Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for putsy @putsy

Well I got my letter from the Mayo Neurologist dept. They did a “deep dive” into my medical records. I had hoped that Mayo , since they have an extensive research, I had hoped that they could provide some new research treatments. The response was due to patient capacity and that they couldn’t offer any other treatments than what I am already doing. ☹️
So I am on my own. !
What is my personal treatment : I have left leg and left foot neuropathy. ( However there are many types of Neuropothathy). I have tingling sensation , easily irratedq by pants , socks, shoes, numbness down outer thigh, outside of leg calf, around the kneecap, around the ankle bone, and diminishing sandy feeling bottom of foot under toes and along right side of left foot. My personal daily health plan. AM. Alternating days of Physical therap exercises, yoga exercises, TENS unit application ( pads in proper place), Antiflamitory fruit, Greek yogurt, cinnamon, ginger, protein powder, apple cider vinegar, etc. shake, pils: D3, multivitamin, Tumeric, Krill oil,, multi vitam B vitamin. All of good quality. ( no synthetic ). ( there is a difference !). Deep tissue massage. ( look for a massage therapist trained in deep tissue massage). It’s not Swedish massage!). It can be painful sometimes). Accupuncture for pain in back ( after extensive failed back surgery). On going Pysical therapy, magnesium lotion on leg and whole foot.
It’s time consuming. I have to balance my daily life activities and what I do for my neuropathy.
I’m currently researching studies about the Sural nerve and Tibial nerve entrapment. Thanks for listening. Watch out for scams and poor quality ingredients.

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@putsy it sounds to me like you are doing everything, and more to help yourself. Mayo is always overwhelmed so I’m not surprised you couldn’t get an appointment. It is very hard when you have gone through all their “hoops” and they turn you down.

There is no cure, no magic bullet that will cure Neuropathy. Those of us with Neuropathy are in pain. There are scammers out there who prey on us. They try to sell us lotions, potions, and gadgets that don’t work.

I’ve had Polyneuropathy for 10 years as a result of an autoimmune disease. There is one supplement I take that helps a little it’s Alpha-Lipoic Acid (ALA) I take 600mg. twice a day.

I wish you the best!

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Profile picture for hoch @hoch

That's strange because I filled out and submitted an application over a week ago. I received a phone call the next day from them with some additional questions. They also told me that the application I submitted was for neurology and that neurology had suggested my application get sent to their neuropathy group. I was told to expect a response between 7-10 business days. I'm going to remain hopeful!

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That is their procedure. They will request all your records, then they meet and decide if they have time for you.

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Profile picture for SusanEllen66 @SusanEllen66

That is their procedure. They will request all your records, then they meet and decide if they have time for you.

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@SusanEllen66 You are absolutely right. In August of 2019, I applied at Mayo Rochester. They contacted me a month later asking for any reports. I sent everything to them. They called me in early November and gave me an appointment in mid Feb 2020. Since then, I've heard that it is difficult to get into Rochester. Not sure why, could be shortage in staffing since the pandemic.

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I have been reading a little about the benefits of turmeric which it seems is included in some supplements and in most cases it states that it is the curcumin in the turmeric that is important(hope I’ve got the correct spelling) .Where do you buy the turmeric,is it a powder? how do you take it and at what dose. Any information would be helpful.
Thanks, John

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Profile picture for putsy @putsy

Well I got my letter from the Mayo Neurologist dept. They did a “deep dive” into my medical records. I had hoped that Mayo , since they have an extensive research, I had hoped that they could provide some new research treatments. The response was due to patient capacity and that they couldn’t offer any other treatments than what I am already doing. ☹️
So I am on my own. !
What is my personal treatment : I have left leg and left foot neuropathy. ( However there are many types of Neuropothathy). I have tingling sensation , easily irratedq by pants , socks, shoes, numbness down outer thigh, outside of leg calf, around the kneecap, around the ankle bone, and diminishing sandy feeling bottom of foot under toes and along right side of left foot. My personal daily health plan. AM. Alternating days of Physical therap exercises, yoga exercises, TENS unit application ( pads in proper place), Antiflamitory fruit, Greek yogurt, cinnamon, ginger, protein powder, apple cider vinegar, etc. shake, pils: D3, multivitamin, Tumeric, Krill oil,, multi vitam B vitamin. All of good quality. ( no synthetic ). ( there is a difference !). Deep tissue massage. ( look for a massage therapist trained in deep tissue massage). It’s not Swedish massage!). It can be painful sometimes). Accupuncture for pain in back ( after extensive failed back surgery). On going Pysical therapy, magnesium lotion on leg and whole foot.
It’s time consuming. I have to balance my daily life activities and what I do for my neuropathy.
I’m currently researching studies about the Sural nerve and Tibial nerve entrapment. Thanks for listening. Watch out for scams and poor quality ingredients.

Jump to this post

You are trying so many things ….alas to no avail you did not however mention reflexology, I am experiencing some relieve using that modality 2x a month and a massage gun nightly. I quit taking the gabepentine just masks the nerves for me, I want to feel my feet sorry but neurologist are now a waste for me, I still use turmeric (helps with inflammation) and vitamins as well. Good luck to you !

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I have neuropathy from chemo treatment back in 2007. I searched many treatments and about 2017, found I get relief from class 4 laser treatment. I get the treatment several times each month, so it hasn't been a permanent fix and done, but it has totally changed my life for sure! Totally manages pain. Can be expensive but I found a chiropractor who does it more reasonably than most

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Profile picture for captaint @captaint

You are trying so many things ….alas to no avail you did not however mention reflexology, I am experiencing some relieve using that modality 2x a month and a massage gun nightly. I quit taking the gabepentine just masks the nerves for me, I want to feel my feet sorry but neurologist are now a waste for me, I still use turmeric (helps with inflammation) and vitamins as well. Good luck to you !

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Yes Turmeric is in my personal care plan. It’s the wild Wild West out there when it comes to neuropathy! No I have not tried reflexology. What’s a good resource for these exercises ?

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Profile picture for SusanEllen66 @SusanEllen66

@putsy it sounds to me like you are doing everything, and more to help yourself. Mayo is always overwhelmed so I’m not surprised you couldn’t get an appointment. It is very hard when you have gone through all their “hoops” and they turn you down.

There is no cure, no magic bullet that will cure Neuropathy. Those of us with Neuropathy are in pain. There are scammers out there who prey on us. They try to sell us lotions, potions, and gadgets that don’t work.

I’ve had Polyneuropathy for 10 years as a result of an autoimmune disease. There is one supplement I take that helps a little it’s Alpha-Lipoic Acid (ALA) I take 600mg. twice a day.

I wish you the best!

Jump to this post

Same here, I've been dealing with idiopathic neuropathy for 10 years now, and I've been taking the same dose of ALA for several months. That, along with 3600mg of gabapentin a day.

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Profile picture for bigjohnscho @bigjohnscho

I have been reading a little about the benefits of turmeric which it seems is included in some supplements and in most cases it states that it is the curcumin in the turmeric that is important(hope I’ve got the correct spelling) .Where do you buy the turmeric,is it a powder? how do you take it and at what dose. Any information would be helpful.
Thanks, John

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@bigjohnscho Turmeric is used as a spice, it can be found in the area of any supermarket where the spices are kept.
You can get it in capsules that are widely available in the vitamin/supplement area.

You must use black pepper with it to get the full benefit.

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