wives. Good lord Im ramblin here. very sorry but you are a good ear. Hopefully, tomorrow will be a good day for u and the Dr, will have an epiphany about some of your concerns. I will pray hard for that tonite when I, idleing around. Hope you get some sleep.....{comfortably] until later lil buddy. ................................................................................................................................................................................................................................................................................................................

davids1

Posted by @davids1, Nov 30, 2011

up again at 12:30am geeezze!!!!

suhcuddo

Posted by @suhcuddo, Dec 1, 2011

Well, What can I say? I've been w/ my doc for about twenty years now and this is the first time I've been at odds w/ him. I wrote all my symptoms down, first mental, then physical, he took a quick glance and said it's "Clinical depression" he wants me to stop taking the muscle relaxers and start taking an anti depressant. He too don't seem to think my pain is real. I thought he did. but he says theres nothin' in the ct scan. and that the pain is coming from the depression that was triggured by the accident. Well that much is true I am depressed, and it's caused from the accident., but it's because of the pain I'm feeling from the whiplash not the other way around like he's suggesting. That was my G P, I can't get in to see the Nero doc til after Jan, I'm thinkin' on finding one down here that is in the office more than once a month. See I used to live in Seattle and so that's where all my docs are. But I am haveing thoughts of finding new ones down here. As far as a nero doc, goes I've only seen him once. See it took almost ten years for my GP to decide I needed to see one. So, there I am I feel like I'm back at square one. Well, I figure I'll take the meds like he wants me too then when I go back in three weeks w/ no results we'll know the truth. Right?
But We went driving around to do a little reminiseing afterwards. It was o.k. They really have it tore up up there. It was weird seeing 1/2 the viaduct gone. But I sure don't miss the traffic. And I don't drive!! I never have, never learned.
I have a question for ya, And your wife might wanna know too, How come you guys get to "retire" but we housewives don't? My other 1/2 claims that it's because he works harder, but I beg to differ. Though I'm gladf hes home more now. If I can get to relax in the car again, we can ressume our day trips.
I miss those. Chat w/ ya later 🙂

davids1

Posted by @davids1, Dec 1, 2011

OMG it is so good to hear from u. It,s 9;30 here and the meds are kickn my butt for now, but I know that I,ll be up in a few hrs to respond to your note.........and man I gotta express feelings about your trip to MD.....Much more ASAP. So sorry for t he delay........PS...........I sure don,t sense any depression

