High LDH with ET?

Posted by nohrt4me (Jean) @nohrt4me, Feb 11 8:58am

Awaiting a return message from my chemo after a big spike in my LDH on at my regular blood check this month. All other results looked fine. LDH went from 180 to 300 after being around 180 for the six years I've been on HU. (I am 70 yo with ET CALR x 16 years.)

LDH was in the 300s before I went on HU, and, at the time, wasn't something docs were worried about. However, any big spikes/drops warrant a call to the office.

Will respond to this message when I hear back. Just wanted to get this issue on the board in case anyone else runs into this.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for 1pearl @1pearl

Hi @nohrt4me ,
I hope you had a very blessed and peaceful Thanksgiving. That is great to hear you have a good kitty there. I love our kitty here whose name is Pearl. She often sleeps on the foot of our bed at night and always come to be with me in the morning when I wake up and take my BP and then have my coffee. My sister thinks she helps me keep my BP fine at home. Lately, I have not have doc appointments so my BP has been great! I know my systolic will be high when I go to dermatology appointment in early December if they take it. I am researching alternate Advantage Plans here and see that at least two might be a better fit for me. I am just not happy with what I chose initially at 65 and admit my mistake. The primary doc location is super convenient as close but other care is just not up to par, and not close either plus very limited.
I hope you are feeling better. I do understand how not feeling well could make it hard to be positive: I see that in my sister from her having so many aches and pains after chemo for TN breast cancer.
I am grateful for so many things today and for friends like you in this group too. It is always nice to have someone here to express my concerns who understands. I do feel blessed and I am thankful for that.

Jump to this post

@1pearl Hope you can get to the bottom of that finger mass! I know it has been bothering you.

REPLY
Profile picture for nohrt4me (Jean) @nohrt4me

@janemc Ha! I'll take that cat-and-chocolate treatment. Flora (cat) thinks that's a good idea, too! I see on my doc's portal that the lab orders have been issued, so will go in next week for those. I have to check to see if any are fasting. Looks like nurse is covering a lot of bases, which makes me happy. Order for ultrasound is also there, but office has to sked that and give me the heads up on any prep. Will check in again here when results are back.

Jump to this post

@nohrt4me

Oh, your Flora is gorgeous!

Hooray for your nurse.

It's no fun trudging out for tests in the winter. LOTS of chocolate will be needed to keep you fueled.

REPLY
Profile picture for janemc @janemc

@nohrt4me

Oh, your Flora is gorgeous!

Hooray for your nurse.

It's no fun trudging out for tests in the winter. LOTS of chocolate will be needed to keep you fueled.

Jump to this post

@janemc Here is Daisy. She just fits in a wooden bowl. Very aloof, but mellowing with age.

REPLY
Profile picture for nohrt4me (Jean) @nohrt4me

@janemc Here is Daisy. She just fits in a wooden bowl. Very aloof, but mellowing with age.

Jump to this post

@nohrt4me

Another beautiful portrait! Love your girls.

REPLY
Profile picture for janemc @janemc

@1pearl

Pets definitely lower our BP. I'd be lost without my fur babies.

Please don't fault yourself for your medical plan choice, 1pearl. ALL the plans are imperfect. Health care is a sick joke in this country.

I admire you for not jumping into surgery on your finger until YOU are satisfied that it's necessary.

Best wishes to you and your brave sister.

Jump to this post

❤️

REPLY
Profile picture for nohrt4me (Jean) @nohrt4me

@janemc Ha! I'll take that cat-and-chocolate treatment. Flora (cat) thinks that's a good idea, too! I see on my doc's portal that the lab orders have been issued, so will go in next week for those. I have to check to see if any are fasting. Looks like nurse is covering a lot of bases, which makes me happy. Order for ultrasound is also there, but office has to sked that and give me the heads up on any prep. Will check in again here when results are back.

Jump to this post

@nohrt4me ,
You have a pretty kitty with beautiful eyes. Stay warm back there!

REPLY

Thank you for sharing gorgeous Flora, Daisy and Pearl with us!

REPLY

Update: Lots of blood tests returned with ultrasound Thursday. The blood tests still show high alkaline phosphatase and LDH. However, nurse says they are trending down slightly (i.e., not getting worse).

Platelets still stable. Glucose and thyroid function good. No anemia or Vit B or D deficiency.

So unless the ultrasound shows something, it's watch-and-wait as far as oncology is concerned.

Now I just feel stoo-pid for saying anything at all.

REPLY
Profile picture for nohrt4me (Jean) @nohrt4me

Update: Lots of blood tests returned with ultrasound Thursday. The blood tests still show high alkaline phosphatase and LDH. However, nurse says they are trending down slightly (i.e., not getting worse).

Platelets still stable. Glucose and thyroid function good. No anemia or Vit B or D deficiency.

So unless the ultrasound shows something, it's watch-and-wait as far as oncology is concerned.

Now I just feel stoo-pid for saying anything at all.

Jump to this post

@nohrt4me Time for a teeny pep talk…LOL. It is never stoooopid for having concerns checked out by your medical team. If for nothing else, the peace of mind that resolution brings.
And it this case, yay!! Sounds like you can exhale with the good news of numbers trending back down. 😁

REPLY
Profile picture for Lori, Volunteer Mentor @loribmt

@nohrt4me Time for a teeny pep talk…LOL. It is never stoooopid for having concerns checked out by your medical team. If for nothing else, the peace of mind that resolution brings.
And it this case, yay!! Sounds like you can exhale with the good news of numbers trending back down. 😁

Jump to this post

@loribmt Thanks. I still feel crappy, tho. More fatigue, abdominal discomfort, night sweats, mild nausea that hits at 4 pm on the dot like when I was pregnant--stuff their needles and zappers can't measure.

So I almost hope the ultrasound shows something so I don't have to whine about vague cruddiness and have them wave it away as age and write "fussy and delusional old bat" in my chart.

Sorry for my bad mood. These weather changes make things worse.

REPLY
Please sign in or register to post a reply.