Have you had your water tested?

Posted by Sue, Volunteer Mentor @sueinmn, Jan 19 8:54am

There has been some recent discussion about having home water supply tested for MAC/NTM. People seem to be having difficulty finding a resource to have this done. If anyone has had their home tested, could you please let us know a few details? Here are some of the questions, but you don't have to answer all of them – any info you can provide will be helpful:
Which lab(s) did you use?
What was the approximate cost?
What was the sampling process?
What was the turnaround time?
What did you learn, how detailed was the report, and was it understandable to a layman who is not a microbiologist?
Did the lab have someone you could contact directly with questions, either by phone or email?
Overall, how satisfied were you with the test?
Thank you for any help you can give!
Sue

Liked by janovr, ginak

@tinaesims

This might be a stupid question, but what do we do if our houses tests positive?

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@tinaesims MAC/MAI is not like radon which home radon mit systems for air and water can eliminate. Certain types of whole house water systems have been discussed here, but short of living in a bubble, MAC will be everywhere. Not using ice water/cubes from the fridge, boiling water first, avoiding a hot tub, cleaning your shower head with vinegar or switching to baths, and/or wearing a mask while doing house or yard work are at home measures you can employ to “protect” yourself. MAC is an opportunist pathogen. Twelve people lived in my home ( ten children (what were we thinking) , my husband and myself.) I am the only MAC person! irene5

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@tinaesims

This might be a stupid question, but what do we do if our houses tests positive?

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I live in a high rise in Chicago. Years ago , when I read about flesh eating bacteria destroying a teenager's limbs when she jumped into a warm water spring in , I think, Georgia, I looked up our water filtration plant and what it filters our of the water. I was using tap water in a neti pot at the time. Because our water is taken from far out in cold water Lake Michigan, I had hoped that it would not have many bacteria. Alas, flesh eating bacteria COULD survive in the cold waters and the filters would not remove them. No more tap water in a neti pot for me!

I assume that there is MAC and other bacteria in my tap water and I don't feel a need to prove that it is there. For many years, I have showered at my gym and there isn't much I can do about the water there, which is the same as the water that comes into my condo. I probably will get a water proof mask to wear in the shower there when they reopen and the masks are available again.. Since being forced to shower at home due to the virus closing gyms, I have soaked my shower head in the stronger, cleaning vinegar for several hours a couple of times. I'm not worried about most likely drinking MAC in my tap water. Stomach acid will kill almost everything.

I don't believe in boiling drinking water, so I don't know what else to do and I refuse to worry about it. Irene's report about so many using the same water but only one person, her, getting MAC is so important. It's not what's in the water; it's the state of our lungs.

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@rits

I live in a high rise in Chicago. Years ago , when I read about flesh eating bacteria destroying a teenager's limbs when she jumped into a warm water spring in , I think, Georgia, I looked up our water filtration plant and what it filters our of the water. I was using tap water in a neti pot at the time. Because our water is taken from far out in cold water Lake Michigan, I had hoped that it would not have many bacteria. Alas, flesh eating bacteria COULD survive in the cold waters and the filters would not remove them. No more tap water in a neti pot for me!

I assume that there is MAC and other bacteria in my tap water and I don't feel a need to prove that it is there. For many years, I have showered at my gym and there isn't much I can do about the water there, which is the same as the water that comes into my condo. I probably will get a water proof mask to wear in the shower there when they reopen and the masks are available again.. Since being forced to shower at home due to the virus closing gyms, I have soaked my shower head in the stronger, cleaning vinegar for several hours a couple of times. I'm not worried about most likely drinking MAC in my tap water. Stomach acid will kill almost everything.

I don't believe in boiling drinking water, so I don't know what else to do and I refuse to worry about it. Irene's report about so many using the same water but only one person, her, getting MAC is so important. It's not what's in the water; it's the state of our lungs.

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Just to be clear, no one should ever use tap water in their neti pots. Distilled water only!

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Thank you for this! I use a net pot 1-2x per day and am learning so many things at once, haven't even thought about it! I did ask my ID if avium ever shows up in the sinuses…..any thoughts on that?

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@n4seth

Thank you for this! I use a net pot 1-2x per day and am learning so many things at once, haven't even thought about it! I did ask my ID if avium ever shows up in the sinuses…..any thoughts on that?

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n4seth: Many MAC patients have chronic sinus issues, and although rare MAC has been found in a few patient’s sinuses. Most times it has to do with using household water for nasal irrigation or after sinus surgery. irene5

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@irene5

n4seth: Many MAC patients have chronic sinus issues, and although rare MAC has been found in a few patient’s sinuses. Most times it has to do with using household water for nasal irrigation or after sinus surgery. irene5

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Thanks Irene-just had my son deliver some distilled water. Will start using it today!

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@n4seth

Thanks Irene-just had my son deliver some distilled water. Will start using it today!

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Good girl!! 😊👍Like Terri said, “never use tap water for a Neti pot.” May I add that CPAC machines for sleep apnea need to be filled with distilled water as well. Irene

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I should have invested in distilled water. I use it for everything. I use it for my net pot in the morning. I clean my equipment with it. I use it to make coffee!

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I tell everyone I can about their shower heads being possible harboring points for MAC. It was something brought to my attention when I was first diagnosed in 2017. I since changed out my shower hose and head to one made of copper. ( helps kill bacteria ).

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How do you clean your shower head? Do you hang a bucket from the shower with cleaning vinegar?

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@marellen

How do you clean your shower head? Do you hang a bucket from the shower with cleaning vinegar?

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Fill a plastic bag with the vinegar solution and tie it up so the shower head is soaking in the solution.. Hope this helps.

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