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hurtle12

Diagnosed with NASH. Listed for liver transplant

Posted by @hurtle12 in Transplants, Jan 7, 2015

Hello all.
My name is Howard and I have been Diagnosed with NASH. I'm not a drinker and my Dr. said it probably started out as Fatty Liver disease. I've been listed for two year's for liver transplant due to cirrhosis of the Liver. When it first started out I was sick all the time and in the hospital 4 time's. In November of 2013 my MELD score went up to 23. But since then I've made lifestyle changes and my meld is down to a 14. I still fight with the chronic fatige but feel pretty good all thing's considered. Has anyone else out there experciened this also ?. I almost feel like it's the calm before the storm.

Roddy Smith likes this
rosemarya

Posted by @rosemarya, Jan 11, 2015

Hi Howard, I would suggest that you go to the 'Disease and Conditions' section on the Mayo Clinic site and read about the symptoms associated with liver disease. Fatigue is one of the bothersome symptoms. I experienced fatigue when I was sick with liver disease prior to my liver/kidney transplant. My fatigue seemed to come and go at varying degrees. But as my disease developed to cirrhosis the fatigue became a constant. It is not an easy think to live with. If you can do it, take the time to allow yourself time to rest when you can, and cut down on unnecessary tasks and stress, if you can. As far as the calm before the storm, as you say, your best bet is to take care of yourself as best you can. That way whenever that storm develops, you will be ready for it.
Hoping for the best, Rosemary.

Neicey69 likes this
hurtle12

Posted by @hurtle12, Jan 16, 2015

Thank's Rosemary. I will definatly ck it out. Glad you recieved your transplant and hopefully your doing well

rosemarya

Posted by @rosemarya, Jan 16, 2015

Howard, On the right column of this web page, there is an announcement about upcoming Webinar Topics. (Fatty Liver Disease). Have you thought about registering for and tuning in to this? It should be informative about Fatty Liver disease and transplant. I think there is even opportunity for you to post question for discussion.

dianne1

Posted by @dianne1, May 5, 2015

I was diagnosed with NASH around 2003. I was very sic all the time felt bad pain. I really studied it on line and joined a support group on line which I have lost contact with. I made improvements and feel much better. On the support group I was with a lady stated she had been put on a transplant list and had improved drastically and was taken off. My primary care doctor told me at the time I was looking at a transplant but that was as far as it went. I have improved to the point all I do is go once a year for an ultrasound, Doppler, blood test and they say u r the same come back next year. Physically I know I am not the same. You have to research find out whats best everyone needs to be on milk thistle. I find the low carb diet helps me, although I tweak it a little and try to eat more veggies a little meat and not large quantities of fat just normal. We have wonderful docs but we have to educate ourself and there r things out there in natural medicine docs don't know. I appreciate my health care professionals but give all the glory to the Lord, he made the health care professionals, ha ha, praying for your improved health and a long happy life.

Neicey69 likes this
hurtle12

Posted by @hurtle12, May 5, 2015

Hi Dianne
Thank's for your response. I can relate to what your going thru with the pain and fatige and just not feeling well anymore.
I saw were you had said you believe that milk thistle has helped you with your nash. Is this something you take everyday ? I need to research it farther.
Like you said ,medical technology has come a long way but we all need to do everything that we can to help ourselve's.

Take care and I hope this find's you doing as best as possible. Thank's Howard

dianne1

Posted by @dianne1, May 5, 2015

Also I forgot to mention I think exercise is very important also. I have an enlarged cyst near my thyroid causing me issues now so I've been babying myself taking it easy but I am ready to get back to gardening, walking, running, take baby steps. I have allergies so I get up early in the morn when dews on the ground. One thing we can't do and I am preaching to myself is make excuses. Never give up always keep going, Don't worry about nothing Pray about everything.

hurtle12

Posted by @hurtle12, May 5, 2015

Thank's for your seconed reply.
That made my day with your quote .Don't worry about nothing and pray about everything.
I hope you don't mind if I use that again.
And I agree with you 100%, Exercise is a must. Evan if it's just a little

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