Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@catluvr999

Hi, @artscaping. Thanks for the tip...I'll try the bookmarking this go-around, if I remember. Seeing your t-score, with those -3s, helped put your meds into context for me, thanks. I don't think my Hologic machine did wrists but maybe it could have if my doctor had requested it. I understand your wanting a higher frequency of lower doses....makes sense. Why do I feel like I've typed this before? I hope this isn't a duplicate reply. The pill you're taking is a Bisphosphonate (anti-resorptive), right? I want to be sure to become aware of the existence of any *non*-bisphosphonate pill form. You could have chosen a daily injection, though, right? That would be lower doses than by doing it less often....but it might be hard to do injections every day.

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Hi there.......thanks for your response and important message. I want to respond to your inquiry about daily injection options. I did choose Tymlos and daily injections were part of my morning routine for two years. I had no side effects or issues at all. The Dexa scores that were -3 were from my wrist which I have now been told are not used in determining the level of osteoporosis in my body. So I have been concentrating on the hip scores.

Does that make sense to you?

May you have contentment and ease.
Chris

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@toni7

My appointment is scheduled for August 16th. I have a question ... I posted my question this morning only I don't see it. It's possible I posted on Bones, Joints and Muscles or other places. I don't quite understand how Forteo and Tymlos work. Do these drugs build new bones while breaking down old bones? Or do they build new bones alongside the old bones? Or do they simply make the old bones stronger and more dense?
I do always have a list of questions with me. Needless to say, not all doctors like it. My previous endocrinologist did not like it, he briefly nodded yes or no to one or two questions, then walked out. Whereas my primary physician loves and encourages me to do that. I will post my experience with this new endocrinologist ... I pray he will walk me thru the right path. Thank you for your response.
Have a fantastic day,
Toni

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Good morning @toni7 .......you are right where I was 3 years ago. I had the same questions. I learned a lot about Tymlos and Forteo by visiting the websites. Both producers have phone numbers you can call and talk to a medical professional. I found that to be helpful. They also have access to the research staff and can get some of those important questions answered at the source. Here is the number for Amgen which produces Evenity and Prolia. 800 772 6536.

I know that we worry about biased responses because of the relationship with the producer. I never felt that......in my conversations with these folks. And they acknowledged and handled "negative" inquiries well.

So you have experienced doctors who don't like questions. I prepared a list of 14 questions for my appointment today with the Urology surgeon I will have next week for bladder sling surgery. She requested this extra pre-surgery meeting so I hope it is positive and helpful.

I will look for your new information after your appointment with the endocrinologist. Thanks for staying in touch. Your contributions are helpful to so many members.

May you be safe, protected and free from inner and outer harm.
Chris

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@angie13

I didn't think famotidine made osteo worse, thought it was just the PPI's which my stomach doctor took me off of because of my osteoporosis.

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I just read that Pepcid and Zantac have less of an impact on nutritive absorption and therefore bones. And baking soda may work! I don't know about that approach 🙂

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@toni7

I ordered the book, "Whole Body Approach to Osteoporosis" and will be picking it up today from the bookstore. I can't wait to read it and thank you for recommending it to me. My score of -2.5 is for the hip ... that's not the worst. My concern is the spine ... which reads, -2.8 to -3.5. Neck is --3.2
Do you think it's serious enough to start taking medication or should I continue with exercise, vitamins and diet?
I appreciate your help,
Toni

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@toni7 sorry I thought your worse score was -2.5. I never get more than one score for the spine (lumbar). What is the -3.5 for? And by "neck" do you mean lumbar neck?

If insurance pays or if you qualify for their assistance, Tymlos or Forteo might be a good approach. You can ask your doctor,

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@windyshores

I just read that Pepcid and Zantac have less of an impact on nutritive absorption and therefore bones. And baking soda may work! I don't know about that approach 🙂

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Baking soda worked great for me so far. I first took it daily for 3 days. Then didn't seem to need it for another week. Now I take it 'as needed' but that's currently averaging once every few weeks or so. I seemed to have to take the prescription drugs with increasing, not decreasing frequency so that's good news. It might not be a cure for really serious GERD or something but I'm not sure any of the GERD drugs are either.

