Has anyone had experience with Jakafi?
I was diagnosed with polycythemia November 23, although it is likely I had it for a significant period prior. I tolerated the hydrea well for three months, then became quite ill as a reaction to the hydrea. After trying to "restart" several times, the same reaction occurred. My oncologist then started me on Jakafi about 10 days ago and, so far, no side effects as I am tolerating the medication well. If all goes well, this is a medication that makes you feel as if you are cured as it controls HCT, WBC, platelets, and iron levels, without phlebotomy. Please advise if you have been on Jakafi and what your experience has been.
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@learnandlive was the squamous related to the Jakafi or sun exposure?
Hi, very sorry for delayed response, battled illness not related to PV. I would say both to your squamous question. Have not been careful with sun exposure in past but it is no coincidence with being on Jakafi. I have been assured with better protection squamous is nothing to be worried every day with intelligent safeguards. I have always been an outdoors active person and PV/JAK2 has not stopped that, just changed me to be more careful. Live without worry but always research everything and get opinions and facts. Give updates on your path and best wishes