Hearing Loss: Come introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Tue, Feb 5 12:02pm

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

@toniann

I have been an active member of the Hearing Loss Association of America (HLAA) since I became profoundly deaf in 2008. I have served on both the HLAA national and NYC boards. I am currently working to educate and encourage medical staff and hospitals to provide the aids and services we need to communicate effectively with providers and to participate in our own health care. Also to urge those of us who are hoh/deaf to ask for the services we need.

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Welcome to Connect,Toni Iacolucci @toniann. I am a hearing person, and I live in a community where we have a very active deaf/hard of hearing population.
I have friends who are hoh/deaf, and friends who are interpreters. From what I have picked up through interactions, is that there is a real need for the work that you are doing to promote an education to the medical staff and hospitals about the need for effetive communication to the hoh/deaf patients and family members. Thank you for what you are doing.

I feel that many of the hearing population do not realize the importance of having an interpreter for public events. Where I live, there is usually a 'tag' to request interpreter, or "Interprter provided" message. However, that is not always true outside of this community.

A deaf gentleman at my church, taught me the the ASL (American Sign Language) sign for the word PEACE. As an organ transplant recipient, it helps me avoid handshake germs.

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@wassy2019

I would tell someone new to hearing loss to try and nurture patience and self compassion, if either/both are in short supply. The hearing loss journey is a marathon, not a sprint. There will be a lot of trial and error in countless ways, to enhance your listening experience. I would also be up front with people, whether it be family, work associates, medical personnel, or friends, about your hearing loss. I suffered through acoustically challenging work situations for several years, trying to fake it, fooling no one but myself.

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wassy2019 @wassy2019, Welcome to Connect.
My mother had a hearing loss in her left ear, she denied it most all of her life. I think that her denial was partly stubornness, and partly monetary concerns, and even the fear of a negative attitude towards people who could not hear when she was growing up.
Have you experienced any challenging attitudes directed towards you as a result of of sharing your own hearing loss?

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Yes, people (young people especially), often associate hearing impairment with not being intelligent. This is upsetting on many levels, especially in a work situation. As I speak up about my loss, I find it better to put it out upfront – I say to the person that I have hearing loss and need them to speak to me when facing me,… This generally works well and puts the burden of communication on the other. If they forget to face me, and I can't hear, I repeat my request, but at this point, the responsibility shifts so that I am not 100% responsible to hear everything regardless of the environment. Sometimes the other person is the one to feel "less than" for not communicating properly!

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@rosemarya

wassy2019 @wassy2019, Welcome to Connect.
My mother had a hearing loss in her left ear, she denied it most all of her life. I think that her denial was partly stubornness, and partly monetary concerns, and even the fear of a negative attitude towards people who could not hear when she was growing up.
Have you experienced any challenging attitudes directed towards you as a result of of sharing your own hearing loss?

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Everyone has been respectful.

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@salledell

Hi. This is Sylvia. I experienced hearing loss in my left ear in my 50’s. Shortly after, I developed Ménière’s disease and have very little hearing in that ear.
I wear hearing aids in both ears and am fine with face to face conversation, but have trouble distinguishing words in a large room like a gym or swimming pool. This makes it difficult to follow instructions in exercise classes. I’m thinking possibly cochlear implants might help. Does anyone have experience with a cochlear implant?

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I'm new here and use a cochlear implant and a hearing aid. To be eligible for a cochlear implant your hearing loss must be severe to profound. I'll be back when I can figure out how this forum works!

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@rosemarya

Welcome to Connect,Toni Iacolucci @toniann. I am a hearing person, and I live in a community where we have a very active deaf/hard of hearing population.
I have friends who are hoh/deaf, and friends who are interpreters. From what I have picked up through interactions, is that there is a real need for the work that you are doing to promote an education to the medical staff and hospitals about the need for effetive communication to the hoh/deaf patients and family members. Thank you for what you are doing.

I feel that many of the hearing population do not realize the importance of having an interpreter for public events. Where I live, there is usually a 'tag' to request interpreter, or "Interprter provided" message. However, that is not always true outside of this community.

A deaf gentleman at my church, taught me the the ASL (American Sign Language) sign for the word PEACE. As an organ transplant recipient, it helps me avoid handshake germs.

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ASL or sign language is the best communication. My husband and I use CC on TV all the time.

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@judymartin

I'm new here and use a cochlear implant and a hearing aid. To be eligible for a cochlear implant your hearing loss must be severe to profound. I'll be back when I can figure out how this forum works!

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Hi, @judymartin. Welcome to Connect.
I can understand your initial confusion with this forum. I am a volunteer mentor, and I am happy to help you (and anyone else) to figure it out. I am an 'oldie' to this site and I am here if you have any questions.

