Has your doctor been straightforward about your survival?

actually i managed to get a second opinion with mayo in phoenix and they liked what i got (6 treatments with cisplatin and taxol plus herceptin) and every 3 weeks with herceptin. they actually did the pathology and read the ct-scans, not just looking at the results. very impressed. i'm not sure how uterine is different from endometrial but i don't think it can't be that different? i thought herceptin gives you a lot (9.3 vs 17.7 months?)

i think this might have been the study:
https://pubmed.ncbi.nlm.nih.gov/32601075/
i think there were other studies on the cancer share website. certainly did not get any info from oncologist(s).

That is interesting. My cancer is HER2 negative and the p53 designation makes it even harder to treat. I’m definitely interested in finding Clinical Trials/studies that I may be eligible for. As you mentioned about USC not being classified as Endometrial, all that I have read says it is nonEndometroid. Totally different risk factors especially regarding obesity/BMI, diabetes and Hypertension which are not usually associated with USC but are associated with most Endometrial cancers in general.

interesting-nonendometrial vs oid. wondering whether if it is just a classification thing rather than body part. anyway i think i am mutant p53. pathology report was a bit hard to decipher on the her2 fish (?) sections but i asked the mayo doc. actually mayo asked me about trials ( if i was interested) but i said if my life is short and there’a only a 50% chance of being selected …. not really.

They are coming up with new treatments all of the time. I did all of the chemo, surgery and immunotherapy recommended. Then searched for information on alternative therapies to stay in remission. From what I always hear is to get plenty of rest, stay active (walking and exercising) be social to keep yourself upbeat and involved so you’re happy. Eat lots of veggies, only whole grains, nuts, beans, fruits, and maybe omega 3 type fish and occasional poultry or eggs?
I’ve heard no red meats, processed meats, or alcohol.
Get fresh air and some sun every day you can.
I try to do these things mostly. Then I have my cheat times occasionally.

Also I’m checking out a doctor who does alternative therapies for conditions.
My research says these things make a difference…if a difference can be made. It’s the best I’ve got, and when I do it imperfectly…I’ll do it better the next day, week, or month. I have prayed for peace and joy and to live whatever time I have left with a purposeful, happy, fulfilling life. There is not one person on earth who is promised tomorrow. So I’m no different. I’m going to keep living and planning like I will be healthy and alive…if another hurdle comes, I will figure out how to jump that one then.

The doctor is correct when he told you that. I had a serious metastasis about the size of a tennis ball attached to my outer colon and hip bone. (endometrial cancer). It was my third cancer diagnosis at that time. The other was breast cancer 5 years prior. My survival chances were very slim. The oncologist said after all my radiation to the hip bone and colon there was nothing more they can do. At that time I was told the chemo for that cancer was not very effective. That was in 2002. Then in 2003 a test showed some abnormality in the area...could have been a Ct scan or Pet scan but I don't recall. Again all my doctors figured the cancer was back a third time. I already had gotten all my affairs in order so I had nothing more I could do. Slowly I began getting better, took a couple of years of feeling a little more normal, and now here it is 23 years later to everyone's surprise. My oncologist would write in her report I was her "miracle patient". Over three years ago I got my 4th cancer diagnosis, this time bladder cancer. It was determined by my doctors that came about because of all the radiation I was exposed to with my previous cancers. It was a high grade cancer and bladder cancer oftentimes comes back early. So far, so good. I'm feeling fine and continue living a normal life. I just turned 80 this year...who would believe it?! So your doctor really is not the judge of whether you'll live a long life or not. Hang in there.

I just read the answer above mine. I didn't restrict my diet at all. I ate moderate amounts of all foods as I was advised by two doctors at that time. I love dairy foods and meat, some fish, just a little dessert. I did have a colon resection in 2002 because of the cancer being on my outer colon. That was difficult to recover from and I still have a very hard time eating a lot of vegetables that have a lot of fiber because of it. So I really don't know just how much the diet has to do with it. BTW, I do have a very strong religious belief and in my estimation that has the most to do with my survival. I wish you all the best.

I’m really struggling with this right now. I was diagnosed with stage 4 primary peritoneal carcinoma, which is treated the same as ovarian cancer, in February 2025. Im 42 years old. (I had my uterus, ovaries, and fallopian tubes removed as a preventative measure in 2021 after being diagnosed with Lynch Syndrome.) My diagnosis came about after a pleural effusion that was originally thought to be a complication of pneumonia was malignant.

I had 4 rounds of carbo taxol chemo, and cytoreductive/debulking surgery last month. It was horrible. A couple of weeks after the surgery I started having serious shortness of breath and pain and learned that my pleural effusion was back. I also had fluid buildup in my abdomen. I had to go back in the hospital to have my abdomen drained and lung drained twice and it keeps filling back up. I started back on chemo 3 weeks earlier than planned to try to get the PE under control. I see my surgeon tomorrow and a pulmonologist the next day.

I just feel like I am spinning my wheels, like I’ve gone through all of this really difficult and treatment just to end up exactly where I started. I have no hope, no joy, nothing but a line of appointments with painful procedures on the horizon. My oncologist says she thinks she can get me a “decent” quality of life once I complete 3 more rounds of chemo but I don’t believe it. Plus I’m not sure what “decent” even means. I’m just tired of all of this. I’m seriously considering stopping chemo and just going into hospice care. I don’t think I’m cut out to fight this battle.

EXCELLENT story!! thank you so much for sharing!

Korinja, I know how you feel. I have gone through chemo three times. The last two rounds of chemo left me exhausted. I finished the third round almost two months ago, and I still can’t do anything. My quality of life is not good. It makes me seriously consider not going through any more chemo the next time the cancer comes back. But then I tell myself, “You can’t just give up!” So I don’t know what to do. I hate my life. I don’t have anyone to help me. My husband has Alzheimer’s. He can’t help me. I have to take care of him.

I hope it can be of some help to at least one person. I never hesitate to tell my story of survival and surrender to God's will. I think that's what has gotten me through for over two decades.

I'm so sorry to read about all you're going through. Before you throw in the towel, may I suggest you seek some counseling from someone experienced in this field to guide you through this decision. When I was going through my personal hell, I did seek out a counselor and she was of help to me. Sometimes it just helps us to unburden our cares to someone who listens and cares. If you have a church you attend, perhaps a minister/priest/rabbi can be of help. Just a thought.