Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@irishk

Dr. Susan Ott in Seattle, a bone researcher, has a very good website for patients and clinicians. You can click on any of the subjects and get very good information.
http://courses.washington.edu/bonephys/
Moderator, not sure if it is OK to tell people about the Inspire website or not with many topics on osteo.

k

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Thanks! I like the Inspire website and have found it very helpful.

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@mohavegal

@angelas , I increased my Vitamin D levels to 74. They should be at least 70 and up. Living so long in Chicago area it took a toll on my D levels. I take 5,000 units x 8 or 10 soft gels at least once a week. It will stay in your system for a few days.

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Thanks! I'm going to get a second opinion on best course of action for me.<br />

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@angelas

I, too, am interested in treatments for osteoporosis at a younger (50) age; however, postmenopausal. I found Dr. Lani's Bone Health Guide book helpful. I'm wary of beginning medical treatments (Forteo for 18-24 months and then a bisphosphonate for 5-7 years) based on one BMD scan.

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Have you had your serum calcium checked > Personally I would like find out the cause of osteoporosis at young age , Bone loss at a young age can be due to parathyroid disease and if that is the case PT disease had to be treated first .Not sure if you see the other posts I have posted on this

The parathyroid glands control the levels of calcium and phosphorus in the blood. These are important minerals that work closely together to build strong bones and teeth.It is important that blood calcium is kept at a precise level to control vital nerve and muscle function and the parathyroid glands secrete parathyroid hormone (PTH) to do this. If the blood calcium level is low, more PTH is produced to raise calcium levels in the blood by reducing the loss of calcium through the kidneys, by increasing calcium absorption from the gut and by causing the release of calcium from the bones
https://www.nos.org.uk/NetCommunity/Document.doc?id=389

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The parathyroid glands control the levels of calcium and phosphorus in the blood. These are important minerals that work closely together to build strong bones and teeth.It is important that blood calcium is kept at a precise level to control vital nerve and muscle function and the parathyroid glands secrete parathyroid hormone (PTH) to do this. If the blood calcium level is low, more PTH is produced to raise calcium levels in the blood by reducing the loss of calcium through the kidneys, by increasing calcium absorption from the gut and by causing the release of calcium from the bones The glands will decrease PTH production as blood calcium levels rise.

What is hyperparathyroidism?
https://www.nos.org.uk/NetCommunity/Document.doc?id=389

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Blood tests should l be done to check for increased levels of parathyroid hormone (PTH), calcium, and alkaline phosphatase, and lower levels of phosphorous. A 24-hour urine collection test can help determine how much calcium is being removed from the body

The parathyroid glands are located in the neck, near or attached to the back side of the thyroid gland. They produce parathyroid hormone. This hormone controls calcium, phosphorus, and vitamin D levels in the blood and bone.

When calcium levels are too low, the body responds by making more parathyroid hormone. This hormone causes calcium levels in the blood to rise, as more calcium is taken from the bone and reabsorbed by the intestines and kidney.

One or more of the parathyroid glands may grow larger. This leads to too much parathyroid hormone (a condition called primary hyperparathyroidism). Most often, the cause is not known. When a parathyroid gland is diseased, it causes calcium to be leached from the bones

The disease is most common in people over age 60, but it does also occur in younger adults. .
Women are more likely to be affected than men.
Radiation to the head and neck increases the risk.

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@flygirl8

I have been diagnosed with osteoporosis, the endocrinologist wishes to place me on a yearly injection, several years ago my physician wanted to place me on fosamax, I tried it for a few months and was ill the whole time. Thus, myreluctance to start on these meds. I would like my Endo. Doc to do a blood test on my para-thyroid glands as well prior to my starting on any meds-is this an unusual request?

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I agree @flygirl8 , check serum calcium as well as parathyroid hormone at same blood draw. You may need 2 or 3 sets of these labs to get a true picture as when one has parathyroid issues the ca and pth can jump all over . Getting these labs done once a week , for 3 wks may be enough if you do not have a pt problem
Getting your vit d checked as well as a 2ndary form of hyperPARAthyroid disease can be due to low vit d .

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@colleenyoung

@heritage1955 I'd like to connect you with @smcguire who also experienced serious bone density loss at a young age. You can read more about her here: https://connect.mayoclinic.org/discussion/i-went-through-early-menopause-at-35-along-with-my-birth-mother/

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Any one experiencing bone loss at a young age should have their serum calcium and parathyroid hormone checked
Find out the reason for bone loss at such a young age. If it happened to be PARA thyroid disease, once pt disease is taken care of the bone loss can be revered.

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@angelas , I increased my Vitamin D levels to 74. They should be at least 70 and up. Living so long in Chicago area it took a toll on my D levels. I take 5,000 units x 8 or 10 soft gels at least once a week. It will stay in your system for a few days.

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@adamsky

I too have been diagnosed with osteoporosis at 61 recently. I do not have any pain yet but am worried about the shot the Doctor prescribed for me to get so I am having a second opinion. I normally run on the anemic side but the Doctor would not run a full blood panel so going back to my hometown Doctor who knows my medical history better. It is very scary to read about all the side effects the drugs have. I know how you are feeling and wished there was a more natural way to replenish our bones other then drugs. <br />
<br />
<br />

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Works great for me.  Really does depend upon the severity which would require more frequent applications.  Where were you using it??<br />
mohavegal

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@mohavegal

Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don't know what "family" it's in. Having horrible pain when lying down.

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Yes, my doctor very strongly insisted I go on Prolia.Guess I'll see what happens<br />
mohavegal

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