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Have a few autoimmune disorders - now have consistent low grade fever

Posted by blindeyepug @blindeyepug, Apr 28, 2017

Hi, I usually try not to complain, but I am very frustrated. I have RA, Sjogren's and Fibro along with spinal stenosis, osteoporosis, depression. I try really hard to stay active, stay away from pain medications and stay positive. Well, I am really down. I have had a low grade fever (99.8 to 101.2) for over two months together with, if possible, even more exhaustion than usual. I am really struggling. I have been to my rheumatologist who took bunches of blood tests. All came back within normal except I have low B12 and slightly elevated C3C. I recently had chest, abdomen and pelvic scans taken that came back clear. Now I am suppose to go to an infectious disease specialist. I am very frustrated and really tired of feeling sick and tired all the time. My boss (I still work part time), husband and family do not understand the exhaustion. I am getting "those" looks again like I did when I first started having fibro symptoms. I just wonder if any one else has had this happen and, if so, what was discovered? I just am super depressed. I feel as if I have taken ten steps backwards.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Dec 24, 2024
In reply to @efia "Hello, I also have low grade fever for over a month and swollen lymph nodes for..." + (show)
@efia

Hello, I also have low grade fever for over a month and swollen lymph nodes for 4 months now. I also have joint pain and fatigue. I tested for lupus and Ra but the doctors ruled them out since I have negative ANA, RF and antiCCP. I also got checked for lymphoma but it turned out negative. I too have Hashimoto. I just wanted to ask you since we have similar symptoms did you manage to come to a conclusion? Did the low grade fever stop? I am very tired and the paracetamol and other meds don’t seem to work and the doctors can’t seem to find answers and they also suggested that I see an infectious disease specialist.

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@efia Welcome to Mayo Clinic Connect ! I hope you’ll find what you’re looking for! Some of the discussions have old dates on them but the information hasn’t changed. Here is one that you can try:
https://connect.mayoclinic.org/discussion/blood-tests-diagnosis/
You can find more discussions by doing a search. At the top of this page you will see ‘autoimmune disorders’. Tap on it and it will take you to the homepage for autoimmune. Part way down the page you will see a search box. Enter “no diagnosis”. Or “need a diagnosis”. Or something like that. Then, when you tap enter or go, the computer will search all the discussions in the Autoimmune Disorders support groups. Then, read through the discussion titles and tap on any. The discussion will open up and you can read through the whole thing! You will find others who have been in your situation!

REPLY
kitchener64 | @kitchener64 | Dec 25, 2024
In reply to @efia "Hello, I also have low grade fever for over a month and swollen lymph nodes for..." + (show)
@efia

Hello, I also have low grade fever for over a month and swollen lymph nodes for 4 months now. I also have joint pain and fatigue. I tested for lupus and Ra but the doctors ruled them out since I have negative ANA, RF and antiCCP. I also got checked for lymphoma but it turned out negative. I too have Hashimoto. I just wanted to ask you since we have similar symptoms did you manage to come to a conclusion? Did the low grade fever stop? I am very tired and the paracetamol and other meds don’t seem to work and the doctors can’t seem to find answers and they also suggested that I see an infectious disease specialist.

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From what I have been researching, virtually anything is possible from many of the autoimmune diseases, and as you mentioned often another autoimmune can manifest from the other. For most , actually I think all of them, there is no cure , only treating of the symptoms. With my self , twice higher range ANA and twice Indeterminate DSDNA up and down levels in blood. Now it’s possible Neurologist is thinking Systemic Inflammation Response from several joint injuries.. it can even effect ANA figures , but it comes back to one thing , our lifestyle, our diet and staying in contact with groups of people who have similar conditions.. Merry Christmas

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