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tishae

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Posted by @tishae in Diabetes/Endocrine System, Jul 18, 2011

Iam a care taker of a husband who has acute liver failure. We are dealing with tons of mental and emotional health and Chemical dependacy issues

Tags: mental health, mens health, transplants

Posted by Anonymous-b4a1e3a7, Aug 6, 2011

Trish I am the exact same boat. Especially for the Chemical dependancy issues. And oddly enough you have posted this on my 51st birthday. We have days that it is just almost impossible to deal with. Mine isn't quite into failure but is showing serious signs of it quickly impending. He was sent to an Onocologist/Hemotologist this past week due to the results of his last blood work. It was outrageous and like nothing I have ever seen. Low white counts and he had a horrible tooth abcess that day, Low red counts, 17K platelets, and his PT INR above 12 for the first time. Also something with his gobulin is really out of whack. He has done two complete and one partial round of INF & Ribavirin for his Hep C and relapsed after clearing the viris both times he did the complete 26 week program. His docs will NO longer offer any treatement for the Hep C. So I guess it is bascally a waiting game from here.

I pray to God everyday for the strength to deal with it as my health isn't all that great. I have had to take an early medical/disability retirement four years ago and many of my issues are left untreated due to his issues taking priority. I am in physical pain every day and night. Although I have some medicine to help with relief from the pain I dare not take the full dose for fear of him needing me and my being incapacited from the medication.

As much as anything is his refussal to do as his doctors have told him he MUST do. He does as he darn well pleases and it galls me to no end. Then expects that the minute he gets into trouble for me and all his doctors to drop everything and immediately react to his needs. He has little to NO consideration for me or anyone else and at times behaves like a two year old at best.

Trish just know you are NOT alone in your plight. I would love to maintain contact with you and see what idea we might come up with for coping mechinisims as I am just about to the end of my rope.

karenb

Posted by @karenb, Sep 20, 2011

Trisha, I had end stage for years, tried treatment, finally had a transplant. It's too bad your spouse is not cooperating.

tishae

Posted by @tishae, Sep 21, 2011

I know I wish I could help him

tishae

Posted by @tishae, Sep 21, 2011

unfortunately my rope ran out. we are separated and he is being held under the threat of being committed. I just want him to get help, he is on his way to killing himself with the drugs and the mental health stuff. please feel free to contact me and maybe we can help each other.

savanti

Posted by @savanti, Sep 20, 2011

Hi, where to begin with this, due to a traumatic experience at age six, I have the ability to see things much like an autistic savant, it started after the near drowning. When I'm face with a problem, I don't think about it, an image appears helping me to understand what to do.
When I was ten years old, I layed down in my bed to go to sleep and on the ceiling were smiling faces like dead people happy to see me, as if I could do something for them.
When I was fifiteen a dream during my sleep told me to warn Joey Kirby to be careful for he was going to die. One month later, he was shot through the heart by his best friend. Joes wasn't being careful and walked right up to the door where Duray had a gun resting on the door of the truck. Joey walked up leaned against the truck the gun went off killing him.
My brother called me twelve years ago and during the conversation he told /james retired from the county, I knew nothing about /james's health, off the top of my head I told my brother, he will die within a couple of years. I don't know what makes it pop into my head like the images do. James died within one year after retiring.
So, what I am trying to tell you, there is life after death, your husband should be exploring his five senses as if he were a child again.
I don't believe in ghost or spirits, but, how do you explain what is happening with what I am able to do. He needs a peace of mind to know all is alright and this life was great for the time he was here.
When I was six years old, a near drowning almost took my life, while the pool manager was giving me CPR, my sister ran home to get my mother, my other arrived at the pool to hear somebody say, "you need to stop the boy isn't going to make it." He said. "I have to try one more time." It all could have ended that day at the pool had the pool manager stopped trying to save me. If, I should die tomorrow, I welcome death with open arms for I got to live a little longer.
My dad died with me never giving him a hug, //i told him one time I love you and all he did was stare at me. Yet, from out of the blue when /i really need help making a decision, and I kneel to pray, from out of the blue an image of him appears in my head like he is praying with him. the strange part is I never think about him except when I pray.
The drowning really hurt my dad and throughout my childhood he would give me things like challenges to help me get better. It was like he knew I had this ability to figure things out by using my imagination.
My little brother died from having this condition. I feel for you. Life is an experience we often lose sight of by feeling it wasn't enough. The thing is there isn't a plan made out to live a certain kind of life. I wasn't living a life until my feelings started to work and for the first time I could feel my wife's hand when I held it, I finally feel alive through my feelings with what is going on around me.
I have finally got to experience what other people experience who fall in love, have children and can feel the smell after a rain. As a kid I could only enjoy the smell, now there is a feeling to go with it.
His life isn't over, nature gives us so much to enjoy. Learn the ways of the Buddist Monks. Explore the five senses.

karenb

Posted by @karenb, Sep 20, 2011

I was diagnosed with end stage liver disease in 1998. I took vitamins and exercised, my liver would occasionally get very bad and I would have a period of mental confusion. Last year it really got worse and I had a transplant at Mayo, My Heath improved and I looked better than I had in years.

tishae

Posted by @tishae, Sep 21, 2011

That is wonderful and I know that you will live long and happy. My husband is 6 yrs post transplant but I do not know what happened to him about 4yrs ago. He relapsed and started smoking cigarettes and using marijuana. he has now graduated to prescription pain killers and herion. we have separted and a divorce in intament. Please learn as much as you can about your new chance a life and treasure your gift

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