I would like to share the link to, "About Connect: Who, What, and Why" . I think it is a good starting point because it both intersting and informative. https://connect.mayoclinic.org/page/about-connect/
I just saw that there is a brand newsfeed by ColleenYoung, Connect Director. "Mayo Clinic Connect: Your Safety and Privacy"
And at the end of the article, you will see a link to "How to Get Started About Connect"

I look forward to hearing from you. And let me know if you have any questions or need help finding your way around.

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Welcome new members of the Hearing Loss group!
@llotteb @auntsuz1960 @genuinekim @sharieberts @briley @aecarney @aecarney @wasfitz19 @pjg1 @tallguy39 @pamtis @cjspizz @tls978 @davekoh

We look forward to getting to know you. Why not start by introducing yourself? What brings you to the community? What is your experience with hearing loss?

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@colleenyoung

Welcome new members of the Hearing Loss group!
@llotteb @auntsuz1960 @genuinekim @sharieberts @briley @aecarney @aecarney @wasfitz19 @pjg1 @tallguy39 @pamtis @cjspizz @tls978 @davekoh

We look forward to getting to know you. Why not start by introducing yourself? What brings you to the community? What is your experience with hearing loss?

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I am a 70-year old man with moderate hearing loss in both ears. Sensorineural loss. Wear two digital hearing aids that are one year old (Phonak). I am practically "deaf" when I don't wear them. Therefore, that and a streamer are what keep me connected to the world. I have trouble making out conversations around a banquet table, and at parties in general. I depend on CC on TV to help me with the language. I didn't wear hearing aids until late in life because of denial and stigma. I also didn't get aural rehabilitation like sign language, etc. Now I find ASL and lip-reading very difficult and wearisome. However, I am attending two hard of hearing support groups to make friends and learn coping skills.

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Welcome, @chunwa. There are few people I'd like to introduce you to. @babarker and @vickid117 both use Phonak aids. @judymartin and @wassy2019 also recently joined the group here. @lunameow14 is an avid user of ASL; she may have some words of encouragement or tips for you.

Chunwa, I don't think you're alone in not getting hearing aids due to stigma and denial. Attending in-person support groups is a great place to make friends and learn coping skills. Luckily this online forum gives support for those people who may not have a local in-person group. What top tip have you learned from the support groups that you could share here?

Liked by chunwa

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@chunwa

I am a 70-year old man with moderate hearing loss in both ears. Sensorineural loss. Wear two digital hearing aids that are one year old (Phonak). I am practically "deaf" when I don't wear them. Therefore, that and a streamer are what keep me connected to the world. I have trouble making out conversations around a banquet table, and at parties in general. I depend on CC on TV to help me with the language. I didn't wear hearing aids until late in life because of denial and stigma. I also didn't get aural rehabilitation like sign language, etc. Now I find ASL and lip-reading very difficult and wearisome. However, I am attending two hard of hearing support groups to make friends and learn coping skills.

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@chunwa I also depend on CC when watching TV. How did you find the support groups that you mention? I would be interested in finding that type of group.
Thanks. JK

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@rosemarya

Hi, @judymartin. Welcome to Connect.
I can understand your initial confusion with this forum. I am a volunteer mentor, and I am happy to help you (and anyone else) to figure it out. I am an 'oldie' to this site and I am here if you have any questions.

I would like to share the link to, "About Connect: Who, What, and Why" . I think it is a good starting point because it both intersting and informative. https://connect.mayoclinic.org/page/about-connect/
I just saw that there is a brand newsfeed by ColleenYoung, Connect Director. "Mayo Clinic Connect: Your Safety and Privacy"
And at the end of the article, you will see a link to "How to Get Started About Connect"

I look forward to hearing from you. And let me know if you have any questions or need help finding your way around.

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@rosemarya Thank you. I'll check it out tomorrow and let you know.

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@judymartin

@rosemarya Thank you. I'll check it out tomorrow and let you know.

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There are many types of support groups. I personally, belong to the Hearing Loss Association of America, and specifically to the Jacksonville Florida Chapter. There are more than 150 chapters in the country. I'm not permitted to give the link, so you will have to research.

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@judymartin

There are many types of support groups. I personally, belong to the Hearing Loss Association of America, and specifically to the Jacksonville Florida Chapter. There are more than 150 chapters in the country. I'm not permitted to give the link, so you will have to research.

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@judymartin Thanks. That one was recommended to me by a woman who is an active volunteer and benefactor of CHC (Center for Hearing and Communications) in NYC, so I looked it up. Unfortunately the closest chapter is more than hour away and their monthly meetings are at night.
JK

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@judymartin

There are many types of support groups. I personally, belong to the Hearing Loss Association of America, and specifically to the Jacksonville Florida Chapter. There are more than 150 chapters in the country. I'm not permitted to give the link, so you will have to research.

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Hi @judymartin, you will be able to post links in a few days. New members are not permitted to post links so that we can protect the community from spammers. You were clearly not trying to post spam, so please allow me to post the link for you.

Hearing Loss Association of America http://www.hearingloss.org

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