Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health group.

@callalloo

If the issue with Fosamax is that taking an oral bisphosphonate can exacerbate GI tract issues (which I have also, so totally understand), there are injectable or infusion bisphosphonates as well.
Can you talk with your physician about these options so you can formulate a reassuring game plan?

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I'll definitely ask the endocrinologist about that. She didn't mention the IV/IM bisphosphonate options when she was pressing me to take them, only moved on to Forteo. I'm a health care provider (retired optometrist, worked in a surgical clinic for many years) so I'm not too shabby at finding information, usually, but researching options in postmenopausal osteoporosis, and the blood work associated with assessing it, is not straightforward at all.
Thank you for the suggestion!

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Hi everyone,
Thanks for your responses on my starting Forteo. I discussed my concerns about the shots everyday with my doctor, and we will be starting Reclast instead for one year. It's the infusion. I had stomach shots for something else in the hospital, and it was extremely painful for me. I am 69 and my bone density is bad, but she said it's ok to wait. I'll also be starting to walk a lot more and take calcium. Anyone else on Reclast?

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@mj20

Hi everyone,
Thanks for your responses on my starting Forteo. I discussed my concerns about the shots everyday with my doctor, and we will be starting Reclast instead for one year. It's the infusion. I had stomach shots for something else in the hospital, and it was extremely painful for me. I am 69 and my bone density is bad, but she said it's ok to wait. I'll also be starting to walk a lot more and take calcium. Anyone else on Reclast?

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IF your bone density is bad, would you consider Tymlos? I am much more leery of side effects with Reclast. The pen needles for Tymlos are tiny and have adjustable doses so you can start low and move up.

I have heard that using Reclast first may affect the effectiveness of the bone-builders like Tymlos, Forteo or Evenity and it has been suggested to me to do Reclast after Tymlos.

I fractured my spine in several places. Tymlos and Forteo build quality bone. I would take a small needle every morning forever if I could have avoided these fractures, which are permanent, painful and disabling.

Respect to you in your decision-making but wanted to share my perspective.

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@windyshores

IF your bone density is bad, would you consider Tymlos? I am much more leery of side effects with Reclast. The pen needles for Tymlos are tiny and have adjustable doses so you can start low and move up.

I have heard that using Reclast first may affect the effectiveness of the bone-builders like Tymlos, Forteo or Evenity and it has been suggested to me to do Reclast after Tymlos.

I fractured my spine in several places. Tymlos and Forteo build quality bone. I would take a small needle every morning forever if I could have avoided these fractures, which are permanent, painful and disabling.

Respect to you in your decision-making but wanted to share my perspective.

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Thanks, Windy Shores. Its soooo hard to know what to do, and it's making me crazy. I've been trying to make this decision for months. My doctor thought it was a good alternative plan, so I decided to go with it. It's one infusion once a year for two years. I have stomach issues and continuous lung issues. For the past year , I've been through three bronchoscopies, 19 days of 12 infusion syringes a day for lung infections, and the list goes on and on
, so I just tried to make the right decision, that would be the easiest on me. Sorry if I'm venting, but it's all too much. You know how it feels when you get to that place? I'm sorry to hear about your fractures. They sound terrible. Well, thanks for your reply. You are really a kind person.

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@mj20

Thanks, Windy Shores. Its soooo hard to know what to do, and it's making me crazy. I've been trying to make this decision for months. My doctor thought it was a good alternative plan, so I decided to go with it. It's one infusion once a year for two years. I have stomach issues and continuous lung issues. For the past year , I've been through three bronchoscopies, 19 days of 12 infusion syringes a day for lung infections, and the list goes on and on
, so I just tried to make the right decision, that would be the easiest on me. Sorry if I'm venting, but it's all too much. You know how it feels when you get to that place? I'm sorry to hear about your fractures. They sound terrible. Well, thanks for your reply. You are really a kind person.

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Good evening @mj20 I haven't had a chance to say "Hello". I am the mentor working with this new group, Osteoporosis & Bone Health. I am so glad we have our own group and our own space now. And thanks to you also @windyshores. You truly are a kind and helpful person with lots of experience.

I think I too would run the other way if I had to have 12 injections a day for 19 days. However, I did two years of Tymlos without a whimper. Why? My body can't handle large doses that are supposed to last a month or 6 months or even a year. When I calculate the half-life of the dosage, I realize why my tolerance difficulties come in the first half. I am simply way overdosed. So daily injections (gentle, minimal ones) are perfect for me.

Good luck with your decision outcome. It is great that as we live longer, we now have medications that help our bones stay strong. Please drop in and share how you are doing. That is the way we can all help each other.

May you be safe, protected, and free from inner and outer harm.
Chris

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