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I have RSDS/CRPS (reflex sympathetic dystrophy syndrome/chronic regional pain syndrome)

Posted by @paradiserealm in Brain & Nervous System, Jan 19, 2015

Hello everyone! I'm Erma, I live in Utah and I have RSDS/CRPS (reflex sympathetic dystrophy syndrome/chronic regional pain syndrome for those of you that don't recognize the acronym). I acquired the RSD after my right arm was nearly amputated when I flipped through an old, patio, plate glass door. The glass severed my artery, nerve trunk (Brachial Plexus) and tendon. I'm fortunate to be alive, however I am in constant pain!! I am looking for anything that will help, even amputation (last resort). It's been nearly eleven years, I have my third child on the way and I can't handle missing out on time with them. Anyone have any advise or heard of anything that may benefit me? Thanks

Tags: RSD, CRPS, nerve, pain, Chronic, arm, brachial Plexus, amputate, Amputation


Posted by @mrsdeecee, Jan 19, 2015

My sister has RSD from a botched up tendonitis operation had tk dk with the sheath over the tendon being damAged, have you tried nerve blocks? She has it done in the Dr office, you will need a ride they lighly sedate ber and then they shot the nerve thats causing you pain and numb it ,she gors for a series of shots in 3 maybe 4 timrs a year she gets great releif google nerve blocks for RSD,I think not sure shoot her with tramadol aka ultram, good luck she has been getting nerve blocks for years an anesthesiologist. Do it you might wind up in hosp out paient will work Deena


Posted by @paradiserealm, Feb 20, 2015

Thank you for your sweet response! I have only medicade and they do not
cover nerve blocks. Hoping to try a stem cell treatment trial out to
regenerate the tissue and get rid of some of the scar tissue that's causing
me so much pain. I seen a woman get the use of her wrist back from doing
it. Have you heard much about it?

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