Has anyone had botox for jaw and tongue tremors?

Posted by meg17 @meg17, Oct 11 10:41am

My neurologist mentioned it..I know it would only have a temporary effect but any respite would be a bonus.. still a bit scary to think of..parkinsons the gift that keeps giving..sadly..

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Hi, @meg17 - I can see how any respite from tremors in your jaw and tongue tremors would be a bonus.

Here is some general info from Mayo Clinic about Botox injections:

Botox injections https://www.mayoclinic.org/tests-procedures/botox/about/pac-20384658

Fellow members such as @hopeful33250 @purpleturtle @sally2026 @barbiedoll24 may personally or through a loved one have some familiarity with tongue and jaw tremors and/or the use of Botox for tremors in general.

How do the jaw and tongue tremors affect you day to day, meg17?

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @meg17 - I can see how any respite from tremors in your jaw and tongue tremors would be a bonus.

Here is some general info from Mayo Clinic about Botox injections:

Botox injections https://www.mayoclinic.org/tests-procedures/botox/about/pac-20384658

Fellow members such as @hopeful33250 @purpleturtle @sally2026 @barbiedoll24 may personally or through a loved one have some familiarity with tongue and jaw tremors and/or the use of Botox for tremors in general.

How do the jaw and tongue tremors affect you day to day, meg17?

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@lisalucier
Tongue and jaw tremors can only be described as a mental torment..after more than 4 years of teeth chattering..tongue clicking and sounding like a demented dolphin..well that's the best analogy I can think of..it is wearying..just grateful my dentist is used to my symptoms..

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Profile picture for meg17 @meg17

@lisalucier
Tongue and jaw tremors can only be described as a mental torment..after more than 4 years of teeth chattering..tongue clicking and sounding like a demented dolphin..well that's the best analogy I can think of..it is wearying..just grateful my dentist is used to my symptoms..

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Hello @meg17,

While I've not had tongue or jaw tremors, I have heard that many Parkinson's symptoms have been treated with Botox. Here are some discussions that discuss Botox treatment for PD symptoms:
--Dystonia treatment
https://connect.mayoclinic.org/discussion/dystonia-treatment/
--Cervical dystonia
https://connect.mayoclinic.org/discussion/pd-and-cervial-dystonia/
Have any other medications or treatments been tried?

REPLY
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @meg17,

While I've not had tongue or jaw tremors, I have heard that many Parkinson's symptoms have been treated with Botox. Here are some discussions that discuss Botox treatment for PD symptoms:
--Dystonia treatment
https://connect.mayoclinic.org/discussion/dystonia-treatment/
--Cervical dystonia
https://connect.mayoclinic.org/discussion/pd-and-cervial-dystonia/
Have any other medications or treatments been tried?

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@hopeful33250
Thank you for replying..the usual co-beneldopa but it makes no difference even with increased dose and also 'neupro' patches..again no difference..

REPLY
Profile picture for meg17 @meg17

@hopeful33250
Thank you for replying..the usual co-beneldopa but it makes no difference even with increased dose and also 'neupro' patches..again no difference..

Jump to this post

@meg17
I am sorry to hear that the medication is not helping. That must be frustrating. Are you considering the Botox treatments?

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