Helpful Guide Book for Caretakers of ALZ and other dementia people
I went to a caretakers meeting thinking it was with other spouses in my boat. Instead, it was a meeting of paid caretakers who go out to homes to give care. I was invited to stay anyway and came away with a book title to share. The 36 Hour Day; A family guide to caring for people who have Alzheimer Disease and other Dementias written by Nancy L. Mace and Peter V. Rabins; a Johns Hopkins Press Health Book. I just picked the book up from the library, but clearly, I need to buy my own copy for reference. Just a simple explanation of the best environment, cluttered or bare, for a loved one and why; hearing aids aren't always helpful because the additional sound may be more confusing than helpful; the need for the person to have money with them no matter how minimal. My husband counts the $32 in his wallet every night to make sure no one stole it. This book is written for the layperson. Not a medical tome. It is understandable..to the point..and really helps to clarify my husband's behavior with helpful hints of how to handle situations. I just started the book, but already I have felt the light bulb go off..Bingo..yes, that is what I'm dealing with. I'm not alone and here is a suggestion of how to handle it.
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
@billiekip Thank you for the wonderful resource! I’ll print it here in larger letters so everyone will notice.
THE 36 HOUR DAY: A Family Guide Who have Alzheimer’s Disease and Other Dementias
by Nancy Mace and Peter Rabin
( I tried to post it in larger, darker letters but. I couldn’t do. It. Oh well.
@billiekip Do you think the caregivers group would allow you to return?
Yes, I could go back if I paid a monthly fee. The caretakers belong to the group and have lessons as well as contacts for jobs. It really wasn't appropriate for me as a spouse, however, I learned how to contact the group for help when it becomes necessary. I also gleaned the name of the book which is very helpful. I always feel that no time is wasted even when you make a mistake.
Thank you for sharing this. I told my husband the other day that when you're pregnant with your first child there are books like "What to Expect When You're Expecting." There are classes for new mothers that provide actionable steps on the "mechanics" of taking care of an infant. When your loved one (in my case my father) is diagnosed with dementia, the doctor asks "do you have any questions." "Um, yes. How much time do you have?" I wonder why doctors don't at least recommend titles like this. It doesn't look like my library has it. I'm sure I can find it on Amazon. Thanks again!
Amazon does have it. Make sure you get the 7th edition.
That is the latest one. As a hint from the book, I just gave my husband a shoe box that is our "junk drawer." He enjoyed sorting and fiddling with it.
My sister recommended this book years ago when our father was diagnosed with dementia. I didn't read it then but am currently reading it now that I'm caring for my husband. It has been extremely helpful. I thought I understood what was happening with him but now realize I sometimes forget that his behavior is not in his control. I'm remembering to be more patient when he takes a long time to respond to me. Also learning some techniques for dealing with unusual behaviors. Only halfway through but it's a great resource.
I ordered it yesterday (7th edition - thanks for the tip). I'm looking forward to reading it.
I have downloaded Constant Therapy for my husband to help his Aphasia and Dementia. He hated it and was terribly frustrated each time I convinced him to spend 15 minutes on it., with my continuous help. Today, I realized it was not the content nor his hearing that made it so very hard. The speech was much too fast for his ability to comprehend. We learned how to slow the instructions to the slowest possible and he suddenly got 100% correct! Life with dementia is like searching in a treasure chest to determine what method of operation works...so hard.
Hello I am new. My sister has dementia and I am caring for her alone. This past Thursday while driving ghetto dialysis she attacked me. She she I disrespected her. The weekend before she attacked the care worker that come over so I can work. I had tocall the police for fear of hitting someones car and hurting the both of us. I dont know what todo. I am missing her on one hand and on the other hand I am fearing her. Someone please help me.
@hlc406pw1
Welcome to mayo Connect, you are in a frustrating situation of being a caregiver but you also need to take care of yourself and stay safe.
Does your sister have a social worker who can help you find resources, include placement in a memory care facility.
Have you talked to her provider of the situation?
I'm going to look into this. So many good ideas here! How long have you been using it? Have you noticed any improvement?