Posted by Anonymous-3b1d7fd6, Dec 1, 2011

OK, now it's 2:10 and sure enough, here i am again. Lord S, I dont't know where to begin....... I got it'... we'll answer your last question first bout retirement....... My other 1/2 says EXACTLY SAME THING about retirement. so here is my take on the subject{remember, it's only an opinion based on life's experiences}. He is right about working hard but, not hard{er}. A research article yrs. ago said that if fulltime moms/housewives were paid, your salary would be well over$ 120,000 per yr.Does that tell ya who works hardER??? Your role is vastly underappreciated and under estimated for the very reason that u asked the quiestion........it NEVER ends. A good wife is the Best of the Best. and really hard to find. God Bless Ya for being just that. Let me kknow when you cash all of your backpay checks.........We will fly up and all celebrate.......teeee heeeeee!!! No seriously, it really comes into focus w/retirement cause u are together so much more after yrs. of the Mr.going to work every day. That's a keyword, Lady S, g__o__i__n__g to work. One of the big perks of your job was it was AT home. Make any sense??? Mine has some strong opinions about this issue after 5 yrsof it. Quite an adjustment to say the least. Hope to be able to share a little about my hobbies w/ya sometime._________ok now her we go about your trip to MD. I had better cleanse the air b4 I comment cause I feel that I need to choose my words CAREFULLY. After a short time, u are dear to me and I don't want to blow it.{disclaimer].........I have no right to express my views and i do so only at your discretion and with your permission. I don't want to overstep my bounds as a buddy and I have no credentials except past and present EXPERIENCES and opinions only.I an basing my comments on my senses that God gave to me and I feel that u are really quite something. we are all so special as individuals and we walk the earth for such a short time. I' m honored to have turned to the laptop one day recently out of quiet desperation and randoml;y found a little gem in the sand asking about getting some" sleep"..........U.. I have no alterior motives for what I say and I don't expect anything from anyone. except kindness earned. I mean no harm and this is all new to me as well so please keep all that in mind........OOOKKKKK?????? whewww!!! Honesty feels sooooo good!!!! Gonna set a record for l___0___n___g with this one. Might have to go to chapters.. Your DR sounds like a schmuk. Good Lord.....What,,,,,, he cameup with that gameplan all by himself. I know he obviously knows u better than me, but he is full-o-sh__! {sorry} I guess he said that after spending the alloted 15mins. with you?????? man-o-man!!!! I'm gonna scroll up to read it again...........Nothing in the ct scan huh' well look again dammit. Pain like that is" 'all-in-your-head" ...yeeahh and my neck too kinda like u are becoming a pain in my butt DOCTOR!!!!! These guys. these freakn'guys. They just don"t get it. u drive thirty+ miles to get some help and u get that. Hmmmmm maybe time for a 2nd opinion. I know that could be very difficult and pricey but please give it some thought. He sounds like the MDs down here.Since u don"t drive u may feel like u are too much trouble but u are not when it comes to your health..I know I'm right on at least that. {scrolln back up}. Yea, chronic pain, stiffness and such is depressing to EVERYONE not just us and certainly if the DR had a dose of whiplash with a sideorder of RLfreaknS ,tjhen he migfht have a different attitude.That dosesn't mean prescribe psyche meds. They are so quick to enlist more into the Prosac Nation with these damn meds. I'm telln ya they are killn us. I got sent to psch. dr. last year after having no sleep for 3 months and he said only cause the psch coulld write scripts that he could not. Great!!! Now I have the stigma of needing a psche Dr. when all it was is that I NEEDED SOME SLEEEEEPPPP. It is so ironic that 1st tool in CIA torture is sleep deprivation. and we live with it and nobody gives a sh--! Wow I'm on a rant, lady S , but it feels so gfood and I hope you are feeling it too. Gotta take a break.. be right back........ok back now...... had to go calm down.sorry! it's just that I know he knows you a thousand time better than me and I'm not qualified to say these things ,but they are all too familiar and they paralell my experiences. {note} I no loinger go to that lil psyche Dr.. she used me as a lab rat and damnnear killed me. Here is a misspelled list[partial} of the chems that she freely wrote up....seroquil,depacote.trazadone,and about 3 others that had horrible effects when I was only sleep deprived an once iI finally purged and got a little sleep I came around. Truthfully, she did more harm than good. and I suspect it was done only for the $$$$. I'm worse off now cause of RLs and really don"t know what the next step will be. That and the sleep clinic Dr were two BIG mistakes even in my other 1/2's opinion. Ok , back to u. {scrolln} come on ,S, if it took him 10 yrs to refer u to nero what does that tell ya? Enough already. I'm just disappointed in the trip also but i am so glad u&yours got to cruise down memory lane a little. I understand completely. FANTASTIC!!! That is the best therapy.. Gittn out and enjoying life a little. Y'all deserve more of that.....we all do. {scrolln} Since i have never felt IMPACT like u ' then I can only imagine. Sure it's hard to relax when u are reliving that rearender over and over. I mean....... ouccchhhh.....that sh___ hurt. {sorry for explatives} I'm gettn a little tired now and I don"t know if I have helped or hurt u so I bettrer shut-up for now. as usual, I'm anxious to hear back , but don't feel obligated. miss ya!

suhcuddo

Posted by @suhcuddo, Dec 1, 2011

Before I start, Let me give your wifey a little saying that may help her along while trying to clean around the new enity(That's what I call it hehe) "Man works from sun to sun, a womans job is never done." Yes, thanks to my parents I have a saying for just about every occation out there. I just can't spell them. Believe it or not I have a A.A. in English. You like to voice my thoughts don't you. Do ypou believe in kindered spirits? That's about what it feels like. I've had one sleep study done and they had me take my meds for it. I remember even w/ the meds I was having some pain and tightening and they claim they saw nothin' on the monititors or what ever that thing is they look at. I think your right it's time for me to find a nerologist and just have a complete work up done. There are too many little things that bother me that my currant docs are ignoring, like the fact that my right side is suddenly weaker that my left,when I'm right right handed. I don't want to but I might have to go back to P.T. but like you said, I don't like being a bother and where I am there are no buses. I am faithful in doing my exercises, but to no avail. Maybe I'm just not patient enough. Turns out the meds he put me on is the generic Zoloft. That's got me nervous I've got multi care all around me so I 'm going to give them a shot. ....I just took a small break to read what I've got so far and boy! Am I jumping around or what? I guess that's a side effect of poor sleep huh? I did'nt do too bad last night, I got to sleep around 2:30-3:00, than up at 5:30. I don't even bother going to bed til around 12:00 I used to go to bed around 10:00 but if I do that these days I'll be up at 2:00 w/ no hope of going back to sleep. Normally I'd be in the living room playing my P.S.2, Thank god for video games they really do help take your mind off things. But my other 1/2 decided to get w/ me and so he's watchin' the news for about 20 minutes, I'll go in there and he'll be snoozin' away. I'm glad one of us can get some sleep. And that means I can come in here and chat w/ you. I still have to write my sis too. I've been putting off though "cause she tends to side w/ the doc, But I still love her. Well, I'm gonna go rest my neck. (having pain right now.) I'll write ya more later.

