Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health group.

@contentandwell

@kilh I started on Tymlos last March so I'm in my 11th month now.

I get my Tymlos from a CVS Specialty pharmacy, they have it shipped to me and I have no problems with getting it that way. I also get my immunosuppressant from a CVS Speciality pharmacy and have never had a problem with that either. Interestingly, one comes from a CVS in Boston, the other from a CVS in NJ!

I'm glad that at 7 clicks you are doing well with Tymlos. I have heard of very good results with it. For a person who qualifies to get it, who tolerates it, and can manage to pay for its pricey cost, I think it's definitely a great way to go. We look at it as a sacrifice but a worthwhile one.
JK

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I paid for the first six months but after I retired I applied for Radius Assist and I was accepted. So I get 18 months free. But the first 6 months cost me over $2000. I was afraid when I stopped that month I would lose my $. Thank goodness for a little help.

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@jmanj

My spine measurement went from -3.0 to -2.1 at the end of two years (from age 64 to 66) using Forteo. I had a good experience, with no side effects. Give it some consideration.

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Thanks for giving age and scan results. I read about side affects often but rarely see info on if the meds actually work.

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I was reading about osteoporosis vibration belt. Wondering if anyone has discussed this treatment technique with their doctors. They say "Low Intensity Vertical vibration machines are effective for osteoporosis. The low intensity vertical vibration machines are the ones that produce a maximum of 0.3 G’s". Maybe as an add-on to Tymlos or other osteoporosis meds.

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I am interested to know more about this.

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Is this similar to Magna Wave PEMF? I understand that this procedure facilitates healing. Here's a description " A pulsating electro- magnetic field delivered to the body through a coil is said to produce one main result: stimulating cell metabolism. The action is thought to cause a chain of processes in the body that could lead to improvement of health without side effects. Increased oxygenation and blood flow helps support the body's natural function and optimal wellness in a drug free way."

I understand that some chiropractors offer this service. Has anyone tried this?

As I understand it, this procedure has been used on horses to promote their healing when healing an injury. Since then it's been adapted for human use.

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I am new to this site. I have had my second injection of Prolia and have been experiencing 3 months of severe bone and muscle pain !!! Can anyone please help me with advice on how to stop taking Prolia. I want this nightmare to end. I don't know what to take instead of Prolia since I understand that you cannot just stop Prolia. Has anyone out there had a successful outcome after stopping Prolia ? Please help !

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@hlp123

I am new to this site. I have had my second injection of Prolia and have been experiencing 3 months of severe bone and muscle pain !!! Can anyone please help me with advice on how to stop taking Prolia. I want this nightmare to end. I don't know what to take instead of Prolia since I understand that you cannot just stop Prolia. Has anyone out there had a successful outcome after stopping Prolia ? Please help !

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Hi,

I took 2 shots of prolia and had the same severe bone and muscle pain, especially in my legs and the pain was the worst when lying down. I also experienced hair loss due to prolia. I told my endocrinologist I was stopping it. (Many drs say you cannot stop it but that is not true). My doctor is chairman of endocrinology at a large hospital complex in the Washington, D.C. area. I asked him to calculate my risk of broken bones if I stopped. Given that I have severe osteoporosis, he calculated that I had a 10% chance of a broken hip and a 25% chance of any broken bone in the next 10 years. I will take that chance as I feel great without the prolia. (I had been on other osteoporosis drugs prior to prolia but they all made me sick.) He did describe ergocalciferol, Vitamin D and Vitamin B12 which I faithfully take and I also stay active. I walk about 7000 steps/ day (except in snow or rain) and am generally active and busy.

Remember this is your body and the medical profession is closely allied with drug companies. Do what makes you feel good and is best for you.

Kaye

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@elenamayo

I was reading about osteoporosis vibration belt. Wondering if anyone has discussed this treatment technique with their doctors. They say "Low Intensity Vertical vibration machines are effective for osteoporosis. The low intensity vertical vibration machines are the ones that produce a maximum of 0.3 G’s". Maybe as an add-on to Tymlos or other osteoporosis meds.

