High Coronary Calcium Score: How do others feel emotionally?

Posted by mcphee @mcphee, Dec 14, 2016

I have a calcium score of 1,950 which is extremely high which means I am at a very high risk for a cardiac event,heart attack,stroke or sudden death.

I take a statin and baby aspirin. I have never been sick, have excellent cholesterol, low blood pressure and I am not overweight. I have no other health problems and I have never been sick. But I feel like a walking time bomb which has caused me a lot of stress. I am 70 yrs old.

I wonder how others with this condition feel emotionally?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@predictable

Well, @bluesdoc, I couldn't resist commenting on three of your points an hour ago. Everyone's different for sure, but apparently so are statins. FDA records show reported memory loss with a handful of different statins. If CoQ10 works for you, great! I've taken it for several years and still deal with drifting memory.

Borrowing your words, "there's something clearly amiss . . ." I will turn the corner and say that about Cardiology in several respects (which I won't articulate here without getting permission from a number of friends who feel their cardiologist is welded to long-running recipes for diagnosis and treatment by rote). The friends are referring mainly to Cardiology's fluid approaches to hypertension.

I have personal experience with vessels turning to stone, and it was very sad. My aged grandmother got past 70 years with no significant demise in her cognitive or memory facilities, but over a few years in her mid-70s she was overcome with severe dementia to the extent of becoming totally vegetabilized. Her diagnosis was arteriosclerosis. Both of her only sons also died in dementia. I'm hoping my mother's genes will save me from this empty end of my life. Meantime, I arise every morning asking what I might start today that I could pursue for another 20 years! Martin

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Sure, Martin. Also, statins are different. I was initially started on the standby - atorvastatin - and my hepatic and muscle enzymes went nuts. At a later date, I tried pitavastatin, low dose, and did fine, and have for 3 years. So far....... Also, just to be clear, despite practicing clinical (mostly in the trenches) medicine for ~45 years, I offer no recommendations here. My only dog in this hunt is my own aging and beaten body. If we really knew what to do, we'd all be doing it...... jon

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@bluesdoc

Well, everyone's different. Taking high dose CoQ10 with statins is important. For a study of n=1, in the three+ years I've been on it, it's had no impact on my cerebral function. I work in a highly challenging environment and have to make scores to hundreds of critical decisions a day. So far, so good. (Of course, it might be because of my music sideline, or working out a lot.... or genes? who knows.....) Thanks again for the kind greeting Martin.

There's something clearly amiss about our cohort - the way we're categorized by the cardiology community. I think they project risk in some sort of linear fashion from the levels clearly associated with those risks, ie, the low/mid hundreds. You'd think that if this were the case, we'd all be cardiac cripples with our high levels. But clearly, many of us are not. So, I suspect that very high CC scores could represent, in some cohort, a different pathophysiology than plain old calcifying intimal atheroma. This begs the question, what are we in store for, if not an early cardiac demise? I can't believe it's benign to have our vessels turn to stone, but how does that play out clinically? I don't know.

Jump to this post

Well, @bluesdoc, I couldn't resist commenting on three of your points an hour ago. Everyone's different for sure, but apparently so are statins. FDA records show reported memory loss with a handful of different statins. If CoQ10 works for you, great! I've taken it for several years and still deal with drifting memory.

Borrowing your words, "there's something clearly amiss . . ." I will turn the corner and say that about Cardiology in several respects (which I won't articulate here without getting permission from a number of friends who feel their cardiologist is welded to long-running recipes for diagnosis and treatment by rote). The friends are referring mainly to Cardiology's fluid approaches to hypertension.

I have personal experience with vessels turning to stone, and it was very sad. My aged grandmother got past 70 years with no significant demise in her cognitive or memory facilities, but over a few years in her mid-70s she was overcome with severe dementia to the extent of becoming totally vegetabilized. Her diagnosis was arteriosclerosis. Both of her only sons also died in dementia. I'm hoping my mother's genes will save me from this empty end of my life. Meantime, I arise every morning asking what I might start today that I could pursue for another 20 years! Martin

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@bluesdoc I'm in a similar quandry. What does a high calcium score mean for an otherwise low-risk group? My calcium score is 1500, most concentrated in two coronary arteries. I'm 70,and have no risk factors other than age. I
have maintained lifelong fitness and did very well on the stress test with echocardiogram. That tells me that exercise has kept my arteries open despite the high plaque burden. The best I can do is to take a statin ( I started 40 mg of atorvastatin this week) and continue with a good diet and exercise, and stress management.

