High PSA Levels: What is the cause?
I have been fighting raising psa levels for past two yrs now. My urologist has done several psa and testostrone test done for possible ED problem . My first test was like at 7 or 8 when it is suppose to be between 0 and 4. He checked prostate and found it is enlarged . So he keeps monitoring psa. Still having sexual problems refering to ED. Test again before next appt . On appt date test was 12 for psa testostrone was like 200. He recomeded biopsy to check for prostate cancer so he did a ultrasound biopsy. Results neg for cancer. Has me test again before next visit psa 14 testostrone 192. He then tries some testostrone injections to bring up testostrone levels to try to help sexual problem test before appt psa slightly elevated testostrone 406. Still sexual problems so he sends me in for MRI to verify for sure i Dont have prostate cancer. Results still neg . Got frustrated no answers doc will not give me any meds to bring down my numbers. So he put me on bi mix injections to help with ED. Tries it out on me first then sends me home to suffer with a 6 to 7 hr errection and had to go back for emergency drainage of blood to bring it back down . Now really having ED problems even with bi mix prescription . Went back for test again psa 18.1 testostrone 204. Now he still refuses to give me meds to bring numbers down . Mri results found no sign of cancer they just showed i had a enlarged prostate. Which we already knew. Is my numbers going to keep going up and still test neg for cancer? What can i expect can the numbers just be high due to prostate enlarged and never have cancer? Where do i go next? What do i do next to get answers
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If you’re unhappy with your treatment get another doc if possible. Out of curiosity when did you last have a complete physical by your PCP in consideration of another underlying cause?
Welcome @kw070707. That sounds like a long time to have fluctuating and high PSA counts and starting at a young age. Have your doctors ever explained why?
Hello I'm new to this group your systems are the same thing I'm going through I have PSA of a 20.I always had problems sense I was 30 years old I am 56 . DR gave medication for UTI for ten days that helped some went back last Thursday for another PSA .I had a rough day Thursday felt swollen and pain the hip area. The last three days been good what helps me is to drink lots of water I work outside if I get dehydrated that's when it will get worse
Matt, your experiences with abiraterone (Zytiga) would be very welcome to members in this discussion:
- Zytiga for Prostate Cancer https://connect.mayoclinic.org/discussion/zytiga/
At Mayo I had a radical prostatectomy and a removal of 11 lymph nodes 2 of which were cancerous. I'm still getting a Lupron injection every 3 months. Also taking 250mg of Abiraterone (Zytiga) and 2.5 mg of Prednisone daily. Keeping my PSA around .04. CEA normal range.
Matt
Welcome, Sean. What treatments did you have?
After having injections, radiation (internal and external), then more injections. My doctors told me they had done everything they could. Injections till death. I rejected that advice and flew to The Mayo Clinic in Rochester, MN. Never had better treatment. I'm alive today because I advocated for myself and got second opinion. I had researched and found the Choline C-11 PET scan. (They probably have even better now). Research everything! Advocate for yourself and don't accept anything you haven't researched.
Wishing you the best! Look forward to hearing more from you.
Godspeed!
Matt
Time for a second opinion.
I hope you’ll return to tell us what you learn.
Nov. 1st