davids1

Posted by @davids1, Dec 1, 2011

Well good morning!!!! You are up and at them huh. Nice to finally have company. Did u get the email address? I'm so ignorant.. Don't know if that is best or not. u be the judge. I sure like your attitude this morning. luv the expressions that u are passing to me. it is true, y'alls work is never done.....but it can be minimized if we just help whenever and however we can. Housetraining 101 should be mandatory for hubbies. Man' I,m gonna catch hell for that. {it's true isn't it}. How in the world could they not see the pain waves on their monitors. Maybe they were asleep or playing scratch&tickle. B.S!! Allow me to share my experience {1} w/sleep clinics. the most recent was a hoot. After it was determined that I only had RLfreaknS they looked disappointed cause I didn't n need their lousy C-pap $$$$$$$machine the attitude went to nothing. The P.A.'s last statement was "sorry dude" I fired him........................Zoloft huh. Now isn't that special. Your left side will now go weak to match the right side and you will just oozze around the house like a wet noodle. Jjuussst great! {be careful my dear, please........pleeeeazzzze} Any changes for the worse' then flush em. P.T. might be good but here is an idea. What about a GOOD female chiropractor.{if there is such a thing}??? I said female for a reason. So far the males ain"t cuttn it. Mine or yours!! It is a long shot but ask some of y our freiends to see if they know of anyf any............ They have a bad rep. but if u can find one ' well just maybe.... it could help. They treat similar cases all day... hey i'm proud of ya for doing the exercises. That is a good thing...Go girl.By the way......the answer is YES I do believe in k. spirits. I felt it right off. Pain shared can link strangers quickly.. I have questions about your RLS if u don't mind. Mine seems to be morphing again and I'm freakn a little bit.. more soon.

davids1

Posted by @davids1, Nov 30, 2011

I forgt to give you super "props". for your smoking decrease. Wow, that is impressive. I'm a little jealous but "way-to-go kiddo" If u can do that , then u can do anything, and I mean anything______.There is interesting research out there on just how hard that is so brag on yourself....u earned it. I,m really anxious to hear how your trip to the Dr. went. Is it a good Dr. or one like I have. This is why I went on the Mayo c site in the first place. Quiet frustration with the locals. Today was a rough day with the RLS. Evening meal triggered major waves. Dear God, when will this let-up a little...........................hope to hear from u soon

bootsz

Posted by @bootsz, Nov 26, 2011

Hi there, I am a therapist, with a M.A. in counseling psychology. I am concerned about you!
Please find a therapist that you feel comfortable with. I suggest you find someone who practices solution focused brief therapy, using Cognitive Behavioral Therapy.
This can give you a goal, and be very helpful.
I have periods of very little to no sleep about three times a month. And usually have a difficult time getting to sleep. I sympathize with you, it is difficult to function like that! I can't take sleep aids because I also have sleep apnea. If I stop breathing I might not start up again because sleep aids and narcotics decrease breathing function. Have you ever been checked for sleep apnea, or had a sleep study done? I used to wake up every 20 minutes or so. Turns out I wasn't breathing, and that contributed to heart failure.
Now it's gotten better but I can't tolerate the breathing devices.
Do you take naps? I know that if I'm up all night, I can't function past around 5pm, I have to nap.
My teen son has bouts of RLS, and I know how difficult that can be. Has you doc ever prescribed dopamine? Your sleep problems are definitely affecting your life. See a neurologist for your RLS.
If you are feeling suicidal, please call a suicide prevention hotline. I'll try to post a # here, but it might not work. 1-800-273-TALK (If this # doesn't post. please look up the # for your local or a national hotline!!!

suhcuddo

Posted by @suhcuddo, Nov 26, 2011

Hi back, I actually got 4 hours sleep last night so today I'm o,k I've been in and out of therapy all my life and have try'd all the different types and drugs. I did have a sleep study done and they said I have positional apnea They also think my nose has a lot to do w/ it. I have a bent septum (forgive my spelling) and weak nostrils. They want to straighten my nose and put cartilige in to keep my nostrils from colapsing. But medicare won't pay for the second part. So I'm stuck there. In the last couple of years I've noticed a major personality shift in me. I think everything is tied together and I need to find out what it is. I've had MRIs and CTs but they come up normal,but I know in my heart that something is going on. Do you have any idea where else I can turn?

