Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

I think there are several available in SC & Florida, there is one available in Hampton S.C,I think that is the closest to Atlanta ph# 843-476-4702 (S.C pain & spine specialists)
You can slso call Melissa Petzel at neuralace medical
Just tell here that Tom Frazier said to call and ask for any update& any new location ,sorry can't give phone # as may be personal. Google axon therapy neuralace medical good luck

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I have watched my idiopathic PN go from my feet to my mid thighs and fingertips over a 20 year period.. no cure to refer ate or preserve my nerves but gabapentin and R Alpha lopaic acid have helped. No pain but numbness and tingling. Now PN is affecting me as disability I use a cane or walking stick. Has anyone explored using a service dog to help with walking stability?

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It's hard to say,my was $200.00 per session just like everything else the more that are helped with this therapy the more it will cost, right now there' about 20 clients now including the VA in the US, 8 more clients since I used it are starting to use the Axon therapy. If you have back problems like spinal stenosis there is only a 50/50 chance it will work,there's not a lot of DRs even know about this therapy .so you need to do your own DD, Who knows the cost might even go down.Hope this helps

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Profile picture for captaint @captaint

Read the book Eat to live y Joel furman I gave a copy to a friend with type 2 and he no longer suffers

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As I mentioned, "NO CURE" !!!

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Profile picture for 3740 @3740

I’ve Tried just about everything for my CIPN. BUT my Hands not just a Finger or two …. But ALL FINGERS and Hands. Are STIFF. ?????? NO FINE MOTOR SKILLS!!!!

Feet are also Affected.

ITS BEEN more than two years since Treatment ended.

Anyone have this???????? Please HELP.

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Shockwave therapy. Amazon sells the equipment. Walking in warm water pool at YMCA is great

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Profile picture for Tom Frazier @tofrazier

I think there are several available in SC & Florida, there is one available in Hampton S.C,I think that is the closest to Atlanta ph# 843-476-4702 (S.C pain & spine specialists)
You can slso call Melissa Petzel at neuralace medical
Just tell here that Tom Frazier said to call and ask for any update& any new location ,sorry can't give phone # as may be personal. Google axon therapy neuralace medical good luck

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Thank you so much,,

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Profile picture for pablocito @pablocito

I've come to think God permits me to suffer that I may learn the endurance of Christ through the pain of his torture with a glorious hope in the future. We are praying together for relief

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REALLY?

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Profile picture for SKY @michhino

As I mentioned, "NO CURE" !!!

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Have you tried …..type 2 can be cured, my friend cured his just took some determination and strong will you too can do it.

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Profile picture for sinkie @sinkie

I have watched my idiopathic PN go from my feet to my mid thighs and fingertips over a 20 year period.. no cure to refer ate or preserve my nerves but gabapentin and R Alpha lopaic acid have helped. No pain but numbness and tingling. Now PN is affecting me as disability I use a cane or walking stick. Has anyone explored using a service dog to help with walking stability?

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Have you tested your vit B6 levels? B6 toxicity is now directly linked to PN.

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Profile picture for arcuri24 @arcuri24

Your response is very wise and enlightening. Vitamins are truly helpful but some doctors will not advise on them because they'd rather you be taking prescription medications. And, there seems to be varieties of neuropathy as well as the fact that people have differences in their health conditions. But the biggest improvement for me comes with exercise. I do physical therapy 3X per week and am trying to rebuild muscles that were weakened by this dreadful condition--so far I am in the idiopathic group. I have no numbness and no pain. My balance is okay too. You may want to gradually extend the time you work out. Again, the doctors seem to be reluctant to encourage pt and any other holistic interventions. This is also why this support group is so helpful and indeed, vital.

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You have no pain or numbness? From Peripheral Neuropathy? What are your symptoms and how do you know you have it? I was diagnosed in 2020, no symptoms, they were looking for something else. But now in 2025 I am in horrific pain, it started in 2022 and got bad in September 2024, now....nothing helps.

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