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Has anyone had cramping pain in left side nearing 3rd PRRT treatment?

Posted by mmar2025 @mmar2025, 4 days ago

I will have my third PRRT treatment next week. All well so far. Had a cramping pain in the left side like a "Charlie Horse" a few days ago. It went away in about five minutes. I had bent over to touch my toes. Sometimes I can feel the inflammation in the side when I move. No other side effects to speak of with the exception of the tiredness. Could it possibly be the inflammation from the tumors dying? Or the PRRT treatment? Has anyone else had this happen to them?

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dbamos1945 | @dbamos1945 | 20 hours ago
In reply to @vinnie694 "I have had a pain in my left leg, I just assumed it was a "Charlie..." + (show)
Profile picture for vinnie694 @vinnie694

I have had a pain in my left leg, I just assumed it was a "Charlie horse" it happened a couple of times.. I never really related it to the treatments.. It may have been! After 1 year my MRI is showing the Tumors are still shrinking... and I haven't had any leg cramp in quite some time..

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@vinnie694: I am so happy to learn results of the PRRT treatment has given you back more time and quality of life!
I am celebrating with you, as we unfortunately share NET tumor locations. I assume you are still getting the Lanreotide every 28 days & scheduled MRI Evoist scans to stay vigilant. That is my regimen too and enjoying how great life is. My treatment was June-Dec 2024). Best to you!!!

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vinnie694 | @vinnie694 | 9 hours ago

Thank you, I am happy to hear that it is still working for you. I did start with Lanreotide but after 2 -3 months switched to Ocreotide (this controlled my Carcinoid hot flashes).. Looks like you're a year ahead of me with the PRRT treatments. I completed mine in May of 2025..And I'll never forget when I was diagnosed, it was Christmas of 2022. I celebrate every day that I've been given with a fuller appreciation of life.. I also wish you the best! Please keep in touch.. Blessed in Saint Augustine Fla..

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