Has anyone seen an Endocrinologist for osteoporosis?

Posted by stanfojc @stanfojc, Jan 10 3:28pm

I had pelvic fractures in July 2025. I am seeing a Physical Therapist. Due to issues with side effects to the osteo medications, I cannot take any of them. I have been advised to see an endocrinologist. I'm not sure what an endocrinologist would do for me. Does anyone know what I might expect from this type of specialist?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for gretchen1018 @gretchen1018

@fsf What is gut bacteria remediatio

Jump to this post

@gretchen1018 Your gut bacteria are the 'bugs' (microflora and fauna) that aid in digestion. Just like all bacteria, there are beneficial and not so beneficial bacteria. Poor diets 'starve' the beneficial bugs, and the "not so good" can take over. Fiber, leafy greens, sheep and goat's milk cheeses, low sugar, non-refined foods favor the good bacteria. Mediterranean diets, fermented foods, and avoiding too many "nightshades" and high lectin foods can help 'heal' a gut. Look up leaky gut syndrome, and it will explain a lot of these concepts. When your gut bacteria are not "healthy", digestion and nutrient absorption are compromised. Bones suffer.
Hope this helps

REPLY
Profile picture for fsf @fsf

@gravity3 yes - extensive testing prior to meds and infusion. Initially, doctor thought Ca, Mg, D3 deficiency. But all levels were correct. Have always had an issue with hormones (serious athlete - loss of mensis). However, family history indicated that hormone replacement was not an option.

Jump to this post

@fsf I'm 77 years of age and still somewhat active. I have seen both a rheumatologist and my regular endo for diagnosed osteoporosis.. The rheumatologist was not very helpful but the endo, who treats me for other conditions, was thorough. She ordered various bloodtests and most recently the calcium urine test. She prescribed Tymlos at my request (the rheumatologist did not despite a -3.2 wrist reading on the DEXA scan) and the endo is monitoring the Tymlos results on an intermittent basis. I believe the doctor experience will differ from doctor to doctor and a good course of action is to reach for 2d and/or 3d opinions. As a lifelong athlete myself, former marathon runner, I've had my share of injuries and conflicting medical opinions. Find someone you trust and do online research on non-sponsored sites. I never thought I would develop osteoporosis and I should have known better with my thin body frame. Now I'm doing a number of things to counteract (weight training, various supplements including leucine and increased protein intake, anabolic injections). I have not tried HRT due to family history. This website is an excellent source of information. Best of luck!

REPLY
Profile picture for fsf @fsf

@gretchen1018 Your gut bacteria are the 'bugs' (microflora and fauna) that aid in digestion. Just like all bacteria, there are beneficial and not so beneficial bacteria. Poor diets 'starve' the beneficial bugs, and the "not so good" can take over. Fiber, leafy greens, sheep and goat's milk cheeses, low sugar, non-refined foods favor the good bacteria. Mediterranean diets, fermented foods, and avoiding too many "nightshades" and high lectin foods can help 'heal' a gut. Look up leaky gut syndrome, and it will explain a lot of these concepts. When your gut bacteria are not "healthy", digestion and nutrient absorption are compromised. Bones suffer.
Hope this helps

Jump to this post

@fsf Sorry; my reply went to the wrong posting.

REPLY
Profile picture for ltfh @ltfh

I have found endocrinology helpful with managing my OP. Through testing, it was discovered that I have hypercalciuria (excretion of higher levels of calcium than normal) which is likely a contributing factor to my OP. I take a low dose of hydrochlorothiazide which keeps me in the high normal range of calcium excretion (diagnosed through 24 hour urine collection). I also have to keep my dietary sodium intake low as there is an interaction with sodium intake and calcium excretion. Without endocrinology on board, I doubt my PCP would have figured this out. I say yes to Endocrinology!

Jump to this post

@ltfh my husband had a vertebral fracture at 59 yo when prepping our house prior to hurricane Milton. His endo also discovered he was excreting excessive calcium in his urine. He was also started on HCTZ but no mention of low sodium. We are also awaiting repeat 24 hour urine collection. Please keep us posted if you learn any further preventative measures. Ty!