davids1

Posted by @davids1, Nov 26, 2011

Hi. Iam very,very sorry to see your comment. I read it several times and I can honestly say...IT SUCKS BUT I,M RIGHT THERE WITH YOU!!!!!!! You gotta wonder what we did to deserve this crap.... Suhcuddo, all I can say at this point is hang in there and solve one problem at a time, You inspire me cause here I am with ONLY severe RLS and I have lost all hope. My nero Dr. threw his hands up since I,ve tried just about every crappy drug for this and only REQUIP. {large doses} somewhat controls the RLS. Your neck pain is maybe manageable????? , and the acid reflux 'SHOULD BE ABLE TO CONTROL", but what are you doing for your RLS?. I am not into social media and I,m a newbie at this forum,so please forgive my awkwardness.... Maybe some angel will see this and help us both with these ailments. I,ve been so healthy all my life, it,s so difficult and the Drs. that i have been to actually know less than me about RLS. You are in my thoughts and prayers and I feel that at the very least, you should know that I hear you and I LITTERALLY feel your pain...........David

suhcuddo

Posted by @suhcuddo, Nov 26, 2011

I like to refer to my RLS as RBS because it effects my whole body. I was on mega doses of Requip for years and unfortunately you do become emmune to it over time. It's just that type of drug I guess. I am currantly taking a combination of Pramipexole and Gabapentin. It helps better than the Requip so you might want to ask your doc, about it. I think that the docs, don't really know what to do about RLS, I'm not even sure if they really know what it is. They come up w/ these causes that have nothing to do w/ me, like pregnency and anemia. Have they told you anything? about what might be the cause? And if they think they'll find a cure? As for my neck pain that started w/ a MVA in July turns out I have arthritis. Stress makes it worse. That's why we need sleep. Lord, what I would give to be able to sleep nightly like normal people. I really appreciate your feed back. And hope to hear from you soon.......Suhcuddo

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davids1

Posted by @davids1, Nov 27, 2011

Hi S., Well it's 12:01am Sunday morning and here we go again. I went to bed at 10:00pm and now I'm wide awake and feel like I've been sleeping and dreaming forever. I came to the laptop and saw where you had responded so at least I can fill you in. I hope you are getting some "Z's" and maybe feel a little better. I certainly like and agree with your RBS analogy. It truly does effect the whole body and spirit also. May I answer your questions and concerns now.........no they have not told me anything abou causes. I'm male, so pregnency is out, anemia also . Had all tjhe standard tests years ago. Other than this ,I,m really healthy. Smoking is my only vice and thats been going on for about 58yrs, but not heavy. I feel that the "cause" is genetic. Both of my folks had RLS and POP would sleep right through it. Tough generation!!!!!!! As far as a cure, well it ain't too far up. on the ole totem pole. They claim it's "non fatal" but I suspect you & I may argue with that. After all........how many folks feel so hopeless and desperate like you and me.I won't type the rest of that statement..........As a note to u, I was driving yesterday, and it HIT like a frieght train in the right leg and my best description is it was like getting shocked by 110volts. The muscles would tense-up every 25 seconds from lower back to toes. an hold for about 3 or 4 seconds in waves of agony. Good Lord!!!!! That has been happening alot lately and I'm pretty concerned. I call it ......PARKINSONS LITE. Hope u giggled a little. That neck problem of yours makes me sad. Good Grief, S, you sure don"t need that. Any way you can maybe lower the stress in your life? Probably a dumb question, huh. Maybe the good Lord will ease your stress level or ,at least send u a great looking masage' therapist with big ole white wings and such..........Yeah I am sooooooo sure!!!!! Just kidding, S, i know it is not funny at all, but we gotta do something. Again, maybe I made u smile just a little. I appreciate tjhe scoop on REQUIP. Looks like the same thing may be happening to me. what the heck is Pramipexole????? Not familiar w/that one. I tried Gabapentin. and even the newly approved HORIZANT and as usual, no relief. Rigjht back to Requip.Well I may be boring you since I,ve gone on so long and I apologize for that. You are in my thoughts and prayers and please keep your chin up and your back to tjhe wind, I,m a stranger but through our mutual suffering, I DO care. Have a great Sunday kiddo......hope to talk again soon........PS do u know about th RLS foundation?????