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This article lists drugs that might not be bones' best friends. Some surprised me. As did a study suggesting SSRIs are a problem because affecting serotonin levels.

Medicines That Can Be Bad for Your Bones

https://americanbonehealth.org/bone-health/medications-that-can-be-bad-for-your-bones-2/
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@windyshores

@toni7 Tymlos and Forteo build bone but do not significantly affect resorption. You can google them for a complete explanation of how they work. They work through the parathyroid pathway.

A score of -2.5 is right on the line. It is a personal decision but I would not medicate yet,myself. Look at Lani Simpson MD's Facebook group or pick up a copy pf Keith McCormick's book "Whole Body Approach to Osteoporosis."

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Thank you for the resource information!

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@artscaping

Hi there.......thanks for your response and important message. I want to respond to your inquiry about daily injection options. I did choose Tymlos and daily injections were part of my morning routine for two years. I had no side effects or issues at all. The Dexa scores that were -3 were from my wrist which I have now been told are not used in determining the level of osteoporosis in my body. So I have been concentrating on the hip scores.

Does that make sense to you?

May you have contentment and ease.
Chris

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Hi @artscaping. I probably missed something you wrote about your case triggering drug therapy. I thought t-scores like what you stated....hip -1.5 and -1.2....mean only low bone mass and typically don't trigger a doctor to suggest drug therapy. Yours seems to be a case when your doctor was being proactive, and I'm sure also that your story, as is everyone's, is more complicated than I am aware of/remember, not helped by my continuing inability to smoothly trace our thread backward. I simply have to stop trying to correlate peoples' scores to their treatment. Thanks again.

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@windyshores

@toni7 sorry I thought your worse score was -2.5. I never get more than one score for the spine (lumbar). What is the -3.5 for? And by "neck" do you mean lumbar neck?

If insurance pays or if you qualify for their assistance, Tymlos or Forteo might be a good approach. You can ask your doctor,

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This Dexa scan was done 2020. I am due for another and assume the new endocrinologist will order one.
Results of 2020:
Spine:
L1 -2.8
L2 -3.2
L3 -3.1
L4 -3.5
Femoral neck (Left) -3.2
Femoral neck (Right) -3.0
I was in a bad boating accident when I was 35 yrs. old and fractured my spine.
Region L2, L3, L4 were fractured. It's all healed.
As suggested by Chris, I will call the companies of Tymlos, Forteo and Evenity and ask questions. Other than what I have in mind to ask ... any suggestions of further questions to ask? Anything and everything helps me to make a decision. Hopefully my new endocrinologist allows me the time and offers truthful and educated answers to my confusing state of mind on how to address my treatment.
Have a peaceful evening,
Toni

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@toni7

This Dexa scan was done 2020. I am due for another and assume the new endocrinologist will order one.
Results of 2020:
Spine:
L1 -2.8
L2 -3.2
L3 -3.1
L4 -3.5
Femoral neck (Left) -3.2
Femoral neck (Right) -3.0
I was in a bad boating accident when I was 35 yrs. old and fractured my spine.
Region L2, L3, L4 were fractured. It's all healed.
As suggested by Chris, I will call the companies of Tymlos, Forteo and Evenity and ask questions. Other than what I have in mind to ask ... any suggestions of further questions to ask? Anything and everything helps me to make a decision. Hopefully my new endocrinologist allows me the time and offers truthful and educated answers to my confusing state of mind on how to address my treatment.
Have a peaceful evening,
Toni

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Those fractures, even if traumatic and not clearly osteoporotic, plus your scores, make you eligible for Forteo, Tymlos and Evenity. I chose Tymlos, as I have written before, because I could start at a partial dose of 2 pen clicks out of 8 and work my way up, which I did. Also, you can take Evenity after the other two but not the other way around. Good luck!

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