Has anyone had severe nonstop ringing in ears after COVID?

Posted by mstv1 @mstv1, Sep 8 2:48pm

I’m posting on behalf of someone very close to me, Maurice, who has been dealing with severe and persistent health problems following COVID.

His condition has significantly affected his quality of life, and despite seeing multiple doctors, specialists, undergoing extensive testing, and trying different approaches, we still have not been able to find an effective treatment or a clear explanation for why his symptoms have continued.

Some of his symptoms are extremely intense and persistent, particularly neurological and balance-related symptoms, along with other physical symptoms that began or became significantly worse after COVID. At times, the severity has been overwhelming and has made normal daily life very difficult.

We are now trying to connect with other people who may have experienced a similar post-COVID condition.

Has anyone here experienced severe, persistent neurological or vestibular symptoms after COVID that lasted for years? If so, were you eventually able to identify what was causing them or find a treatment that significantly improved your symptoms?

We would especially appreciate hearing about specialists, Long COVID programs, testing, medications, or other treatments that genuinely helped you.

Even if your symptoms were not exactly the same, I would be very grateful to hear about your experience and what finally made a difference for you.

Thank you so much to anyone willing to share.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for gnana6 @gnana6

@jeindc musical tinnitus?? Mine is an alarm that hasn’t been turned off, high pitch. Occasionally cricket sounds. Also have vibrating swooshing sound. Never know till i wake up. May have a so so day where noise is low. Then the next day the opposite. So far hearing good. Been almost a year. I agree ENT has no clue. Had a procedure to didn’t help. Too many advertising there is a cure. FALSE of course.

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@gnana6 - yes, musical. Here's more from the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/musical-ear-syndrome
(Sorry Mayo - it popped up first.)

When I first told one doc, not the ENT, they said it was called "Musical Hallucinations" which freaked me out. Now that I understand it IS called that too and have lived with it for so long, tho' I'm not "used to" it, if it plays music I like, it's fine. If it is like a record that is at the end and won't stop, it's awful - some refrains repeat ad nauseum! I "tell" my brain to change channels. It doesn't obey!

I also have a periodic like a "flash" of sound in my left ear - like a lightning bolt of sound. It terrifies me because it feels and to me, sounds like it's an alarm. I can't replicate it on command so the audiologist can't help.

Our bodies and brains are fascinating and when they work well, even better.

Here's to us!

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