Helpful suggestions as we head into BMT?
We are headed to Rochester tomorrow to begin an of Autonomous Stem Cell transplant. My wife has lived with Myeloma for about a year now, and gone down a long road to confirmed diagnosis, surgery, radiation, and chemo — but this is a new step. As a caregiver I am asking for any helpful suggestions from others who have been down this road.
"Precious Lord, take my hand,
Lead me on, help me stand…"
We have had wonderful support from local medical staff, the Mayo clinic team, family, friends, and many prayer warriors. As we head to the Gift of Life house we are very hopeful and positive.
"…I am tired, I am weak, I am worn…"
Five months of pain, uncertainty and many tests led to a confirmed myeloma diagnosis at Mayo, where we should have started. Surgery and radiation followed, not once, but twice. Then came seven rounds of chemo, many more tests, and the usual visits to the ER and doctors. God brought us through it all, but we are tired, and what looks to be the biggest hurdle is just ahead. How do we find the energy?
"…Thro' the storm, thro' the night,
Lead me on to the light…"
Yes, we have talked to enough people to know that better days lie ahead if we can just survive this procedure. Is it wrong to fear the storm?
"…Take my hand, precious Lord,
Lead me home."
We are thankful to have heard of the Gift of Life transplant house, and look forward to a homey environment for the weeks of the transplant and initial recovery. But it isn't home, and we will be far from those friends and family who have supported us through this process. How can we keep friends and family close, and that feeling of home when we are in isolation far away? Yes, we are always at home in Christ, and our faith is still strong, but sometimes we need people we can touch and hold.