High WBC and platelet count

Posted by eoconner @eoconner, Mar 10, 2020

Hi i've had a high WBC every time i've been to the doctor. and in november last year i as hospitalized for having a wbc of 25 when it's supposed to be at the highest like 10. i'm going to a blood doctor but they are literally treating it like they couldn't care less that they have no idea why it's so high. look i'm glad they ruled out cancer that's great but they still have no idea why my platelet count and WBC is so high. last time it as taken it was 17 which was on friday and i didn't have a fever. and before that it was 13 and 14. when i as at the hospital they could only tell me it wasn't due to an infection. what do i do to have the doctor take my concerns seriously?

@colleenyoung

@eoconner, while hearing you may have a blood clotting disorder isn't great news, I'm glad that investigations are leading somewhere. What are the next steps?

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well i see my doctor on the 26 and she'll tell me where we go from here. i just heard the people at the hostpital saying i had a blood clotting disorder. she'll tell me for certain. she did say it would dictate how long i'm on blood thinners though.

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@eoconner

New update! my antithrombin III levels are low even after stopping the heparin. so i may have a blood clotting disorder. *sarcastic hurray*
and on the blood thinners my platelets have gone down to normal levels. no idea why my wbc is still high though.

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Hi, I have high platelets as well due to ET. What blood thinners are you on that brought your platelets down??
Trying to avoid the chemo as long as possible.

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@sunnyside17

Hi, I have high platelets as well due to ET. What blood thinners are you on that brought your platelets down??
Trying to avoid the chemo as long as possible.

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I'm on coumadin. and will be for the foreseeable future. i noticed they went down but i can't be sure the blood thinner is the cause.

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I just saw my hematologist today. i officially have antithrombin 3 deficiency and if i'm understanding right i also have protein s deficiency *sarcastic huzzah* i will likely be on blood thinners for the rest of my life. *sarcastic huzzah* no word on the wbc though.

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