1. < Fibromyalgia

Helpful tips on medication for fibromyalgia.

Posted by mada @mada, Jan 26 9:48am

Hi 👋 all . I'm new here. I am just gettin worse daily it seems at the moment. Diagnosed 2023.i am on duloxetine 120mg and doc wants me to start gabapentin also . I'm so tired of the shock pains in head but now in spine and arm.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

1kay2 | @1kay2 | Jan 31 7:05pm
In reply to @maps "I tried gabapentin early on and I could not take it. It made my pupils enlarge..." + (show)
@maps

I tried gabapentin early on and I could not take it. It made my pupils enlarge to the size of my corneas and I had so much pressure in my head that I felt my head would explode. A horrible experience. I can't take most Fibromyalgia meds. Lyrica neither. They don't work for me and make my head feel really strange.

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Wow you sound like me. I too cannot take any of the meds. Lyrica was one of the real bad ones.

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wvsue | @wvsue | Feb 5 2:44pm
In reply to @1kay2 "My doctor and rheumatologist said a firm no to gabapentin when someone mentioned it to me...." + (show)
@1kay2

My doctor and rheumatologist said a firm no to gabapentin when someone mentioned it to me. For the RLS ands neuralgia I take Mirapex (pramipexole Dihydrochloride)0.125 mg 1 tablet for immediate relief.

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I take Ropinirole for RLS. Anyone else tried it? Sometimes I think I get just as good as or better relief with homeopathic tablets.

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1 reply
mada | @mada | Feb 6 2:39am
In reply to @wvsue "I take Ropinirole for RLS. Anyone else tried it? Sometimes I think I get just as..." + (show)
@wvsue

I take Ropinirole for RLS. Anyone else tried it? Sometimes I think I get just as good as or better relief with homeopathic tablets.

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I take Pramipexol before bed for restless legs. It has been working fine,but lately I seem to be getting more spasm legs an cramp instead of jus the strong twitching and annoyance.

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dcastle | @dcastle | Feb 6 5:20pm
In reply to @valfacciolla "Gabapentin can be tricky. I have had both gabapentin and more recently, Lyrica. It messed up..." + (show)
@valfacciolla

Gabapentin can be tricky. I have had both gabapentin and more recently, Lyrica. It messed up my memory, couldn't recall words. Really messed up my gut. Get a comprehensive list of side effects and watch yourself.

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I got off Lyrica years ago and take green tea extract with ginger root and turmeric for my fibromyalgia. Gabapentin gives me diarrhea.

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1 reply
mada | @mada | Feb 7 3:24am
In reply to @dcastle "I got off Lyrica years ago and take green tea extract with ginger root and turmeric..." + (show)
@dcastle

I got off Lyrica years ago and take green tea extract with ginger root and turmeric for my fibromyalgia. Gabapentin gives me diarrhea.

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@dcastle does it work for you ,in what way . I'm trying out Ashwaganda root
drops an seems to be helping with my head zaps an it has a relaxing
feeling. I didn't start the Gabapentin..

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nancyeburford | @nancyeburford | 5 days ago

Well not really sure this is my diagnosis as everything they have tested me for is negative. They want to put me on low dose naltrexone. Anyone on this ?

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2 replies
luvrofthelord | @luvrofthelord | 5 days ago
In reply to @nancyeburford "Well not really sure this is my diagnosis as everything they have tested me for is..." + (show)
@nancyeburford

Well not really sure this is my diagnosis as everything they have tested me for is negative. They want to put me on low dose naltrexone. Anyone on this ?

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I was on low dose Naltrexone and didn't find any relief from my symptoms. However that doesn't mean it won't work for you. I have had Fibromyalgia for 26 years along with Chronic Fatigue and Cossacki B enterovirus and I have been on 600 mg. of Gabapentin since my diagnosis. I would love to get off the Gabapentin but I am afraid the Fibromyalgia will come back with a vengeance. I also tried Lyrica and one of the other med's for Fibromyalgia and they didn't help with my pain.

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2 replies
nancyeburford | @nancyeburford | 4 days ago
In reply to @luvrofthelord "I was on low dose Naltrexone and didn't find any relief from my symptoms. However that..." + (show)
@luvrofthelord

I was on low dose Naltrexone and didn't find any relief from my symptoms. However that doesn't mean it won't work for you. I have had Fibromyalgia for 26 years along with Chronic Fatigue and Cossacki B enterovirus and I have been on 600 mg. of Gabapentin since my diagnosis. I would love to get off the Gabapentin but I am afraid the Fibromyalgia will come back with a vengeance. I also tried Lyrica and one of the other med's for Fibromyalgia and they didn't help with my pain.

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Just wondering when you stopped it any withdrawal symptoms. I have tried other drugs and had to wean and then had some withdrawals ?

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1 reply
ripley | @ripley | 4 days ago
In reply to @luvrofthelord "I was on low dose Naltrexone and didn't find any relief from my symptoms. However that..." + (show)
@luvrofthelord

I was on low dose Naltrexone and didn't find any relief from my symptoms. However that doesn't mean it won't work for you. I have had Fibromyalgia for 26 years along with Chronic Fatigue and Cossacki B enterovirus and I have been on 600 mg. of Gabapentin since my diagnosis. I would love to get off the Gabapentin but I am afraid the Fibromyalgia will come back with a vengeance. I also tried Lyrica and one of the other med's for Fibromyalgia and they didn't help with my pain.

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I removed my comment to post it in reply to another person.

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ripley | @ripley | 4 days ago
In reply to @nancyeburford "Well not really sure this is my diagnosis as everything they have tested me for is..." + (show)
@nancyeburford

Well not really sure this is my diagnosis as everything they have tested me for is negative. They want to put me on low dose naltrexone. Anyone on this ?

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I was diagnosed with Fibromyalgia three years ago. I am trying low dose Naltrexone. You start on a low dose of .5mg and work your way up to 3-4mg. I tried it twice before but discontinued it after a few weeks each time because I thought it was making my insomnia worse.

I am giving it a third try and this time it's working better. It might be because I'm not in a flare right now. Right now I'm at 1.5mg a day. I am sleeping better too but don't know if it's because of the LDN or not.

It's certainly worth a try. As far as I know it doesn't have to be tapered if you want to stop taking it. The only downside is that it's not covered by insurance and you have to get it from a compounding pharmacy since it's not available in low doses at a regular pharmacy. My pharmacy charged me $60 for 75 pills at the .5mg dose.

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