Have Bronchiectasis, recently diagnosed with pseudomonas

Posted by shiell @shiell, Feb 25, 2017

I have read everything today that I find on this site. I do not know anyone else with problem. I have written down everything that stood out which I can follow up. I am beginning a 28 day therapy with inhaled tobramycin. I am 87 and realitively active. Caretaker part time for spouse with end stage COPD. Thanks for being here.

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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@auntnanny Jan, either you or your Dr. can call that lab and have them test
your sputem right down to the SPECIE. Most labs do not do that. It is important
because it effects what antibiotic they will use that will work. Not all
recommended antibiotics work on all MAC infections.
 

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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Thank you....... when I do next sputum test, I will ask the doctor to specifically ask for a pseudomonas and MAC result

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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Am wondering (just had a bad night)..... do others have horrible insomnia and night sweats with bronchiectasis? When I was diagnosed, Dr. Moua asked me if I had night sweats and I said "no" because at that time I did not. For about the last 6-8 months I really suffer with them. Sometimes it won't happen, but far too often it does. I change nightclothes 2-3 times. Haven't really slept all night in 20 years. Sleep for about 2 hours -- then get up for a while -- go back and can sleep two more hours, etc. Have tried Melatonin but didn't think it was helping at all. Just wondering if this is part of bronchiectasis??????

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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I will definitely be sure pseudomonas is specifically mentioned on my next test. -- thank you. I was treated with cipro for it the one time it was picked up and I stopped coughing for about 4-5 weeks. When I started again, another test was done, but at that time they did not report pseudomonas. So, was given a different antibiotic and again, after that, I was clear for about a month.

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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Hi Jan, yes, night sweats can be a symptom of bronchiectstasis and the infections we get from having it. I have read from many members on this forum that they deal with night sweats. For some of us, it is also menopause, sometimes hard to tell what is causing the sweats. You can mention it to your Dr. just to make sure nothing else is going on. I have them in diff levels of severity. Usually, not too bad. I turn my thermostat down to 70 and use only 100% cotton sheets and covers. Anything polyester tends to hold heat and make you feel like a rump roast in the oven. Anybody else have input about 'night sweats'? -Terri M.

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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Thanks so much for the reply. Since I'm 76....... can't blame it on menopause but just am glad to know others may experience the same.

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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@auntnanny No,
Jan, you are not alone with this. I have read it over and over again on this
forum. About insomnia due to night sweats. I forgot to mention that besides
turning the thermostat down, I also sleep with an overhead fan on. (and sleep
with one leg out of the covers) Honestly, despite all that I do to try to stay
cool; I am still throwing the covers off and on all night long. I just go with
it.....
 

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@auntnanny

My last four sputum tests have come back negative -- which I don't understand. I did them only because my coughing had recurred and was producing tremendous amounts of green phlegm. How can you have a negative sputum test while coughing with great production?

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Thank you...... normally I am cold all the time and feel very cold when I first go to bed, but after a couple of hours, the story changes. I still feel "cold", but am doing a lot of sweating. I can live with it...... just complaining again....

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Dear All, as many of you know .. I am battling three bacteria .. PSEUDOMONAS AERUGINOSA, KLEBSIELLA and SERRATIA   .  Right now I am not doing well with the enemy! I  am quite ill.  I contacted Colleen and requested a Leave of Absence as your Volunteer Mentor until I regain some strength. I ask that you ALL take loving care with each other .. support each other as I know you will .. BUT ESPECIALLY watch for Newcomers and help them as YOU have been helped.  You know so well how scary those beginning steps are .. support them along that journey .. they SO need it!  REMEMBER .. you ONLY need to be ONE baby step ahead of a Newcomer to support them!  DO IT! You will note @windwalker Terri with but 44% lung capacity tries her VERY best to always jump in to help me any time I'm not doing well .. can any of us do less? Support each other .. please do!

You needn't send me caring and hug posts .. truthfully I am not going to be on Connect till I feel better  .. I am going to concentrate on rest and regaining some energy.  BUT I will FEEL your positive energy and hugs .. every single one of them!  Till I am better .. I am sending EACH of you a Big Hug!  Katherine

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@katemn

Dear All, as many of you know .. I am battling three bacteria .. PSEUDOMONAS AERUGINOSA, KLEBSIELLA and SERRATIA   .  Right now I am not doing well with the enemy! I  am quite ill.  I contacted Colleen and requested a Leave of Absence as your Volunteer Mentor until I regain some strength. I ask that you ALL take loving care with each other .. support each other as I know you will .. BUT ESPECIALLY watch for Newcomers and help them as YOU have been helped.  You know so well how scary those beginning steps are .. support them along that journey .. they SO need it!  REMEMBER .. you ONLY need to be ONE baby step ahead of a Newcomer to support them!  DO IT! You will note @windwalker Terri with but 44% lung capacity tries her VERY best to always jump in to help me any time I'm not doing well .. can any of us do less? Support each other .. please do!

You needn't send me caring and hug posts .. truthfully I am not going to be on Connect till I feel better  .. I am going to concentrate on rest and regaining some energy.  BUT I will FEEL your positive energy and hugs .. every single one of them!  Till I am better .. I am sending EACH of you a Big Hug!  Katherine

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@katemn Love
and prayers for you Katherine. You KNOW we are all pulling for you!
Many thanks and many hugs. Now GO heal
yourself!
 

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