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Pachymeningitis affecting eyesight - any treatments help?
Has anyone been diagnosed with thickening of the patchymeningeal that caused them double vision got treatment for this rare disease if so did your eyesight return to normal.Three years ago my brain MRI indicated this brain liner thickening which gave me double vision among other symptoms. Since then at my Toronto hospital I’ve had about a dozen different appointments with neurologist and optometrist who no knowledge or treatment for this rare disease.Be happy to hear from someone with similar affection.
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Hello @torontoguy, Welcome to Connect. We modified your discussion title a little to hopefully bring in members who may have some experience to share with you. There is an older discussion that you may want to scan through on the topic.
-- Pachymeningitis: Anyone else?: https://connect.mayoclinic.org/discussion/pachymeningitis/
@trenks and @zacworld posted in the discussion above and may have some information to share with you. While you wait for members to respond, I did find a couple of research papers that might be helpful.
-- Treatment of Hypertrophic Pachymeningitis: A Systematic Review:
https://www.neurology.org/doi/10.1212/WNL.0000000000206689
-- Characteristics, outcome and treatments with cranial pachymeningitis:
https://pmc.ncbi.nlm.nih.gov/articles/PMC6078725/
This article is a little easier to read and understand:
-- Pachymeningitis: Causes, Symptoms, and Treatment:
https://www.verywellhealth.com/pachymeningitis-definition-causes-symptoms-and-treatment-6502662
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1 ReactionHi @torontoguy. Dealing with Pachymeningitis and vision issues in both eyes in a family member. It’s been about 6 months since your post. Any success with your treatment or symptom update? Looking forward to hearing from you. Not many people experience double vision issues, I see mainly hearing.