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Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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dag112 | @dag112 | Aug 24 9:15am
In reply to @njed "@SusanEllen66 You are absolutely right. In August of 2019, I applied at Mayo Rochester. They contacted..." + (show)
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@SusanEllen66 You are absolutely right. In August of 2019, I applied at Mayo Rochester. They contacted me a month later asking for any reports. I sent everything to them. They called me in early November and gave me an appointment in mid Feb 2020. Since then, I've heard that it is difficult to get into Rochester. Not sure why, could be shortage in staffing since the pandemic.

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Have you tried mayo in Jacksonville?

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tessie63 | @tessie63 | Aug 24 12:25pm
In reply to @cit10jetjockey "Scotch on the rocks." + (show)
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Scotch on the rocks.

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That is so funny. My go to is a glass of white wine at supper. I enjoy that and with this illness there are not too many things in life that I enjoy anymore. Jesus turned water into wine for a reason so I figure what was good for the desciples can’t be that bad for me. 🤣

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NJ Ed | @njed | Aug 24 12:50pm
In reply to @dag112 "Have you tried mayo in Jacksonville?" + (show)
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Have you tried mayo in Jacksonville?

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@dag112 When I applied back in 2019, only Rochester MN would accept patients on Medicare. Believe me, I would have preferred Jacksonville in Feb rather than MN. For the first time in my life, I experienced minus 28 degrees. I'm sure that is why Mayo in Rochester has all those underground tunnels. But, sooner or later, you need to go outside!

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cit10jetjockey | @cit10jetjockey | Aug 24 3:16pm
In reply to @tessie63 "That is so funny. My go to is a glass of white wine at supper. I..." + (show)
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That is so funny. My go to is a glass of white wine at supper. I enjoy that and with this illness there are not too many things in life that I enjoy anymore. Jesus turned water into wine for a reason so I figure what was good for the desciples can’t be that bad for me. 🤣

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In my flying days my flight attendants would take a bunch of those little bottles of booze when we had overnights and share them when we had dinner in the hotel we stayed at. Never had wine on the plane as there was no place to keep it.

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proteusx | @proteusx | Aug 25 1:26pm
In reply to @jabrown0407 "I am not diabetic or even pre-diabetic and have struggled with neuropathy for over five years...." + (show)
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I am not diabetic or even pre-diabetic and have struggled with neuropathy for over five years. Back in March I was put on doxycycline for a respitory condition and it has helped my neuropathy. I still have neuropathy, but the pain level is now down to a lvl 2, it has been as high as a 6. The doxy also resolved the burning sensation in my legs and seems to be helping my night sweats as well. All doctors involved agree that it is the anti-inflammatory portion of the doxy and not the antibiotic characteristic that is helping. I also have PMR and have been on prednisolone long term and that didn't touch the inflammation that the doxy is addressing. Hope this helps.

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Interesting observation. Doxycycline is an impressively versatile drug and is unlike most other antibiotics in several notable regards. Recently it has shown clinical efficacy in the treatment of a cardio form of amyloidosis which includes among its prominent symptoms peripheral neuropathy.

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rollingf | @rollingf | Aug 25 3:07pm

As a Diabetic, I have learned that the Vitamin B complex is not good for me. I only take B-12. One of the other B Vitamins raises blood sugar. Don't remember which one.

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jabrown0407 | @jabrown0407 | Aug 25 3:46pm
In reply to @proteusx "Interesting observation. Doxycycline is an impressively versatile drug and is unlike most other antibiotics in several..." + (show)
Profile picture for proteusx @proteusx

Interesting observation. Doxycycline is an impressively versatile drug and is unlike most other antibiotics in several notable regards. Recently it has shown clinical efficacy in the treatment of a cardio form of amyloidosis which includes among its prominent symptoms peripheral neuropathy.

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Very interesting about this new use for doxy. Was a study done and do you have a link to the findings? I would appreciate reading more.
I know enough about doxy to know that it is effective for a type of inflammation whereas the prednisone I take for my PMR (polymyalgia rheumatica) helps with a different type of inflammation and actually the prednisone was only a minor treatment compared to what the doxy has done for me.

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SusanEllen66 | @SusanEllen66 | Aug 26 1:39am

Just don’t fall for the ads promising a cure.
They are misleading us with untruths.

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SusanEllen66 | @SusanEllen66 | Aug 27 12:13am

One thing that maybe the key is to be treated according to the cause of the Neuropathy. (There are more than 1 or even 3)

Anyone have a comment?

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John, Volunteer Mentor | @johnbishop | Aug 27 8:37am
In reply to @SusanEllen66 "One thing that maybe the key is to be treated according to the cause of the..." + (show)
Profile picture for SusanEllen66 @SusanEllen66

One thing that maybe the key is to be treated according to the cause of the Neuropathy. (There are more than 1 or even 3)

Anyone have a comment?

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Foundation for Peripheral Neuropathy
Peripheral Neuropathy Name It! Learn It! Cure It!

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