1. < Kidney & Bladder

Has anyone had their GFR drop 20 points in less than year?

Posted by like2dance2 @like2dance2, Sep 14, 2024

In January 2024 my GFR went from 53 to 43. It dropped another 11 points between May and August. My Albumin/ Creatine Ratio is 1500. My nephrologist seems totally unconcerned. I am scared. I also have MGUS. Does anyone have these kind of numbers? What did your Doctor say?

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celia16 | @celia16 | Jan 29 2:04pm
In reply to @renegade71 "i have chronic kidney disease. i was diagnosed in 2018 but it could have been going..." + (show)
@renegade71

i have chronic kidney disease. i was diagnosed in 2018 but it could have been going on before that. over the years my egfr has fluctuated up and down. as high as 60+ to a low of 27. it is now 38 hoping it will go back up. my next labs are in 3/25.

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Do you know the culprit? Mine’s been high for many years so trying to figure it out. I had a colonoscopy a couple of days before the blood test, so…..idk.

How often do you test?

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1 reply
renegade71 | @renegade71 | Jan 29 7:51pm

yes high blood pressure since 19 years old. I'm now 72.

I test every 3 months.

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Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Feb 1 10:34am
In reply to @celia16 "I hope you get some answers. What are you inclined to do? I wish you all..." + (show)
@celia16

I hope you get some answers. What are you inclined to do? I wish you all the best. That must have been a terrible shock.

Does anyone know if having a colonoscopy several days before eGFR test can impact the result? I had a two day prep that was not like the first one and it was brutal. I did consume a lot of fluids. I felt my body was out of sorts and dehydrated from all the fluid I lost. The results were normal, but down a little from a year ago. September of last year I was 97. Since then I’ve lost a lot of weight, added exercise, eat a very nutritious diet, and gotten my vitamin deficiency treated. I was not expecting a decline. My doctor said normal, no problem, but…. I’m returning in 3 months to recheck.

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@celia16 the eGFR is affected by hydration and dietary things so I would suppose that the requirements of the preparation pre-colonoscopy could have an effect. How did the colonoscopy go? I hope all is well.

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Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Feb 1 10:37am
In reply to @robtemery "You are speaking to the wrong individual. One colonoscopy when I turned 50 and now 76...." + (show)
@robtemery

You are speaking to the wrong individual. One colonoscopy when I turned 50
and now 76. I at one time was a Medical Malpractice Litigator. What I have
heard Doctor testify makes me reluctant to go to the doctor. In a
nutshell, my kids are backed up and no evident stones. Urologist believes
urine is backing up from the bladder because of restriction from BPH. I
have BPH but no symptoms. Wife says bullshit,No surgery. I live in
Waikiki Beach and as I have learned there is only a couple of Urologists
around.

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@robtemery what is BPH? (I have trouble with acronyms).

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1 reply
like2dance2 | @like2dance2 | Feb 1 10:50am
In reply to @like2dance2 "Thank you all for your comments. My nephrologist has ordered a kidney biopsy. In addition to..." + (show)
@like2dance2

Thank you all for your comments. My nephrologist has ordered a kidney biopsy. In addition to the decline in gfr in 3 months, my creatine albumin ratio has gone fron trace to 1498. At least if MGUS is involved I will know after biopsy, I hope.

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I have since been diagnosed with AL Amyloidosis. Kappa Light Chain restricted. I am receiving treatment which is helping somewhat.

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Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Feb 1 10:50am
In reply to @hbrennan93 "I’m in the process with my rheumatologist to get diagnosed with Lupus (potentially Lupus Nephritis) and..." + (show)
@hbrennan93

I’m in the process with my rheumatologist to get diagnosed with Lupus (potentially Lupus Nephritis) and while going over my bloodwork from the last five years I noticed a distinct change in my gfr. In April 2020 it was 116, April 2021 it was 140, and in June 2023 it was 65. Ran it again in September 2024 and it’s back up to 110.

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@hbrennan93 sorry to hear about your Lupus Nephritis. That can definitely be a factor in kidney problems. Do you have a nephrologist that can collaborate with your rheumatologist regarding your kidney care?
I am interested in you GFR numbers. I’ve never heard of such high numbers. I always thought the range went from zero (no function at all and total failure) to 100 (absolute perfection and nearly unheard of). I thought the eGFR is a percentage of kidney function. Are you referring to a different kidney function test?

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Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Feb 1 10:55am
In reply to @glenc "After kidney removed my egfr was 21 but in a month was 61 now goes up..." + (show)
@glenc

After kidney removed my egfr was 21 but in a month was 61 now goes up and down as low as 30's but always bounces back.

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@glenc why was your kidney removed if you don’t mind me asking?

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1 reply
Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Feb 1 10:58am
In reply to @renegade71 "i have chronic kidney disease. i was diagnosed in 2018 but it could have been going..." + (show)
@renegade71

i have chronic kidney disease. i was diagnosed in 2018 but it could have been going on before that. over the years my egfr has fluctuated up and down. as high as 60+ to a low of 27. it is now 38 hoping it will go back up. my next labs are in 3/25.

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@renegade71 welcome to Mayo Clinic Connect. Hope you have good results from your lab appointment 3/25.

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1 reply
Mentor
Cheryl, Volunteer Mentor | @cehunt57 | Feb 1 11:06am
In reply to @celia16 "Do you know the culprit? Mine’s been high for many years so trying to figure it..." + (show)
@celia16

Do you know the culprit? Mine’s been high for many years so trying to figure it out. I had a colonoscopy a couple of days before the blood test, so…..idk.

How often do you test?

Jump to this post

@celia16 I read your post about whether having a colonoscopy could affect your eGFR.
In your response to @renegade71 you said “mine’s been high for many years…..” Are you talking about eGFR or perhaps blood pressure? You want your eGFR to be high, but not your blood pressure. I’m confused.

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3 replies
robtemery | @robtemery | Feb 1 1:18pm
In reply to @cehunt57 "@robtemery what is BPH? (I have trouble with acronyms)." + (show)
@cehunt57

@robtemery what is BPH? (I have trouble with acronyms).

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Benign Prostatic Hyperplasia BPH is an enlarged prostate gland 80% of men over 70 suffer from the condition

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