Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect – a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon on the group landing page.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Pat, we are leaving for up north. Thanks for welcoming me here! I miss our chats but I’m babysitting today and tomorrow and leave Sunday. Call any evening you have a few minutes. I hate nothing you as you work long hours!
Liked by Colleen Young, Connect Director
I’m ok, thanks. I don’t have HCM (I haven’t had genetic testing done yet) but my 84 y/o father does, he underwent septal myectomy and triple bypass surgeries simultaneously 5 years ago on an emergency basis. My family had never heard about HCM at the time, and that made the entire situation very scary. I wish I knew about this forum, the knowledge and support here are wonderful. My father is doing well now and is still very active. I
follow this group so I can keep abreast of the latest info. From my experience and from what I’ve seen here, if you need to have surgery I would recommend a high volume center like Mayo. All the best to you!
Liked by Colleen Young, Connect Director, Cynaburst, Alumna Mentor, Kanaaz Pereira, Connect Moderator
Was on Metoprolol,can’t take it I’m on the verapamil 120 now. Was 180mg. All that’s left norpace. Still having extreme fatigue. The heart doctor tomorrow!
Liked by Kanaaz Pereira, Connect Moderator, fitchizumi
Sorry, so much going on in my life I’m taking care of 2 year old grandson. I have midventriculat obstruction with apical aneurysm.my gradient has improved since 480 mg of Verapamil but I’m exhausted and ache in all joints. I’m on blood thinner too. Probably need surgery. Will find out soon.
Wishing you well, @fitchizumi. Please keep us updated after your appointment with the cardiologist tomorrow.
Ronald, I am always very fatigued, Plus my head never feels clear. I’m allergic to lots of medications . Metoprolol bothered me.Take Xarelto 20mg & verapamil 120 for the heart. I take a lots of medications for chronic health problems. don’t know what medicine bothers me. Could be a combination of everything I take.I could’nt handle a lot of blood pressure medicines pre HCM, in the past.
@terryviazanko
I’m thinking I’ll have surgery soon. Tired of being tired. Wishing you the best!!
Liked by Sensation, janicepike