Has anyone used the Spinal Cord Stimulator NEVRO HFX?
My Pain Management Physician gave me a brochure on this SCS and I wanted to know if anyone has used this model and whether or not you have had success with it. Thanks
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There are likely many people who have had success with this SCS. The important thing is to have the trial, in which you have temporary leads impanted in your intrathecal space and an external battery pack that you wear. Then you give it a try for 5-7 days. Then, if you had decent pain relief(at least 50%), you can go ahead with the permanent implant. Sometimes, the permantent implant doesn't always give you the same relief as the trial. I had the Medtronic SCS trial and implant back in 2018. The trial gave me about 80% pain relief. The permanent implant gave just 50%. But, along with some meds, I was able to get back to cycling, hiking, and working around the house. Not quite 100% normal, but pretty good. Wish you well on your journey.
Just read of big law Suite with the spinal cord stimulators. I had one that almost shocked me to death. Wanted to join the suit but can't find my documentation.
Like everything, there are always risks. I think that I speak for everyone when I say so glad you are okay.
As I've seen others say, it's important to start with the trial. My trial was successful so I had the nervous implanted in April 2024 and can honestly say it has given me my quality of life back! This past summer I was able to dust off my kayak, as well as keep up with my 7 year old granddaughter! There is a learning curve so don't give up if your success isn't the best right away. I only regret that it wasn't available 10 years ago!
I just went through a 5 day trial of the HFX Nervo spinal cord stimulator. I have been in pain after 2 years and, a Laminectomy surgery on July 2024 and that didn't help much as their primary focus was to remove 2 synovial cysts that was the origin causing my severe pain.
After my recent trial that ended on 1/27/25, I am a candidate for the HFX Nervo implant. I have gotten 70% improvement pain free and there are many programs to modify to your pain levels. I am ecstatic and optimistic in how this has worked!
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Hello @lizlarra99, I combined your discussion with an existing one titled:
"Has anyone used the Spinal Cord Stimulator NEVRO HFX?"
- https://connect.mayoclinic.org/discussion/has-anyone-used-the-spinal-cord-stimulator-nevro-hfx/
Here you can meet @denman55 and @stellaluna35 who briefly shared their experiences with a spinal cord stimulator.
I’m definitely interested in hearing more about this.
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I've had the stimulator for five years and it has taking my pain down 80 percent. I go to the bwca and work with EBD children and have to keep them safe, I just went in because of new issues and they reprogrammed my stimulator and upgraded firmware. Now I have to go thru the new programs and notice what they help with and what they don't. Then they can combine all info to one program and bingo I hope no pain in thigh. Go for it. It is better than drugs and surgery I think
This is very interesting! I had my first NEVRO placed 7.5 years ago and about 2 years ago it started shocking me - badly! They swore it was impossible to be shocked but after three months of screaming in restaurants, church, stores, home, and other places where my body involuntarily responded to the shock I insisted it be replaced and it was. Unfortunately I did not listen to my doctors who warned me that NEVRO was experiencing significant employee turnover and customer support issues as well as quality issues with the newer products. All of these have affected me significantly since I had the new NEVRO stimulator placed about 1.5 years ago. It is next to impossible to get a call back for program updates - or any other issue for that matter! For example, the charger for my stimulator failed yesterday and I left messages over two days and zero response so my pain level has escalated. I have also read another person’s post on the same charger-failure issue and he was told it would take 2 WEEKS to get a new charger! Seriously? They can’t spend money to overnight a charger? I am calling my surgeons tomorrow to find a way to replace this NEVRO device with one from a different company. I did not have this invasive and risky surgery done to have an uncomfortable bulge in back with no benefit.