REPLY
Profile picture for crbarefoot @crbarefoot

@ltfh my husband had a vertebral fracture at 59 yo when prepping our house prior to hurricane Milton. His endo also discovered he was excreting excessive calcium in his urine. He was also started on HCTZ but no mention of low sodium. We are also awaiting repeat 24 hour urine collection. Please keep us posted if you learn any further preventative measures. Ty!

Jump to this post

REPLY
Profile picture for crbarefoot @crbarefoot

@ltfh my husband had a vertebral fracture at 59 yo when prepping our house prior to hurricane Milton. His endo also discovered he was excreting excessive calcium in his urine. He was also started on HCTZ but no mention of low sodium. We are also awaiting repeat 24 hour urine collection. Please keep us posted if you learn any further preventative measures. Ty!

Jump to this post

@crbarefoot

Has he had a dexa scan?

REPLY
Profile picture for crbarefoot @crbarefoot

@ltfh my husband had a vertebral fracture at 59 yo when prepping our house prior to hurricane Milton. His endo also discovered he was excreting excessive calcium in his urine. He was also started on HCTZ but no mention of low sodium. We are also awaiting repeat 24 hour urine collection. Please keep us posted if you learn any further preventative measures. Ty!

Jump to this post

@crbarefoot I appreciate your reply as I have not found anyone else dealing with a similar issue re: hypercalciuria. Nice to know I am not entirely alone! Is the HCTZ helping control it for your husband? It took a while to dial in the correct dose for me. I was started on 25mg/day but was loosing too much Potassium so we finally found the sweet spot of 12.5mg/day of HCTZ and 20 mEq of Klor-Chon twice a day to keep everything in balance. (I weigh about 140lbs so your husband would likely need more HCTZ). I did learn something the hard way, it is very important to be well-hydrated when taking HCTZ. I developed a kidney stone from not having adequate water (I was consuming about 40 oz/day). Since learning about the stone, I consume 80 oz/day and this seems to have halted the stone progression for now. As for the low sodium recommendation, your husband may want to discuss this with the endo and/or a dietician. I hope your husband is responding positively to the treatment plan!

REPLY
Profile picture for gravity3 @gravity3

@crbarefoot

Has he had a dexa scan?

Jump to this post

@gravity3

Dexa comment in wrong spot.

REPLY
Profile picture for willowmena @willowmena

@fsf I'm 77 years of age and still somewhat active. I have seen both a rheumatologist and my regular endo for diagnosed osteoporosis.. The rheumatologist was not very helpful but the endo, who treats me for other conditions, was thorough. She ordered various bloodtests and most recently the calcium urine test. She prescribed Tymlos at my request (the rheumatologist did not despite a -3.2 wrist reading on the DEXA scan) and the endo is monitoring the Tymlos results on an intermittent basis. I believe the doctor experience will differ from doctor to doctor and a good course of action is to reach for 2d and/or 3d opinions. As a lifelong athlete myself, former marathon runner, I've had my share of injuries and conflicting medical opinions. Find someone you trust and do online research on non-sponsored sites. I never thought I would develop osteoporosis and I should have known better with my thin body frame. Now I'm doing a number of things to counteract (weight training, various supplements including leucine and increased protein intake, anabolic injections). I have not tried HRT due to family history. This website is an excellent source of information. Best of luck!

Jump to this post

@willowmena
Thank you for sharing your story. It's helpful to hear what others are doing.

REPLY
Profile picture for crbarefoot @crbarefoot

@ltfh my husband had a vertebral fracture at 59 yo when prepping our house prior to hurricane Milton. His endo also discovered he was excreting excessive calcium in his urine. He was also started on HCTZ but no mention of low sodium. We are also awaiting repeat 24 hour urine collection. Please keep us posted if you learn any further preventative measures. Ty!

Jump to this post

@crbarefoot

Will do. Thanks for sharing.

REPLY
Please sign in or register to post a reply.