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Has anyone had a low platelet count of just 1?

Posted by johnbowrey @johnbowrey, May 19, 2024

I developed a bleeding mouth problem a few days ago followed quickly by leg rashes and bruising. Blood test gave doctors a surprise as it was only ONE … put on immunoglobulin drip (8 bottles) then a cocktail if pills (haven’t got names yet) and next day I was up to a count of FIVE. Hospital staff say they’ve not seen such a low count. Anyone else out there with similar? Any advice welcome.

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Lori, Volunteer Mentor | @loribmt | Feb 11 9:19am
In reply to @debrasue "my WBC is a 2. I was just diagnosed with AML . waiting on 2 more..." + (show)
Profile picture for debrasue @debrasue

my WBC is a 2. I was just diagnosed with AML . waiting on 2 more test results. May need a bone marrow transplant. can you start meds right away. and can chemo help.?
I saw my primary Dr in June for a bug bite, She did blood work. my numbers are good. but CBC low RBC enlarged. this all so difficult to understand. where do start? Tennessee oncology. is where I'm going. my Dr. seems very smart. wife mother and gonna

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Hi @debrasue, It’s been several months since you were diagnosed with AML. How have you been doing so far with the treatments? Have you reached remission? Has your doctor discussed long term treatment or a possible stem cell transplant?

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jacklyn | @jacklyn | May 23 10:18am
In reply to @katgob "I had a low count of all 3 in the very low under 10s. What i..." + (show)
Profile picture for katgob @katgob

I had a low count of all 3 in the very low under 10s. What i thought was fatigue was what the doctor said need immediate transfusion that evening. I was hospitalized 4 days. It had a cause. 12 rounds of chemo in 12 weeks, then 1 dose of Red Devil. Emergency rooms and critical care units have seen those low numbers. Your marrow is not producing.

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I have the same problem my marrow isn’t producing that is when after aBMB was done I was diagnosed with mylofibrosis if the marrow and an enlarged spleen which is harbouring my platelets as well. I have AML and my platelets are at 6. They put me on Jakavi which reduces the spleen and helps with mylofibrosis. Did the 3 cycles of chemo infusions of vadiza and ventoclax but but had to stop because platelets were at 4

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