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Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
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Welcome to the group. Mayo Clinic Connect is a great place to learn what others are going through, what treatments are available and how they work. Also it is a wonderful place to find support and bond with others with the same condition. I was diagnosed with A-Fib about 20 years ago and after a few ups and downs, treatment changes and lastly the Watchman implant, I'm doing well. What are your struggles and are you under a doctor's care?
Tresjur
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3 ReactionsGlad to meet you. There are things docs do that can help counteract AFIBs, but not all work.
Do what you can to stay healthy, walk a bit, rest a bit, eat only what you need to feel ok, try to figure out what is stressing you. But the big thing is , you have come to the right place for support.
Any heart condition is a struggle, but with guidance you can learn to live with it and even have a good support network here.
My problem is PVCs, pre-ventrical contractions. I track them using a little ECG monitor my cardiologist advised me to get so I could see if they are worse or about the same following the ablation I had to try to terminate them. Mayo clinic has finally realized they are far more dangerous than AFIBs, but so little studies have been done.
Wellcome to the chat.
hi i have afib. and it has been a struggle
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1 ReactionHi my name is Catherine Lewis I am 38 years old, and on nov 2009 I was diagnosted with supper ventrical tachacarida, and braddy cardia. I am on medicine to keep my SVT under control now, but now the problem I am having is: my blood pressure keeps going extremely high on the top, and the bottom number is normal, and everytime my pressure goes up I get extreme chest pains that go into my neck, left jaw, and down my left arm, but the hospital tells me all the time that my EKG is totally normal.
Hi. I am 65 and was born with tetralogy of fallot which was repaired at age 5. I had my first VT episode at age 40 and have had an ICD since then. After years of relatively stable heart health I am now facing a ventricular ablation due to a recent increase in VT episodes and a switch to a dual chamber ICD. I am nervous and re-learning about all this.
You're very welcome.
Martin wow thanks for the information...not what I was lead to believe...I will be discussing all this soon with my doctor...being on blood thinners for me is creepy and I want off of them....thanks for the links. Very helpful.
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1 ReactionThat is amazing! I like your advice. Thanks.
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1 ReactionMary @mklapperich, when my anticoagulation went through the roof last summer, I looked for blood from my intestine and from my kidneys and bladder. Only a little blood showed up in my urine for a couple of days. By then, my anticoagulation factor from Warfarin was back in line and has stayed there every since. As long as I check my Warfarin level every month (and I don't find any leaks at home), I feel confident staying with Warfarin, as an old friend has done for the last 10 years.
My latest check on antidotes confirms that no antidote (reversal agent) has been approved yet for Eliquis (see https://www.drugs.com/pro/eliquis.html reviewed in July 2018). An antidote for Xarelto was FDA-approved in May 2018 and is expected to be on the market in 2019 (see https://www.drugwatch.com/xarelto/). Until then . . .
Martin
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1 Reactionmrk4445 @mklapperich
My cardiologist wanted me to get a pacemaker as my heart rate is very low at night after I go to sleep (drops momentarily to as low as 38 and then rebounds). My boss at work told me I'd have to retire after that due to the EMFs in the area are high as the shop where I work is a repair and overhaul shop for aircraft rotating electrical aircraft parts.
Finally after 3+ years my doc is ok with NOT trying to goad me into a pacemaker, as to quote him during a recent visit "you're probably the healthiest patient I'll see today." I recently got asked to a luncheon (really a fund raiser for funding Fellows at the cardiology department) and when asked the realistic picture of how this would help me with my particular situation when I can manage 15,000 steps in a day, the woman on the other end of the phone audibly gasped. She then responded with perhaps this would not be a good luncheon for you to attend.
My advise to all of us heart patients is to keep moving even if all you can to do today is 200 steps, try to get 225 tomorrow. Movement is the best thing for human bodies, sitting for long periods does the human body no good.
Aspirin and blood donations is, for me, the best regimen to follow for keeping my blood thinned out. Also, do not forget to drink adequate fluids, not just water, daily as getting dehydrated can damage your heart.
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