Anyone have Athsma & Bronchiectasis?

Posted by lreid51 @lreid51, 3 days ago

Hello everyone — I’m new here and glad to join this community. I have asthma and recently learned I also have bronchiectasis, and I’m trying to understand how the two conditions interact in real life.
Has anyone here been diagnosed with both asthma and bronchiectasis? If so, could you share:
• What treatments or routines helped the most (inhalers, airway clearance techniques, physiotherapy, mucolytic, long term or inhaled antibiotics, macrolides, etc.).
• How you manage infections and whether you work with a respirologist, infectious disease specialist, or chest physiotherapist.
• Any practical tips for daily life: managing sputum, exercise, travel, vaccinations, or recognizing when to seek urgent care.
• What tests or specialists were most helpful in getting the right diagnosis and treatment plan.
I appreciate any personal experiences, specific strategies, or resources you found useful. Thank you — your insights will really help me figure out next steps.
— Lynn

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Profile picture for kaypnw @kaypnw

@scoop
Yes, I did do allergy shots for 6 years. I had severe allergies to all the major tree pollens. Now, I hardly have any symptoms during pollen season!

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@kaypnw

Been on allergy shots since I was 2 years old. 69 now. They help immensely. Tried to get off 2 times over the years and found myself in the emergency room both times. Allergy shots will change your life. They work!

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Hi Lynn, My local pulmonologist diagnosed me with asthma about 12 years ago. 20 years ago I was diagnosed with very mild BE and reactive airways at NJH. I went to NJH last May and the NOx test and the methyl choline challenge came back negative for asthma. Since I was testing positive for M. Abscessus NJH wanted me to taper off my Trelegy and advised me not to use inhaled steroids, which I did. NJH Pulm suggested I use Anora (or Anoro), my insurance would not pay for it. My local Pulm agrees that I have BE but still believes I have asthma. So at this point, I'm just confused. I now use Airsupra, but only as needed. Fortunately, I can go days and even weeks without using the Airsupra. I am hoping my insurance will cover Brinsupri, so I can get started on that. If taking Brinsupri helps me with my inflammation, that should tell me if the inflammation is caused by asthma (or reactive airway disease) or BE. This is just my experience, I know many are diagnosed with both asthma and BE but I think some people with BE might be misdiagnosed with asthma-since inflammation is a symptom of both.

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Profile picture for kathyjjb @kathyjjb

Hi Lynn, My local pulmonologist diagnosed me with asthma about 12 years ago. 20 years ago I was diagnosed with very mild BE and reactive airways at NJH. I went to NJH last May and the NOx test and the methyl choline challenge came back negative for asthma. Since I was testing positive for M. Abscessus NJH wanted me to taper off my Trelegy and advised me not to use inhaled steroids, which I did. NJH Pulm suggested I use Anora (or Anoro), my insurance would not pay for it. My local Pulm agrees that I have BE but still believes I have asthma. So at this point, I'm just confused. I now use Airsupra, but only as needed. Fortunately, I can go days and even weeks without using the Airsupra. I am hoping my insurance will cover Brinsupri, so I can get started on that. If taking Brinsupri helps me with my inflammation, that should tell me if the inflammation is caused by asthma (or reactive airway disease) or BE. This is just my experience, I know many are diagnosed with both asthma and BE but I think some people with BE might be misdiagnosed with asthma-since inflammation is a symptom of both.

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@kathyjjb
Hi Kathyjjb
You have had quit a history, being new to all this I had to looked up much of what you went through. I hope your insurance will allow the medications you need. Five years ago I had pulmonary embolism with many very large blood clots that have not all disappeared but have solidified and have caused irritation in the lungs. That is when all the problems with my lungs started, they said I now have Asthma and what I found out from the last CT scan that the bronchiectasis was worse than the last scan, that is when I found out that I had it. I have been tiring to find out if the problems in my lungs are from the old blood clots and I have had know luck, my doctor just ignores my question and I can find nothing on the internet.

ct scan

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Profile picture for lreid51 @lreid51

@lisalucier It is a simple
1 lemon, this makes it some what strong but I found it better at this strength
4T Honey
I use 5 sweeteners or sugar to taste
very hot water in kettle to just hot not bowling that would make the lemon bitter
I soften the lemon then squeeze the whole lemon into a large mug, add honey and sweetener, then water into mug and stir well.
I find drinking this slowly and resting the mug agents my chest relaxes my coughing for a while

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@lreid51
I made a mistake it is 4 teaspoons of honey. I hope the brain fog will get better

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Profile picture for Lisa Lucier, Moderator @lisalucier

@lreid51 - thanks for this tip about the hot lemon and honey drink to calm coughing. Any particular recipe you suggest for this drink?

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@lisalucier
I made a mistake.
It is 4 teaspoons of honey
I hope this brain fog gets better soon

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