1. < Prostate Cancer

Hot flashes, fatigue 4 months after radiation and Orgovyx

Posted by hudsonlady @hudsonlady, May 19, 2023

Husband still experiencing debilitating hot/cold flashes, fatigue, various aches and pains 4 months after successful treatments ended. Is there any relief available?

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hudsonlady | @hudsonlady | May 22, 2023

Wishing you a good outcome!

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linric70 | @linric70 | May 22, 2023
In reply to @edmond1971 "Successful treatment is a reason for celebrating, so nicely done! Hot/Cold Flashes --- My suggestion is..." + (show)
@edmond1971

Successful treatment is a reason for celebrating, so nicely done!

Hot/Cold Flashes --- My suggestion is to figure it out and a big part is accepting it as well. My approach is the following: Don't use the heat in the car, always run cold. Have cold water available at all times and when a flash starts to develop, put a cold bottle on the back of neck, or a cold towel on far head. You can slow the hotness so that you don't sweat, and the sweat is what leads to the cold flash.

Fatigue --- I'm still figuring this one out!

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My husband is having 10 hot flashes an hour during the day and nights he’s up at least 3 - 4 times! This is exhausting for him. We do all you suggested but it’s becoming overwhelming. He is on Xtandi & Elligard shots. He’s a stage 4T with a PSA of almost 0 from 72, and has almost 0 testosterone. The dr is no help - he’s not given us any support, we are loosing hope.

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3 replies
hudsonlady | @hudsonlady | May 22, 2023

This is so small but I ordered a small hand held fan from Amazon which provides some relief.

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1 reply
samidh | @samidh | May 23, 2023
In reply to @linric70 "My husband is having 10 hot flashes an hour during the day and nights he’s up..." + (show)
@linric70

My husband is having 10 hot flashes an hour during the day and nights he’s up at least 3 - 4 times! This is exhausting for him. We do all you suggested but it’s becoming overwhelming. He is on Xtandi & Elligard shots. He’s a stage 4T with a PSA of almost 0 from 72, and has almost 0 testosterone. The dr is no help - he’s not given us any support, we are loosing hope.

Jump to this post

Hot flashes are not killing, so don't get disheartened, atb worst they are uncomfortable and disgusting. And I don't believe any doctor can really help with the hot flashes, they are a natural side effect of the drugs (ADT) that's been given. I am on Zoladex SC 10.8mg 3-monthly and Abiraterone 1g OD for several months now. In the beginning hot flashes and fatigue used to bother me like hell, but these sysmtoms have mitigated a lot gradually. So don't lose heart!

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2 replies
samidh | @samidh | May 23, 2023

I think these will continue so long as one is on ADT

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kujhawk1978 | @kujhawk1978 | May 23, 2023
In reply to @linric70 "My husband is having 10 hot flashes an hour during the day and nights he’s up..." + (show)
@linric70

My husband is having 10 hot flashes an hour during the day and nights he’s up at least 3 - 4 times! This is exhausting for him. We do all you suggested but it’s becoming overwhelming. He is on Xtandi & Elligard shots. He’s a stage 4T with a PSA of almost 0 from 72, and has almost 0 testosterone. The dr is no help - he’s not given us any support, we are loosing hope.

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Time to consider another doctor if this one is unwilling to listen and help.

Any competent and caring member of your medical team should be able to address mitigating care for the hot flashes, either medical or other actions.

https://pubmed.ncbi.nlm.nih.gov/15334868/https://www.cancerresearchuk.org/about-cancer/prostate-cancer/practical-emotional-support/hormone-symptoms/sex-hormones-hot-flushes

Kevin

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linric70 | @linric70 | May 23, 2023
In reply to @samidh "Hot flashes are not killing, so don't get disheartened, atb worst they are uncomfortable and disgusting...." + (show)
@samidh

Hot flashes are not killing, so don't get disheartened, atb worst they are uncomfortable and disgusting. And I don't believe any doctor can really help with the hot flashes, they are a natural side effect of the drugs (ADT) that's been given. I am on Zoladex SC 10.8mg 3-monthly and Abiraterone 1g OD for several months now. In the beginning hot flashes and fatigue used to bother me like hell, but these sysmtoms have mitigated a lot gradually. So don't lose heart!

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He is up 3 - 4 times a night because he is drenched and has to change shirts and sheets! I’ve went through menopause for 10 years and they would come and go, but he is getting so fatigued it’s not helping!

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1 reply
linric70 | @linric70 | May 23, 2023
In reply to @hudsonlady "This is so small but I ordered a small hand held fan from Amazon which provides..." + (show)
@hudsonlady

This is so small but I ordered a small hand held fan from Amazon which provides some relief.

Jump to this post

We have a large fan and the ac on but that’s not helping

REPLY
samidh | @samidh | May 23, 2023
In reply to @linric70 "He is up 3 - 4 times a night because he is drenched and has to..." + (show)
@linric70

He is up 3 - 4 times a night because he is drenched and has to change shirts and sheets! I’ve went through menopause for 10 years and they would come and go, but he is getting so fatigued it’s not helping!

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I understand, as I too have gone through this at one stage. But believe me, it will get better. Hot flashes are a side effect of ADT. Also, if your doc is not supportive, try and get a second opinion.

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1 reply
howlor5 | @howlor5 | May 25, 2023
In reply to @samidh "Hot flashes are not killing, so don't get disheartened, atb worst they are uncomfortable and disgusting...." + (show)
@samidh

Hot flashes are not killing, so don't get disheartened, atb worst they are uncomfortable and disgusting. And I don't believe any doctor can really help with the hot flashes, they are a natural side effect of the drugs (ADT) that's been given. I am on Zoladex SC 10.8mg 3-monthly and Abiraterone 1g OD for several months now. In the beginning hot flashes and fatigue used to bother me like hell, but these sysmtoms have mitigated a lot gradually. So don't lose heart!

Jump to this post

It will pass ….. give it some time!!

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