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Has anyone seen an Endocrinologist for osteoporosis?

Posted by stanfojc @stanfojc, Jan 10 3:28pm

I had pelvic fractures in July 2025. I am seeing a Physical Therapist. Due to issues with side effects to the osteo medications, I cannot take any of them. I have been advised to see an endocrinologist. I'm not sure what an endocrinologist would do for me. Does anyone know what I might expect from this type of specialist?

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lhibdon90 | @lhibdon90 | Jan 19 9:04pm

I was diagnosed with osteoporosis in my mid 30's my primary care doctor put me on Boniva but never tried to figure out why I had it just shrugged and said that was unusual. I'm 55 now(haven't been on any osteoporosis meds in 15 years) and have a large thyroid nodule so I requested to see an endocrinologist for it. While doing my research on the doctor I saw she specialized in osteoporosis. She noticed that my calcium levels were high. I'm a little confused but I think that means my bones are not absorbing it and has been trying to figure out why I had osteoporosis at such a young age. She got me approved for envinity and walked me through the discount card for it. She has helped me out so much more so far than any of my other doctors have. I recommend an endocrinologist to all osteoporosis patients. I just had my first injections last Friday. My current score is -3.6 can't wait to have it checked at the end of the treatments (fingers crossed)

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crbarefoot | @crbarefoot | Jan 20 1:47pm
In reply to @ltfh "@crbarefoot I appreciate your reply as I have not found anyone else dealing with a similar..." + (show)
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@crbarefoot I appreciate your reply as I have not found anyone else dealing with a similar issue re: hypercalciuria. Nice to know I am not entirely alone! Is the HCTZ helping control it for your husband? It took a while to dial in the correct dose for me. I was started on 25mg/day but was loosing too much Potassium so we finally found the sweet spot of 12.5mg/day of HCTZ and 20 mEq of Klor-Chon twice a day to keep everything in balance. (I weigh about 140lbs so your husband would likely need more HCTZ). I did learn something the hard way, it is very important to be well-hydrated when taking HCTZ. I developed a kidney stone from not having adequate water (I was consuming about 40 oz/day). Since learning about the stone, I consume 80 oz/day and this seems to have halted the stone progression for now. As for the low sodium recommendation, your husband may want to discuss this with the endo and/or a dietician. I hope your husband is responding positively to the treatment plan!

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@ltfh my husband weighs 209 lb and was started and continues on HCTZ 25 mg. His potassium has stayed normal. We actually see his endo tomorrow and I am going to ask for another 24 hour urine collection. Interesting about your kidney stone. My husband has had a previous kidney stone but no problems like that yet. I guess we’ll get the results of a follow up 24 hour urine and see if a dose adjustment of HCTZ is needed. I’ll post any updates here. Thanks for sharing your story.

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crbarefoot | @crbarefoot | Jan 20 2:01pm
In reply to @gravity3 "@crbarefoot Has he had a dexa scan?" + (show)
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@crbarefoot

Has he had a dexa scan?

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@gravity3 yes. He had a DEXA scan. Mild osteopenia.

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stanfojc | @stanfojc | Jan 20 2:26pm
In reply to @lhibdon90 "I was diagnosed with osteoporosis in my mid 30's my primary care doctor put me on..." + (show)
Profile picture for lhibdon90 @lhibdon90

I was diagnosed with osteoporosis in my mid 30's my primary care doctor put me on Boniva but never tried to figure out why I had it just shrugged and said that was unusual. I'm 55 now(haven't been on any osteoporosis meds in 15 years) and have a large thyroid nodule so I requested to see an endocrinologist for it. While doing my research on the doctor I saw she specialized in osteoporosis. She noticed that my calcium levels were high. I'm a little confused but I think that means my bones are not absorbing it and has been trying to figure out why I had osteoporosis at such a young age. She got me approved for envinity and walked me through the discount card for it. She has helped me out so much more so far than any of my other doctors have. I recommend an endocrinologist to all osteoporosis patients. I just had my first injections last Friday. My current score is -3.6 can't wait to have it checked at the end of the treatments (fingers crossed)

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@lhibdon90
Thank you for sharing. I hope to get lined up with an endocrinologist soon. Good luck to you!

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jocat74 | @jocat74 | Jan 21 10:07am

I just saw my endocrinologist yesterday. I was referred to him because I had an neuroendocrine tumor and lost half my lung in 2024. I have osteoporosis and my GP wanted me to see a specialist because I have to be careful with medication’s now. My endocrinologist looked closely at my past history, medication’s that I’m on and supplements, and decided that I should start taking Prolia.

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nycmusic | @nycmusic | Jan 21 11:30am

Generally, ENDOs prescribe the standard meds…maybe ask one, before making appointment if they offer alternatives or integrative medicine.

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