1. < Polymyalgia Rheumatica (PMR)
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Has anyone had their voice affected by Pmr? I have read that it is.

Posted by tsharkey01 @tsharkey01, Oct 12, 2023

My voice has been. It’s like I had a case of laryngitis or bronchitis. This started about 6 months ago and the steroids don’t have any effect on it.

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floridabonnie | @floridabonnie | Feb 9 2:21pm
In reply to @ggarrepy "I’m just starting with this diagnosis and have not started steroids yet. I will probably start..." + (show)
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I’m just starting with this diagnosis and have not started steroids yet. I will probably start next week. I am noticing a raspiness and I can’t sing normally. I’m the oddball with normal labs but text book PMR symptoms. I wondered if anyone else had this issue. Not normal for me.

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@ggarrepy Yes, my voice has changed too. I also do not have blood markers, but have PMR. Myu voice has noticeably changed since I was diagnosed in 2020. It has not come back. It is also weaker than it used to be, people have a hard time hearing me speak.

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floridabonnie | @floridabonnie | Feb 9 2:27pm

That is the first I have heard of the change of voice with PMR! I am so relieved that I am not the only one. I did not even connect it to my PMR! I have had PMR for almost 5 years and my voice has been changing, but I didn't connect the two. Wow! Thank you for sharing that. It is much softer than it used to be and I have a hard time being heard anymore. I can feel a difference when I talk too.

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nor5501 | @nor5501 | Feb 9 3:50pm
In reply to @jabrown0407 "@ggarrepy I am seeing a specialist in March about the raspiness that is settling in. I..." + (show)
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@ggarrepy I am seeing a specialist in March about the raspiness that is settling in. I have had PMR for 6 years and was recently Dx with GCA Vasculitis. I'm the odd duck on the GCA because I haven't had any cranial symptoms. The GCA was picked up on a PET scan.

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@jabrown0407
I saw an ENT for the same reason. He referred me to voice therapy.
After I got off Predisone it got so much better.

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tweetypie13 | @tweetypie13 | Feb 9 5:18pm

I have Been off prednisone for 6 1/2 months and voice is worse.
I have an ENT appt next week….stay tuned.

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