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suhcuddo

Posted by @suhcuddo, Nov 27, 2011

Is that 12:01 your time or my time? My time is pacific time. Genetics do make sense,though I'm the first and only one that I know of in my family. God getting it while driving would be rough! I feel for ya,and glad you didn't loose control. I didn't know they had tests for it, except for sleep studies.
EXACTLY!! It's like squeezing a spring way too hard then letting it go "BOING!" and the pain that goes w/ it arg! When I first started the Pramipexole, it didn't do much. so they added the gabapentin on top of it and that seems to work pretty well. I'm used to being low man on the totem pole being #6 out of 7 kids. But they do need to put some importance to to this. It may not be fatal but it is totally debilitating.(in more ways then one.) All I need for my neck is a 24 hr heat wrap and restitution from the woman who rear ended us. Thank-you for the giggle and the smile :). For if we don't laugh at this as only we can(Being there), then we are in a whole heap of trouble. It keeps the desparation at bay. I'll look up that foundation right now. chat w/ ya later.

davids1

Posted by @davids1, Nov 28, 2011

Good evening S! It's good to see your note. I'm on central time down in the deep south but all things cool are on Pac time in my humble opinion. It brings back such wonderful memories of Berkley, Alameda, San Fran., Downey,Oakland,Long Beach and such. Those WERE the days!!!!!!! God just to be able to go back for a little while. Whooa.....my spirit went soaring...sorry. About your 24hr heat wrap....am I oversimplifying by asking about ICYHOT.? Yeah I know, it's too simple to be any good ,but I gotta take a shot at it. No word on the Big White Wings yet????? Wow you are 6 out of 7.. thats really pretty cool. Have you checked your siblings to see if they have the RLS curse???? Seems like No7 would have said something about it. By the way, what was up with the woman who poped you? Let me guess.........cell phonnnneeeee. maybe not or maybe so. I 'm so sorry that happened to ya. It could be any of us at anytime. Lots of "lawers" love it but I sure do not. Your spring analogy was spot on. You actually made me giggle&smile. Thanks. You probably already know by now but I think it is http://www.rls.org for the foundation. Membership is cheap and they have a wealth of Knowledge and with your computer skills, it may be of some help. They are the Lone Voice in the desert when it comes to the FDA and things such as that. I'm going long again so b-4 I go , I don't want to forget to ask if you have ID,d the "Trigger" for your RLS. Mine is unfortunately food and relaxation. Nighttime is my worst enemy. Kind of a reverse vampire....... luv,luv luv, the sunlight ang hate the dark cause it brings on the nagging spectre of ,as you put it, RBS. Evening meals can be explosive with misery unless I time it just right with Requip. and RequipXL in combination. You have me curious about Pramipexole. Gonna look it up now. Hope to hear from you.... it's Sunday, maybe you are resting. I sure hope so. Adios for now.

suhcuddo

Posted by @suhcuddo, Nov 28, 2011

Howdy do! It was good to hear from ya 🙂 I've often wondered why they call it the "deep" south? I've never been. The furthest S. I've been is Las vegas that was just to visit my sister. When I was a kid I ran away to Calf, but didn't get very far. I'm further north than that "Twi-Light" territory. If you keep up w/ such things. I like a good vampire movie but could never get into that one. I guess I just have a thing for Frank Langella (sorry), Any ways...I'm allergic to Menthol which is what makes those work. I use a damp clothe in the mic but I have to keep micing it 'cause it cools down so fast. But it works. and it's cheap! She just said she was distracted and was looking down. So was I, but I was the passenger in a stopped car. She wasn't. I'm just thankful, it coulda been a lot worse. I luv luv luv the sunshine too! probably 'cause we don't get any. This past year has been horrible too. Not good for us depressed types, I've never really figured out what my triggers are. It just seems to be random, Walking more than usual or stressfull exercise will make it worse, If I get a cold or a flu that aggrevates it as well. I have noticed that the muscle relaxers the docs gave me for my neck help. But I worry about all these pills. Addiction is a big thing in my family. I don't want to fall in that trap. Caffine and Niccotine are my only vises and I'd like to keep it that way. I've seen what the other things can do. I'll ask my sis, but I don't anyone else in the family does, My daughter is in her early 30's so she may be a little young yet. I didn't start getting symptoms till I was 40. Except for the cramps,I've suffered from those all my life. She's never had that problem so I'm hopein' she won't have this. It's Mon now, I spend Sundays hiding from the football goin' on in the livin' room. Wow, Did I go long or what? Sorry, didn't mean to chat your ear off. It's just sooo nice to chat w/ someone in the same shoes..ya know? Hope to hear from ya soon "S"

davids1

Posted by @davids1, Nov 28, 2011

Hi S, fantastic to hear from ya. so much to share and ask this afternoon after reading your note. you made me smile. i gotta go finish a few things, but promise to come back asap to respond. This is cool!!!!!

suhcuddo

Posted by @suhcuddo, Nov 29, 2011

Scroll down your comment from yesterday. O.K?

davids1

Posted by @davids1, Dec 8, 2011

Hey. lost contact with u. I have Info. for ya. please advise.........

suhcuddo

Posted by @suhcuddo, Dec 8, 2011

Ur not getting my emails? That's weird. Well, keep trying. I'm still here. and have been been waiting. I'm deffinately thinking about another doc. just not sure how to go about getting one.

