Has anyone been diagnosed with Middle Lobe Syndrome (collapse of lobe)

I've never heard of middle right syndrome . . . But my right middle lobe has collapsed three times. The only available treatment seems to be a bronchoscopy to open the right middle lobe bronchus. After my most recent procedure in 2023 my pulmonologist told me that I had "fish mouth" stenosis of the right middle lobe bronchus, probably congenital, and that if I had another collapse he would recommend surgery.
Two years later, so far, so good - I have bronchiectasis, MAC, SAI, and ABPA, and have been hospitalized three times with pneumonia in the last two years. I am currently on an antifungal to suppress my ABPA inflammation. I'm also on a biologic (Fascenra) and nebulizing 2x day levabuterol and 7% saline. The antifungal - itraconazole - has really made a huge difference this year.

My CT's consistently report "Left upper lobe completely collapsed/consolidated". My pulmonologist never really addressed that but I have an appointment with him on June 13 and will specifically ask him about it.

Hello , I have right middle lobe syndrome , MAC , Aspergillus and bronchiectasis. I see U of M in July for a second opinion on everything so I am curious what they recommend. There’s not been a lot of information or direction/ guidance with the RML from my pulmonologist, so I don’t have much to offer in advice . But I will post what U of M says

I had right middle lobe collapse. My pulmonologist raised it with a balloon during the bronchoscopy. I know sounds funny. But my oxygen level increased.