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I have not heard about this but will
Check into it

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@sewcouture

Hi,

I took 2 shots of prolia and had the same severe bone and muscle pain, especially in my legs and the pain was the worst when lying down. I also experienced hair loss due to prolia. I told my endocrinologist I was stopping it. (Many drs say you cannot stop it but that is not true). My doctor is chairman of endocrinology at a large hospital complex in the Washington, D.C. area. I asked him to calculate my risk of broken bones if I stopped. Given that I have severe osteoporosis, he calculated that I had a 10% chance of a broken hip and a 25% chance of any broken bone in the next 10 years. I will take that chance as I feel great without the prolia. (I had been on other osteoporosis drugs prior to prolia but they all made me sick.) He did describe ergocalciferol, Vitamin D and Vitamin B12 which I faithfully take and I also stay active. I walk about 7000 steps/ day (except in snow or rain) and am generally active and busy.

Remember this is your body and the medical profession is closely allied with drug companies. Do what makes you feel good and is best for you.

Kaye

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I felt the same until I fractured three lumbar vertebrae with one unwise movement. Right now I don't care if I will go bald, be nauseated every day, and have bone pain so I can remain on Tymlos and avoid the excruciating pain and disability of fractures.

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@elenamayo

I was reading about osteoporosis vibration belt. Wondering if anyone has discussed this treatment technique with their doctors. They say "Low Intensity Vertical vibration machines are effective for osteoporosis. The low intensity vertical vibration machines are the ones that produce a maximum of 0.3 G’s". Maybe as an add-on to Tymlos or other osteoporosis meds.

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Hi @elenamayo I purchased a Whole Body Vibration Plate exerciser that has three programs for "improving bone density" after reading a review paper, "Whole-body vibration exercise in postmenopausal osteoporosis", Magdalena Weber-Rajek, et al. I started using it in August, did two 15 minute programs a day, then went down to one, and now I'm going back up to two. I'll be able to get another dexascan in 18 mos. so will know the results, but it has really firmed my leg muscles up, more than the strength training exercises I've done. Amazon has a variety of these exercisers, I chose the Eilison Bolt. Whole Body Vibration Exercise isn't appropriate for everyone – so it's important to research it.

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@sewcouture

Hi,

I took 2 shots of prolia and had the same severe bone and muscle pain, especially in my legs and the pain was the worst when lying down. I also experienced hair loss due to prolia. I told my endocrinologist I was stopping it. (Many drs say you cannot stop it but that is not true). My doctor is chairman of endocrinology at a large hospital complex in the Washington, D.C. area. I asked him to calculate my risk of broken bones if I stopped. Given that I have severe osteoporosis, he calculated that I had a 10% chance of a broken hip and a 25% chance of any broken bone in the next 10 years. I will take that chance as I feel great without the prolia. (I had been on other osteoporosis drugs prior to prolia but they all made me sick.) He did describe ergocalciferol, Vitamin D and Vitamin B12 which I faithfully take and I also stay active. I walk about 7000 steps/ day (except in snow or rain) and am generally active and busy.

Remember this is your body and the medical profession is closely allied with drug companies. Do what makes you feel good and is best for you.

Kaye

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Hi @sewcouture I also take Boron, Vitamin K, and L.Reuteri in addition to Vitamin D, Calcium and Magnesium. Good luck!

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@sewcouture

Hi,

I took 2 shots of prolia and had the same severe bone and muscle pain, especially in my legs and the pain was the worst when lying down. I also experienced hair loss due to prolia. I told my endocrinologist I was stopping it. (Many drs say you cannot stop it but that is not true). My doctor is chairman of endocrinology at a large hospital complex in the Washington, D.C. area. I asked him to calculate my risk of broken bones if I stopped. Given that I have severe osteoporosis, he calculated that I had a 10% chance of a broken hip and a 25% chance of any broken bone in the next 10 years. I will take that chance as I feel great without the prolia. (I had been on other osteoporosis drugs prior to prolia but they all made me sick.) He did describe ergocalciferol, Vitamin D and Vitamin B12 which I faithfully take and I also stay active. I walk about 7000 steps/ day (except in snow or rain) and am generally active and busy.

Remember this is your body and the medical profession is closely allied with drug companies. Do what makes you feel good and is best for you.

Kaye

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Thank you for your response, Kaye. I am so grateful that we can help each other ! Good Luck to you.

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