Help: Sudden Sensorineural Hearing Loss (SSHL) - very scary

Posted by ed140 @ed140, Sep 6, 2019

I just got diagnosed with hearing loss by My ENT. Woke up and hearing was gone in my left ear. I’m being treated with oral and ear injected steriods. Becoming anxious and panicked about recovery. Hoping someone can offer advice or someone who has story of recovery success. I went to an urgent care the day this happened ,the doctor gave me oral steriods and I followed up the next day with an ent. At this moment I feel the sense of sound but its not clear also hear rapid tones , pops and clicks. Previously I heard nothing at all . hope this means the trearment is working.

It has been five years since I lost my hearing in my left ear. It seemed sudden and it was complete. I am not sure Mayo or Cleveland Clinic could have helped but if you do go do it ASAP before your loss is total.
For a long time, and now occasionally, I heard noises in that ear. It seemed like my brain was playing pinball trying to hear. I have come to except it is permanent. It is frustrating. I think it is impossible for anyone without this condition to understand even those who are very hard of hearing. Good luck.

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@mtnyankee

It has been five years since I lost my hearing in my left ear. It seemed sudden and it was complete. I am not sure Mayo or Cleveland Clinic could have helped but if you do go do it ASAP before your loss is total.
For a long time, and now occasionally, I heard noises in that ear. It seemed like my brain was playing pinball trying to hear. I have come to except it is permanent. It is frustrating. I think it is impossible for anyone without this condition to understand even those who are very hard of hearing. Good luck.

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There are many clinical studies being done on this but whether or not they will help the ones of us who have lived with this for some time, I don't know but would hope. I just wanted to post something on this board to see if anyone has a success story with Mayo or Cleveland Clinic. It would be a long trip for me to go to either hospital; I would just like to know if there is a possibility. Maybe there will be a treatment for us someday. Good luck to you, as well.

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@bgbg

There are many clinical studies being done on this but whether or not they will help the ones of us who have lived with this for some time, I don't know but would hope. I just wanted to post something on this board to see if anyone has a success story with Mayo or Cleveland Clinic. It would be a long trip for me to go to either hospital; I would just like to know if there is a possibility. Maybe there will be a treatment for us someday. Good luck to you, as well.

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@bgbg, you asked about stories about success stories regarding sudden sensorineural hearing loss. Here are 2 stories from Mayo Clinic

– Living and Loving Out Loud https://sharing.mayoclinic.org/2019/01/31/living-and-loving-out-loud/
– A Noise-Filled Hearing Loss Journey https://sharing.mayoclinic.org/2018/06/20/a-noise-filled-hearing-loss-journey/

I look forward to hearing more stories from members in this group.

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What I learned is there are over 2 dozen causes of SSHL and you may be affected by one of the uncommon ones. Get another doctor's opinion. And another's. Choose ear specialists and don't quit until you find the cause.

It could be something as simple as an allergic reaction to dust mites.

Bob

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@bobbyboomer

What I learned is there are over 2 dozen causes of SSHL and you may be affected by one of the uncommon ones. Get another doctor's opinion. And another's. Choose ear specialists and don't quit until you find the cause.

It could be something as simple as an allergic reaction to dust mites.

Bob

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Thank you. You know, I read somewhere in a government publication (and it was related to this SHL) that the average person will spend approximately $500,000 before getting the right diagnosis. Guess we have to keep trying.
A fellow Boomer

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