Has your doctor been straightforward about your survival?
Hi all. I’m so glad this forum is here. I was diagnosed with papillary serous ovarian cancer, stage IIIc, three-and-a-half years ago. I just finished my third course of chemo. My doctors will not be very frank when I ask “What are my chances of long-term survival?” They say things like, “Every patient is different” “I don’t like to put a number on it” and, believe it or not, “You could be hit by a bus tomorrow!”
I’d very much like to know what other patients’ doctors have told them regarding their chances. Have they been straightforward with you? Or are they vague and uncomfortable discussing odds of survival?
Thank you.
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
@ffr, there are a few clinical studies show that pMMR also respond to immunotherapy, regardless of status of MMR, immunotherapy seems all resonds with different levels. So FDA approved immunotherapy to both pMMR and dMMR.
My doctors were the same. I was diagnosed same type and stage as you in May 2004. I had a regular hysterectomy as they didn’t realize it was cancer going in. I didn’t have extra doses of chemo including a few topotecan for a trial I decided to be in. I didn’t have any diagnosed recurrence until May 2022. Once in recurrence they told me a lot of people have recurrences again within 2 years, and from there recurrences occur more and more frequently. It’s been 2 1/2 years now since last treatment ended, and I appear to be in the onset of another recurrence. Still moving slow though and too early to treat.
I think they really only know the signs, not the timeline with certainty. However it is aggravating when they evade the question like that. My first Onc when asked about odds of survival told me 0 or 100%. Rude.