davids1

Posted by @davids1, Dec 8, 2011

Right! They are refused by comcast. Any way to check settings? I'm back to filtering Know what I mean?] Oh .....maybe the foundation can help with MD search. They have a listing for most states.{not mine of course}. I,m guessing here, but CO has a female listed in Denver.If you need #'s please let me know. {I'm filtering big time}

davids1

Posted by @davids1, Dec 8, 2011

If you don"t get reply' please check postings on site. ....OK??

davids1

Posted by @davids1, Dec 10, 2011

still not able to get mail delevered to you. so sorry!!!

davids1

Posted by @davids1, Nov 29, 2011

OK now I,m back. Sorry for the delay. In reading your last note let me address some points...... the deepsouth is Louisiana.<baton rouge area to be more specific. I wish I could have shared some of the sunshine that we had this summer with you & yours cause It was plentyful and very dry this year. I,ll request some for ya with the Powers-that-be. Dosen't hurt to ask. U were kinda brave to run to calif. as a kid. Wow. I'm impressed. That shows that you are strong- willed and that strength is to be admired. It is probably what keeps u going and thats a GOOD thing. I only mention v-pires cause they alledgedly can't take the sunshine whereas u an I and others like us relish it........{who is F. langella...duuuuh?} Good point about Menthol. I guess that knocks out my theory bout ICY-HOT. Only other thing that comes to mind is heatring pads and the trendy yet effective Bean-Bag type that u put in the micro-wave. Ms. S what about my theory on inflammation as opposed to arthritis, and possible relief from the 3 shot series of steroids. Any thoughts or comments???????? Do u think it is worth mentioning to your DR.?????? Yeah I'll bet she was just lookn down, lookn down at her phone...... good grief!!!!! If u have not figured out what your triggers are here is a big CLUE, from the research dept. per RLS Foundation {I"m trying to not sound like mr know-it-all} the TWO MOST COMMON TRIGGERS are CAFFINE and nicotine. Chocolate will send me sailing with RLS because of the caffine in it. Luv it but limit it drasticly. Only DECAF coffee will do although I personally drink a pot of it each am since I'm up all nite. And since my RLS has worsened in the last 14 months, I can't imagine what would happen if I digressed to caffineated. Probably......BOOOOM!!!!!!. Will u think about it???? The nicotine is an unknown for me but very suspect since I don't Z AS MUCH , and I smoke when i'm up. Your feedback on this ,so far is requested. out of concern. As far as exercise and stress, I agree...... it seems to aggrevate it. B4 I forget, RLS morphed into augmentation in 2010 when I treated the common cold with DAYQUIL, NYQUIL AND OTHER COLD TREATMENTS. Please BEWARE!!!. again , I did not know until I referred to the RLS info that I sent off for 25yrs ago. hey I ,m reeeally going long again,,,,,,,,,,so sorry Ms S. Digest this an please comment. and let me know if I peaked any intrest. Always fantastic hearing from u so please keep it rolling. There is so much more to share. Thanks...............David

suhcuddo

Posted by @suhcuddo, Nov 29, 2011

Yea, ya gotta stay away from the benidrils that stuff will put me into a "Spring loaded" mode. As for the cafine I just forgot about it I've gone from 3 pots reg. to 3 cups 1/2 calf. So I'm workin' on that. And I'm down to 5-6 cigs a day, more on bad nights though. I've switched to lights and do 1/2 at a time. Sounds weird, but it's workin' for me. I'm going to call my neorologist today, He's the one that has me on the gabapetin and pram, I looked them up and the side effects include depression and mood changes. Well, I'm also takeing The methocarbamol for muscle spasms and neck pain. Just guess what their side effects are. Yep, the same. So I think it's time for a med review. My sweet tooth has really gone A-wall on me. I'm goin' through a salt and protien phase right now. I luv my pepperoni and cheese sticks. 'Specailly the pepper jack :)YUM! I don't know why, even my moachas don't sound good these days (those have allways been decaf). Caffine has never really bothered me. the way I found out I was addicted was when I cut back on it and got the head aches. I amagine that any stimulant will triggure it. So I been tryin' to stay away from them. And like I said I'm workin' on the 1/2 calf and smokes. It's turning out just like my Dad used to say..."Everything I like is either illeagal, immoral, or fattening." Oh getting old can suck sometimes. I'd like to answer you sooner on this but I'm a noisy typist. And since retirement he sleeps til' 10:00.
O.k you asked. Frank Langella played Dracula in the 1979 version w/ Laurence Olivier and Donold Pleasents. It's more of of a romance movie than a horror flick. Great movie though. If your into the story though, beware, they have Lucy and Mina turned around in this one. Well, I guess you just got a taste of what I do at night. (when I'm not playing my videa games.) Well, I gotta get on the phone, so hopefully hear from ya soon (U R right, This is way cool!!!)

