HCM-ers: Introduce yourself or just say hi

Hi Debra,
I had symptoms going back ti at least 2015 but was not fully diagnosed until 2018. My Dr at Mayo Jacksonville did a cardiac cath on me in March to see if I was a candidate for septal ablation and I was not. The next step is myectomy due to my very high gradient and muscle thickness.

WELCOME! Welcome to Mayo Connect @summerrobin. I'm so glad you found us. You definitely came to the right place to find out from other like-minded folks with your same condition. I'm so sorry to hear that your atrial fibrillation is not controlled. That has to be stressful. I hope this gets the attention it needs from your cardiologist. It's not good to stay in atrial fibrillation continuously. Has your cardiologist kept an eye on you with regular follow-up? Besides having atrial fibrillation and now HCM (hypertrophic cardiomyopathy) is your health pretty good? Are you able to get out and walk and exercise?

Summerrobin. I’m 73 year old female the went into atrial fibrillation 2 years ago. After several tests I have been diagnosed with Hypertrophic cardiomyopathy. The afib has not been stabilized and I’m not a candidate for an ablation. I am now in afib continually with a set of new drugs. I'm always optimistic when a I start new med. I'm hear to read of other like minded and health minded people. 😊

Hello Claudia @cwarren29860 , and a big WELCOME to Mayo Connect! I am so glad you found this site...you will learn a lot from other members with your same condition...like me 🙂
I had a septal myectomy and papillectomy at the Mayo in Rochester three years ago. If you want, feel free to ask me anything...anything at all. If I can help alleviate some of the fear the goes along with being diagnosed with HOCM and finding out you need open heart surgery I would be happy to do so. Take a look around here...there is a lot of information. When did you find out you had HOCM? How long did you have symptoms before you were diagnosed?

Hi, Im Claudia from SC and currently being treated for HOCM in the Jacksonville facility. I have a surgery consult scheduled for 11/21 to talk about moving forward with a septal myectomy.

Hi I'm Sheri 66 been on it for 5 days. No side effects so far other than insomnia. If I were to get side effects would I get them by now ???

I just started day 2 today. Good luck on your journey

I started this week. I spoke with cardiology team. It was meds I take and possible side effects thank you

@nanamc1957, WELCOME!! Welcome to Mayo Connect and the Hypertrophic Cardiomyopathy Group. I'm so glad you are here, because this is where you will find a warm, welcoming community of folks just like you. I think we are all a little freaked out when we first learn what we have, and learning to live with it and it's symptoms is definitely a challenge for some. There are some amazing Camzyos warriors on here, like @kelliw and @jaymaysea. Both these special people have recently begun their journey on Camzyos and have shared their experiences with all of us. They both have different experiences, but still they share what they are going through to help others. While we wait for a Camzyos member to jump in here, when did you start Camzyos? What are the side effects that scare you? Did your cardiologist go over them with you? Because as we know there are risks for darn near everything we take, even an aspirin or Advil has side effects.

New here and scared was Dx 2 months ago. Starting camzyos but side effects are scaring me to death. Anyone taking that can give advice please I'm 66