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Focused Ultrasound for Parkinson’s

Posted by parkin41 @parkin41, Feb 22, 2021

Has anyone or does anyone know of anyone who has gone under High Frequency Focused Ultrasound to stop their tremors and has had either positive or negative results from it? I am considering having my dad go under this treatment and would like more information on the effects from it.

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show | @show | 5 days ago
In reply to @jflamini "I understand Focused Ultrasound is being offered at the University of Pennsylvania in Philadelphia. One consideration..." + (show)
Profile picture for jflamini @jflamini

I understand Focused Ultrasound is being offered at the University of Pennsylvania in Philadelphia. One consideration is that the treatment is permanent and cannot be reversed or "shutoff". On the positive side it is a less invasive procedure with external ultrasound neutralizing a pinpoint location in the brain.
My wife had a very successful deep brain stimulation (DBS) procedure at UPENN. Many of her symptoms such as freezing improved and remain resolved five years later. Best wishes, Joe

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@jflamini Could you talk more about your wife's DBS experience ?Did she chose which to implant bilateral GPi vs bilateral GPi + bilateral STN (asleep w/ MER)?
Did this surgery affect her language function? Thanks !

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Lisa Lucier, Moderator | @lisalucier | 3 days ago

Hi, @show - if you'd like to read more about others' experiences with deep brain stimulation (DBS), you might check out these discussions on Mayo Clinic Connect:

- DBS Surgery https://connect.mayoclinic.org/discussion/dbs-surgery/

- Our journey w/DBS for Parkinson's https://connect.mayoclinic.org/discussion/deep-brain-stimulation-dbs/

- How effective is DBS and at what stage of PD should it be performed? https://connect.mayoclinic.org/discussion/how-effective-dbs-at-what-stage-of-the-pd-it-should-be-performed/

@patjack2 and @beachpebble9 - wondering if either of you decided to go ahead with high focused ultrasound (HIFU)?

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patjack2 | @patjack2 | 2 days ago

It was for my husband and decided against it. His neurologist was not a fan of the procedure.

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Lisa Lucier, Moderator | @lisalucier | 18 hours ago
In reply to @patjack2 "It was for my husband and decided against it. His neurologist was not a fan of..." + (show)
Profile picture for patjack2 @patjack2

It was for my husband and decided against it. His neurologist was not a fan of the procedure.

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@patjack2 - did your husband decide to proceed with another therapy instead?

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patjack2 | @patjack2 | 1 hour ago

No. He’s just taking pills and going to PT twice a week.

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Lisa Lucier, Moderator | @lisalucier | 1 hour ago
In reply to @patjack2 "No. He’s just taking pills and going to PT twice a week." + (show)
Profile picture for patjack2 @patjack2

No. He’s just taking pills and going to PT twice a week.

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@patjack2 - thanks for the update. How are the medications and the PT working for your husband?

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