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@predictable

Thanks @bluesdoc. That sounds to me as though statins would be most helpful to young people whose cholesterol is not yet blocking crucial arteries. I'm curious mainly because so many people with calcium problems report that their cardiologist just routinely added a statin. I'm also resisting it, because there is some good research showing that advanced-age seniors lose some memory thanks to statins. Again, glad you're on board. Martin

Jump to this post

Well, everyone's different. Taking high dose CoQ10 with statins is important. For a study of n=1, in the three+ years I've been on it, it's had no impact on my cerebral function. I work in a highly challenging environment and have to make scores to hundreds of critical decisions a day. So far, so good. (Of course, it might be because of my music sideline, or working out a lot.... or genes? who knows.....) Thanks again for the kind greeting Martin.

There's something clearly amiss about our cohort - the way we're categorized by the cardiology community. I think they project risk in some sort of linear fashion from the levels clearly associated with those risks, ie, the low/mid hundreds. You'd think that if this were the case, we'd all be cardiac cripples with our high levels. But clearly, many of us are not. So, I suspect that very high CC scores could represent, in some cohort, a different pathophysiology than plain old calcifying intimal atheroma. This begs the question, what are we in store for, if not an early cardiac demise? I can't believe it's benign to have our vessels turn to stone, but how does that play out clinically? I don't know.

REPLY
@bluesdoc

Thanks Martin. Statins would not directly affect coronary calcium, but if or when it is a marker for high intimal atherosclerotic load, then lower LDL 'might' help slow plaque formation. I know that it's questionable how effective statins are for 'primary' prevention. In our case, IF our scores are markers for intimal plaque, then I'd view it as secondary prevention, for which statins have a track record. My cardiologist tells me that his group's income is down since statins have been in wide use. People with heart attacks used to come back for a second or third coronary event. No more. Apparently. It's an odds game, just like the rest of life. I tell my patients that when they fear the disease they have, or might have, to not forget that somewhere there's a bus with their name on the grill. You just never know....

Jump to this post

Thanks @bluesdoc. That sounds to me as though statins would be most helpful to young people whose cholesterol is not yet blocking crucial arteries. I'm curious mainly because so many people with calcium problems report that their cardiologist just routinely added a statin. I'm also resisting it, because there is some good research showing that advanced-age seniors lose some memory thanks to statins. Again, glad you're on board. Martin

REPLY
@predictable

@bluesdoc, I'm sure that I'm one of hundreds who are glad to welcome you to Mayo Connect and hope you can be with us for a long time. Can you help me understand how a statin is beneficial to a person with a high-calcium score in the arteries? Martin

Jump to this post

Thanks Martin. Statins would not directly affect coronary calcium, but if or when it is a marker for high intimal atherosclerotic load, then lower LDL 'might' help slow plaque formation. I know that it's questionable how effective statins are for 'primary' prevention. In our case, IF our scores are markers for intimal plaque, then I'd view it as secondary prevention, for which statins have a track record. My cardiologist tells me that his group's income is down since statins have been in wide use. People with heart attacks used to come back for a second or third coronary event. No more. Apparently. It's an odds game, just like the rest of life. I tell my patients that when they fear the disease they have, or might have, to not forget that somewhere there's a bus with their name on the grill. You just never know....

REPLY
@bluesdoc

Newbie here. I'm, for better or worse, an MD (ex ER, now hospitalist), been a health freak all my life, now age 72. Minimal to no risk factors until late 60s when my BP crept up to need-to-treat levels. Exercised all my life. I developed paroxysmal atrial fib 3+ years ago so I had a workup that included a CC score. I was blown away to find out it was over 2200. wtf?? Normal perfusion, treadmill, no exercise intolerance. I would have gotten an angiogram or coronary CT angio but I have a really bad reaction to IV contrast, so I won't do that unless I'm in a life threatening situation. I'd been on coumadin for 5 years for an unrelated malady (in addition to atrial fibrillation) and switched to a non-coumadin anticoagulant and took advantage of this to take large doses of Vit K (plays a role in moving vascular calcium to bone). I also started a statin. Game plan was to recheck my CC score in 3 years, which was this past summer. The new level was over 2600. ugghhh. Like many of you, I've felt like a walking time bomb. My cardiologist and other docs acknowledge that levels like ours are not well understood. btw, my atrial fibrillation was obliterated with 2 atrial ablations. At this point, I'm assuming that this calcium is mostly NOT in the intima (inside) of the vessel in plaque but is either medial (muscle layer of the arteries) or otherwise more external to the flow. That is, it is NOT highly correlated with plaque. I'd like to believe that anyway. In the meantime, I do what most of you do - I work out, take my statin (which seems to work very well), eat as reasonably as I can and, as my cardiologist suggested to me, carpe diem. An additional consideration for me is that I have chronic/late stage Lyme disease and have had cardiac involvement. My lyme guru doc suspects it's calcified Lyme biofilm. More oh well.......