davids1

Posted by @davids1, Nov 29, 2011

HIIIIIIIIIII!!! Greetings from the south again, I got your last note and parts of it cracked me up. So glad you knew about the caffine and benidrils. nowq that's out of the way..I,m so glad that you are going to do a med review. That's a very big deal. I'll wager that the stuff that is supposed to help you is actually killing you. I,m in the middle of 3 projecrts so I,m going short now 'but Iwill have more later today...Thanks S.....

doodlebugz

Posted by @doodlebugz, Dec 28, 2011

I love you style!!

doodlebugz

Posted by @doodlebugz, Dec 28, 2011

"your'

davids1

Posted by @davids1, Dec 28, 2011

Hi, doodlebugz, It's not really a style, I guess, just honest caring and desire to share and help with this stacked deck we've been playing with.. . . RLS and sleep deprivation are really under-discussed. Know what I mean.It can ruin a life. Happy New year to you and yours.!!!

doodlebugz

Posted by @doodlebugz, Dec 28, 2011

I too have RBS restless body syndrome, i like the name you came up with. With that I have Lupus,Fibromyalagia, Chronic pain, Chronic Insomnia, anxiety and panic attacks, oh what a list I have. I have to say ditto on if I could just sleep like a normal person. I'm at my wits end. My primary md now thinks I just want drugs. Alright there is alot of people that just want drugs but why take a person with lab proof, and put them in that catagory. I also think if you go to the same dr, for a year are two they eventually want to throw there hands up and get rid of you. My dr. just said he couldnt refill my loratab anymore like I'm some kind of junky. I tell you what I just wished he could walk in my shoes for about a year!

suhcuddo

Posted by @suhcuddo, Dec 28, 2011

I recently had the same problem w/ my Dr, and I've been seeing him for years! When I went to see him about the pain and everything keeping me from sleeping,
rather then look at the drugs I was currently on ( 3 of which had the same side effect ,mood changes) he automatically assumed I was going through a depressive mood and added more drugs to my list. I am currently in the market for a new Dr, I just don't understand why they don't listen to us?

davids1

Posted by @davids1, Dec 1, 2011

Hey again. wow.just went outside and I wish I could pipe up this weather to u. it is gourgeous. Well heres to wishn!!!!! Bye more soon.......

davids1

Posted by @davids1, Dec 1, 2011

wow lookn back at my typing and spelln........yuck!

marybeth19

Posted by @marybeth19, Dec 5, 2011

I went through an awful bout of insomnia, high anxiety, and panic attacks a few years ago. It was the worst period of my life, hands down. I knew there had to be a solution, so I went for a free evaluation at my local mental health care hospital. They admitted me to an Intensive Outpatient Program the next day and I spent the following 5 weeks getting the treatment I needed. I suggest you work with a good therapist who specializes in Cognitive Behavioral Therapy or check out your local mental health resources. Most of them should give you a free assessment. If you happen to be in the Chicago area, I can highly recommend the program at the Alexian Brothers Behavioral Health Hospital in Hoffman Estates, IL. Their program changed me life! I now sleep 8 hours almost every night and only take sleeping meds on occasion.

jacobrowley likes this
jacobrowley

Posted by @jacobrowley, Jan 26, 2012

How did you find this program? I need one for my area - Butler pa

suhcuddo

Posted by @suhcuddo, Jan 26, 2012

Start by going to your Doctor and asking. I'm sure if he(or she ) is a good one they'll know where to start.

marybeth19

Posted by @marybeth19, Jan 27, 2012

Look up behavioral health hospitals or mental health hospitals for your area. Your Dr. may have a recommendation, too, although mine was clueless about anxiety disorder so you never can tell what kind of results you'll get from consulting an MD.

Another option is to contact your local NAMI chapter. It's the National Alliance on Mental Illness. They have trained volunteers to help support you through group therapy and surely at one of their free meetings they could suggest a good mental health facility. They usually hold their weekly meetings at local outpatient mental health clinics.

I hope this helps! I'm sorry for the pain and heartache you are facing. I know it is awful and I wish you the best of luck in creating a better and brighter future for yourself.

davids1

Posted by @davids1, Dec 9, 2011

no sleep again tonite....ugggghhh! miss hearing from ya.......uggghhhhh.......

anon89880224

Posted by @anon89880224, Dec 16, 2011

Try melatonin .... Take omega 3 - 1000-2000mg a day, B vitamins, they all help with sleep and stress.
Get on a routine- bedtime same time every night. Relaxing music, hypnosis for sleep, ect.

