Have a few autoimmune disorders - now have consistent low grade fever

Posted by blindeyepug @blindeyepug, Apr 28, 2017

Hi, I usually try not to complain, but I am very frustrated. I have RA, Sjogren’s and Fibro along with spinal stenosis, osteoporosis, depression. I try really hard to stay active, stay away from pain medications and stay positive. Well, I am really down. I have had a low grade fever (99.8 to 101.2) for over two months together with, if possible, even more exhaustion than usual. I am really struggling. I have been to my rheumatologist who took bunches of blood tests. All came back within normal except I have low B12 and slightly elevated C3C. I recently had chest, abdomen and pelvic scans taken that came back clear. Now I am suppose to go to an infectious disease specialist. I am very frustrated and really tired of feeling sick and tired all the time. My boss (I still work part time), husband and family do not understand the exhaustion. I am getting “those” looks again like I did when I first started having fibro symptoms. I just wonder if any one else has had this happen and, if so, what was discovered? I just am super depressed. I feel as if I have taken ten steps backwards.

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@blindeyepug

@lisabeans Yes, I do have a rheumatologist. Her tests rule out Lupus. I already have rheumatoid arthritis, Sjogren’s syndrome and fibromyalgia. My sed rate was not high. All blood tests came out normal except low B12 and an elevated C3C (whatever that is). Anyway, scans of chest, abdomen and pelvis came back clear. However, I continue to have low grade fever (for over two months between 99.8 and 101.2) and extreme fatigue – more than usual. My primary doctor doesn’t know what could be causing it, either. She took some blood cultures on Saturday and I have yet to get those results back. But they have ruled out any type of hepatitis, lupus, any sexually transmitted disease (which I didn’t even know they were testing for, but it was clear!) and certain cancers. So, I guess I will perhaps get a second opinion. Very frustrating. I was really adjusting and moving forward with my various autoimmune disorders and my spinal stenosis, but then this happens! Now I am frustrated, tired and anxious once again. Thank you to all who have replied. I greatly appreciate your input and thoughts.

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Dear blindeyepug my name is Beryl…..and I have just read you post,,,forgive me if I am a bit behind on this…..
It seems to me that a lot of us seem to go through a sort of torment before someone gets the reason for our illness and starts,to put you in the right slot…..then apart from having the thing you are at least understood…..difficult with people,that can't understand and think you are shamming,
Is it,possible that you could go to a clinic that deals in difficult cases, such as the Mayo clinic…..I have not been to one but I am being looked after by one and they don't think you are imagining your illness ……I have been attending one of these hospitals for ten years now, the nature of the beast means mine is not going to go too soon…..but I live in great hopes that it will one day…..keep,your chin up and look for the right kind of help……these are the experts……..good luck ….

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@beryl @blindeyepug Please, I would suggest something. First, to get with a top clinic like Mayo, first things first. Get yourself a great team of local docs. not to make a diagnosis, but to reach out to Mayo. Mayo must be convinced that, even if it is their own lab that calls it, nothing is to be believed that the doctor does not see with their own eyes. A strong team of local doctors carries more weight. Without that, you might as well be asking for a diagnosis from a resort operator. Frankly, it will probably be difficult, perhaps even impossible.

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Thank you oldkarl that is very good of you but I really am being looked after very well……I have Polymyalgia Rhumatica and it is slowly getting better but it goes,up and down , it depends how much I do in a day …..thank you again Beryl

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