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@bluesdoc, I'm sure that I'm one of hundreds who are glad to welcome you to Mayo Connect and hope you can be with us for a long time. Can you help me understand how a statin is beneficial to a person with a high-calcium score in the arteries? Martin

REPLY
@dpframing

2996 calcium score. I said I had chest pain and I got the angiogram done. Calcium was in the artery walls/ so blood flow is not restricted to the ticker. The scores are exact but not absolute.There is alot of wiggle room in predicting an event. I was told to drop 30 and eat right , stay on statins and BP meds, and stay active (exercise) i.e. - live a healthy life. The rest we leave up to fate. Is she a beautiful siren in the night, or a siren in the night going to the ER😊❓❓

Jump to this post

Newbie here. I'm, for better or worse, an MD (ex ER, now hospitalist), been a health freak all my life, now age 72. Minimal to no risk factors until late 60s when my BP crept up to need-to-treat levels. Exercised all my life. I developed paroxysmal atrial fib 3+ years ago so I had a workup that included a CC score. I was blown away to find out it was over 2200. wtf?? Normal perfusion, treadmill, no exercise intolerance. I would have gotten an angiogram or coronary CT angio but I have a really bad reaction to IV contrast, so I won't do that unless I'm in a life threatening situation. I'd been on coumadin for 5 years for an unrelated malady (in addition to atrial fibrillation) and switched to a non-coumadin anticoagulant and took advantage of this to take large doses of Vit K (plays a role in moving vascular calcium to bone). I also started a statin. Game plan was to recheck my CC score in 3 years, which was this past summer. The new level was over 2600. ugghhh. Like many of you, I've felt like a walking time bomb. My cardiologist and other docs acknowledge that levels like ours are not well understood. btw, my atrial fibrillation was obliterated with 2 atrial ablations. At this point, I'm assuming that this calcium is mostly NOT in the intima (inside) of the vessel in plaque but is either medial (muscle layer of the arteries) or otherwise more external to the flow. That is, it is NOT highly correlated with plaque. I'd like to believe that anyway. In the meantime, I do what most of you do - I work out, take my statin (which seems to work very well), eat as reasonably as I can and, as my cardiologist suggested to me, carpe diem. An additional consideration for me is that I have chronic/late stage Lyme disease and have had cardiac involvement. My lyme guru doc suspects it's calcified Lyme biofilm. More oh well.......

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@mcphee Everybody is so concerened about high calcium score let me tell you ,ll In 1996 I had a triple by pass 85%,90%95,% blockage in arteries Before surgery my symptoms where sweating shortness of breath ,couldn't work in heat Id pass out and chest pain Ive been fighting high cholesterol since then on statins didn't keep it down mine is hereditary 2yrs ago I had a chemical stress test showing my heart is fine I exercise,eat right no junk food try to stay away from sweets Emotions affect your health if your going to constantly worry about this it will happen probably .Be happy live your life and God will take care of everything else.

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@nyartist

@ochip what testing was done to show blood flow in the arteries? That's what I'm trying to get my cardiologist to set up for me but she says as long as I've never had symptoms she sees no reason. I'm like you: 2316 score but have been exercising all my life, mountaineering, bicycling in the Rockies - the gym the whole enchilada so to speak. As soon as I got my score I wrote a good bye letter to my wife thinking that the end is nigh.. But I don't feel that way anymore.

Jump to this post

2996 calcium score. I said I had chest pain and I got the angiogram done. Calcium was in the artery walls/ so blood flow is not restricted to the ticker. The scores are exact but not absolute.There is alot of wiggle room in predicting an event. I was told to drop 30 and eat right , stay on statins and BP meds, and stay active (exercise) i.e. - live a healthy life. The rest we leave up to fate. Is she a beautiful siren in the night, or a siren in the night going to the ER😊❓❓

REPLY
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