HCM-ers: Introduce yourself or just say hi

I'm glad to hear you're doing well. I believe my surgery is at St. Mary's on Oct. 17th.

sylvia

I need info on PSP

Dr Schaff did my surgery and everything went really well. My only concern (and it has nothing to do with HIM) is the soft tissue swelling at the top of the incision. It's to my throat and I still have a bit of a problem swallowing and "tugging" at my neck. Even my doctor here at home says it will go down....I THINK it is starting to, If you're fortunate enough to have your surgery at St Mary's, the Cardiac ICU nurses are THE BEST. ALSO, if you are going to have cardiac rehab, find out how long you'll have to wait. Mayo suggested within 2 weeks and here they could not get me in until mid Aug. By then I won't even need it. It's been just 4 weeks and yesterday I walked over 3 miles already.

Dr. Schaff did my surgery six years ago this past January. I waited only a couple of weeks, but it was an emergency situation. He is truly a great surgeon and his fellows were first rate doctors as well.

My husband waited 3 months and Dr Schaff was his surgeon last October

Thanks. Who did your surgery and how was your experience?

Hi Kurt, I just had a myectomy a month ago and I think that is about the time frame I waited.

Hello. My name is Kurt, and I have recently been diagnosed with HOCM. I live in Birmingham, AL and have just been given an appointment to see Dr. Ommen and then myectomy with Dr. Schaff in October at the Rochester clinic. Seems like a long time to wait for surgery, as my symptoms have been progressively worsening over the past several weeks. Is a 3 month wait time typical? Thanks...

Thanks. Will do.