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Has anyone heard of low dose Naltrexone as a potential treatment?
Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.
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The liquid form is a little more hassle than a pill in that you need to use a syringe to pull up the right amount and then drink it. But the cost is amazing - with insurance coverage it is about $3.50 for six months (yes correct decimal place). I was paying over $1000 a year at the compounding pharmacy with no insurance coverage.
My CRNP does not seem to be aware of the liquid option. I am now paying $45 vs $70 for 30 pills. $3.50 would be much better. Do you mind my asking who prescribed the liquid for you? Was it through a Long COVID clinic?
I used CareFirst Pharmacy in NJ to fill both a liquid and pill prescription from my PCP by mail. They offer pill dosages at varying strengths in 90 tablets per order. So same price of $50 [rounded off] for 0.5 mg up to 4.5mg for 90 tablets. Shipping by USPS adds a couple of bucks. Helpful by phone if you have questions. Liquid price a bit higher. I didn't try to get insurance coverage.
This is to correct an earlier post where I said I was taking liquid form LDN and that my insurance will cover it unlike the compounded form. Almost correct ... I have to make up the liquid form from 50mg tablets. So one 50mg tablet is combined with 50ml water to make a 1mg/ml solution. I then use a syringe (no needle) to measure 3ml to take. Insurance (Anthem) covers the tablets so they are amazingly cheap - $5.00 for 30 tablets which for me at 3mg/day is a 450 day supply! Sure beats paying the compounding pharmacy around $80 a month.
The Mayo Clinic pharmacy mailed the LDN to me I live in NYC. My doctor called it in. Is was inexpensive.
Thank you! I will keep working with my Long COVID clinic to start providing the liquid form of this instead of just prescribing capsules.