See if that helps

suhcuddo

Posted by @suhcuddo, Dec 16, 2011

That sounds good, what do I do about the pain?

galna

Posted by @galna, Dec 24, 2011

I notice you have a beautiful cat. Does your cat sleep with you? If so you may want to try a night or two without the company. I have to close my bedroom door to keep my cat out or it will keep me up. I wish you the best.

suhcuddo

Posted by @suhcuddo, Dec 24, 2011

That's my R.E.M.F.y, He is the sweetest :). He will sleep at the foot of my bed for awhile, but then goes in the livingroom. He don't like the kickin' and jerkin' that I do as I'm tryin' to fall asleepp. I am lookin' for a new doc. in my area, any ideas?

galna

Posted by @galna, Dec 25, 2011

Does exercise help? I sleep better if I get physical exercise at least 30-60 min. per day. I Have arthritis and fibromyalgia. Dr. insists exercise will minimize pain. It helps me feel better mentally also.

Anonymous likes this
galna

Posted by @galna, Dec 25, 2011

Merry Christmas!!

suhcuddo

Posted by @suhcuddo, Dec 25, 2011

Merry Christmas to you too :). My main problem w/ sleep is pain. I injured my neck a few mos, back and I also suffer from RLS. I try to exercise, but it's still painfull. The injury messed up the arthritis that I guess I already had.

bitsy

Posted by @bitsy, Jan 23, 2012

try using an inexpensive neck brace, not too tight. it may just keep you head/neck still and take some pressure from the pain. worked for me, good luck.

lovesjesus

Posted by @lovesjesus, Sep 11, 2012

did you find any help...I am where you are now

suhcuddo

Posted by @suhcuddo, Oct 16, 2012

They put me on Zoloft and it seems to be helping some. I'm still having sleepless nights once or twice a week, but am more able to deal with it.

littlegirl likes this
littlegirl

Posted by @littlegirl, Oct 16, 2012

Hi Suhcuddo, i have trouble sleeping also.I'am afraied i might have cancer.

bettyann

Posted by @bettyann, Oct 23, 2012

Stop telling yourself you can't quit, dear, please....please... ask a dr or counselor if there is a support group you could join...Please honor yourself and do this for yourself.

gfunk

Posted by @gfunk, Mar 22, 2013

You need to get to a pain clinic. The only thing that worked for me was narcotics. At least I could sleep.

missjean

Posted by @missjean, Mar 23, 2013

If I was sleep deprived I’d be angry too.
When you eat sit stright and don't have anything tight around your belly. And, don't bend at the waist unless absolutely necessary. Ease the flow of the food you intake.

Generally Melatonin an hour before bedtime works well for me. I take 3mg Schiff's Melatonin Plus.

Sometimes I switch to an over the counter sleep aid like a Target 25mg Night Time Sleep Aid. I do not use either for long periods. After 3 to 6 months I switch. Getting too use to anything will stop working.

I also take 2 Aleve before bedtime to relieve pain.

If the problem really persists I will take Ativan or Lorazepam for which I need a prescription. I need no more than 1mg and sometimes half or quarther that. Three or four nights gets me back to a good sleep routine.

I will not watch anything disturbing at bedtime. Golden Girs or Frasier is all the excitement I need before going to sleep. That or I may look for a boring radio talk show.

Also, and I don't know why, I drink a can of diet Ginger Ale before going ot bed. Perhaps to swallow any pill.

May I add, if a doctor or therapist doesn't work get rid of them. Your anger may be that you are relying on doctors and therapist that can only "guess" what is wrong. You are not suicidal. Get that out of your head. Your problem may be that you are not working out your own problem. Think about that and work on it. You can do it.

Good luck, I hope this helps.

jacobrowley

Posted by @jacobrowley, Jan 26, 2012

I have had insomnia for about 1.5 months....sleeping very little. 1-2 hrs a night. It is torture. Am on Zoloft for about 1.8 months. I want to stop taking it. Always have taken a sleep pill, now I want to pratice CBT and try to correct my sleeping problem, but I have this fear that I am going to die from the large lack of sleep....or go crazy. Right now I am at work and sleeping is all I think about, becuase I am not getting much! Any suggestions.

kakan

Posted by @kakan, Feb 1, 2012

I know how you feel because I bearly gave them enough sleep to monitor in my sleep study. If you have not had one of these done I would do that first. I have been on something to sleep for years and now my Mayo doc is taking me down slowly off of both meds. I have to retrain myself to go to sleep and it is NOT easy. It is so frustrating for everyone else to be sleeping in the house and you are reading or writing or watching tv and next thing ya know the sun is rising. Hope you get some relief.

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