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Has anyone had experience with Jakafi?
I was diagnosed with polycythemia November 23, although it is likely I had it for a significant period prior. I tolerated the hydrea well for three months, then became quite ill as a reaction to the hydrea. After trying to "restart" several times, the same reaction occurred. My oncologist then started me on Jakafi about 10 days ago and, so far, no side effects as I am tolerating the medication well. If all goes well, this is a medication that makes you feel as if you are cured as it controls HCT, WBC, platelets, and iron levels, without phlebotomy. Please advise if you have been on Jakafi and what your experience has been.
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Been on Jakfi for 3 1/2 years. I have MF. Started out at 15 ml at 25 ml now . Dizzy a lot bruised very easily CBC is completely scary looking it so low. But I feel GOOD not GREAT . But it is working for me right now !Good Luck Everyone on this site .
Hi there,
I had eosinophilic leukemia and was on Jakifi 25mg 2x per day (50 mg total) for 11 months with no noticeable side effects. Then I had an allogeneic stem cell transplant in November 2024 and came off jakifi. I recently had to go back on jakifi 10mg 2x per day for GVHD and haven’t noticed any side effects for the past month I have been on it.
They do monitor your bloodwork to make sure things are stable.
Good luck. It can be scary to start something new that has to be monitored but hopefully you’ll have a good experience with it as I did.
All my best,
Deb
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