Help on treatment for Erythema Multiforme Major

Posted by babyur4me @babyur4me, Sep 28, 2018

Can someone offer any help on this disease

Hi I had erythema multiforme , and I was admitted to the hospital for a week. But the actual disease lasted for about 3 weeks . I was treated with multiple pain medications, viscous lidocaine , “ magic” mouth wash, anti inflammatory meds, I also got an iv with nutrients and fluids because I couldn’t eat. Multiple times a day they also treated me with gauze and a prescription type water canister to keep my lips clean and on top of the lidocaine they put Vaseline. And for the rest of my body they gave me a lidocaine ointment . I really hope you’re able to get help I know how excruciating and scary this disease can be .

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@kmichellewm

Hi I had erythema multiforme , and I was admitted to the hospital for a week. But the actual disease lasted for about 3 weeks . I was treated with multiple pain medications, viscous lidocaine , “ magic” mouth wash, anti inflammatory meds, I also got an iv with nutrients and fluids because I couldn’t eat. Multiple times a day they also treated me with gauze and a prescription type water canister to keep my lips clean and on top of the lidocaine they put Vaseline. And for the rest of my body they gave me a lidocaine ointment . I really hope you’re able to get help I know how excruciating and scary this disease can be .

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Hello @kmichellewm, welcome to Connect. Thank you for sharing your experience with erythema multiforme. It really helps others know that they are not alone and helps them know what others have done for treatment.

Do you have any other suggestions that helped you get through the day?

John

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@kmichellewm

Hi I had erythema multiforme , and I was admitted to the hospital for a week. But the actual disease lasted for about 3 weeks . I was treated with multiple pain medications, viscous lidocaine , “ magic” mouth wash, anti inflammatory meds, I also got an iv with nutrients and fluids because I couldn’t eat. Multiple times a day they also treated me with gauze and a prescription type water canister to keep my lips clean and on top of the lidocaine they put Vaseline. And for the rest of my body they gave me a lidocaine ointment . I really hope you’re able to get help I know how excruciating and scary this disease can be .

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Thanks, these are the same things that my grandson are given, But you said you had this did it go away

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@babyur4me

Thanks, these are the same things that my grandson are given, But you said you had this did it go away

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@babyur4me Yes it went away after about a month . I’ve had a couple very small episodes since but it did go away . The main thing for me was keeping everything sterile and moisturized . And trying to get as much sleep as possible when I was given pain medicine.

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@johnbishop

Hello @kmichellewm, welcome to Connect. Thank you for sharing your experience with erythema multiforme. It really helps others know that they are not alone and helps them know what others have done for treatment.

Do you have any other suggestions that helped you get through the day?

John

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@johnbishop thank you . Yes it was a very traumatic time for me so anything I can do to help others .

The main thing that helped me get through it was keeping my pain under control to help with the stress of the constant pain, sterile water, lidocaine and as much Vaseline as possible on top to keep everything moisturized that helped a lot

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@babyur4me sent me a private messager and asked me to post a message for her…
You can send this to everyone. I am Darren's grandmother we went to UNIV of MD yesterday and again were disappointed. Since i am having surgery on the 21st, I will have to put trip to Mayo on hold.

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@babyur4me

I have lost connection. I sent John a message that Mayo Clinic doesn’t take medcaid

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@babyur4me — here is the discussion you are looking for. I did receive your private message.

> Groups > Autoimmune Diseases > Help on treatment for Erythema Multiforme Major
https://connect.mayoclinic.org/discussion/help-on-treatment-for-erythema-multiforme-major/

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I have lost connection. I sent John a message that Mayo Clinic doesn’t take medcaid

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@babyur4me

I have lost connection. I sent John a message that Mayo Clinic doesn’t take medcaid

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Hi @babyur4me, I have moved your message to the original discussion, so everything is in the same place. Your notifications are still turned on, so you should receive an email notification when a new post is made. If you have any issues connecting, please send me a message using this form https://connect.mayoclinic.org/contact-a-community-moderator/

With respect to Mayo Clinic and medicaid and medicare, please note that Mayo Clinic primary care does accept Medicare, medicaid, medica, MMSI and Mayo Health Solution insurance. Out-of-state Medicaid is not accepted. If a patient lives outside of the boundaries that we serve (i.e., AZ, FL and MN, the states where there is a Mayo Clinic campus), they will be advised to seek healthcare closer to their home. See more info here https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicaid

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@kmichellewm

Hi I had erythema multiforme , and I was admitted to the hospital for a week. But the actual disease lasted for about 3 weeks . I was treated with multiple pain medications, viscous lidocaine , “ magic” mouth wash, anti inflammatory meds, I also got an iv with nutrients and fluids because I couldn’t eat. Multiple times a day they also treated me with gauze and a prescription type water canister to keep my lips clean and on top of the lidocaine they put Vaseline. And for the rest of my body they gave me a lidocaine ointment . I really hope you’re able to get help I know how excruciating and scary this disease can be .

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thanks for your input. this disease is now affecting his whole body eyes, arms legs back he does go to the ER for hydrating. The attacks are so often now we can't keep up with the out breaks.

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