Has anyone had the Stimwave spine stimulator installed?

Posted by WS4K @ws4k, Dec 12, 2018

Hello to ALL! I have a severe back injury and even after three surgeries and several fusions, I am still experiencing severe and chronic pain. My pain management specialist is talking about a spine stimulator. After some research I located the Stim Wave. With this unit, only the leads are implanted. No wires come through. The antenna is worn like a pager on your belt.

Has anyone tried one of the Stim Wave stimulators yet? Any feed back on them?

@quark

Hi, and was taking the Stim wave lead out a big deal? Did you have another put in? I have had chronic abdominal pain from my cystectomy and/or hernia repair for about 6 years and have tried about everything. My doc has been doing the Stim wave for several months now, and wants to try it on me. Almost feel like a Guinea pig, but am desperate too. The only things I can seem to find are reviews or research that were sponsored by the company itself. Any of your thoughts would be appreciated. Thanx

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Hi, I had a Boston scientific stimwave inserted in 2018. Unfortunately it was not successful. I understand your inability to find out any concrete information on the product itself from individuals having one. Everything seems to be advertising for their product. My whole lower back is fused which left me with bilateral drop feet and severe peripheral neuropathy. Doctor thought the stimulator would give me pain relief. I had many problems charging my unit. Would sit for 3-4 hours and just couldn’t get a charge. When I did manage to get a charge I felt no difference in my pain levels. The reps that were assigned to me for help left a lot to be desired. The fact that I live in a remote area didn’t help. Many unanswered phone calls and little help with my problems. I understand that this is a big problem within all the major SCS companies. I have resorted to just turning my unit off and awaiting its removal. My pain doctor is strongly suggesting the Nevro unit as he has had such success with it. I haven’t decided what road to follow as yet. I strongly suggest you look into the availability of good reps for whatever unit you decide upon. My heart aches for you as I truly understand where you’re coming from. Pain is not fun and the inability to not be productive is awful. If I can answer any questions for you I’ll be more than glad to share my experiences with you. Good luck with your decisions.

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I must apologize. I have the Boston Scientific “Wavewriter”. Is this the unit you were referring to?

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@cordy

I must apologize. I have the Boston Scientific “Wavewriter”. Is this the unit you were referring to?

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No, it's not a spinal cord stimulator , and it's Stim Wave technology. It's sort of similar, but they can put the very small leads close to where the pain in, but under the skin. It's then controlled with some sort of hand held piece, and it's relatively new technology.

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@wilcy

About to have one! Feet neuropathy bad!

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Canceled due to virus

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I would like to know if anyone has a Bost. sci wavewriter for lumbar area problems like I do. For some reason my left cluneal nerve is still very painful. My doc is looking into whether he can implant the stimwave as a second device. Any one like that? I don't want 3 level fusion surgery.

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Cluneal?

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@baq315a

I would like to know if anyone has a Bost. sci wavewriter for lumbar area problems like I do. For some reason my left cluneal nerve is still very painful. My doc is looking into whether he can implant the stimwave as a second device. Any one like that? I don't want 3 level fusion surgery.

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I had a Medtronics Intellis spinal cord stimulator placed late January after successful trial the month before. I had a multi level lumbar fusion with screws, etc. 2011. Was fine until about 2 years ago and I did something STUPID at the gym. Resulted in severe sciatic pain lower back and esp into R leg to foot. Was offered another fusion into L5-S1. No thanks. This helps a LOT!

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Any experience with using this for knee pain?

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@mistermark

Any experience with using this for knee pain?

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I have a damaged nerve in my neck. I have used Bioness Stimrouther and currently have sprtheraputics sprint pns. also check out nalu. the only thing implanted is the lead. the stimulators are external. keep in mind that sprint is only for 60 days but some patients received good relief for a many months after. its the least invasive of all pns systems. the lead is installed with local anesthetic only.

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@quark

No, it's not a spinal cord stimulator , and it's Stim Wave technology. It's sort of similar, but they can put the very small leads close to where the pain in, but under the skin. It's then controlled with some sort of hand held piece, and it's relatively new technology.

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i believe the stimulator has to be taped or go in a specially sown pocket on your clothes. just something to be aware of. personally i would go with bioness or nalu as the devices stick on the skin with adhesive pads similar to tens units

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@ahayes

@ws4k I did have Stimwave implanted. If you are considering it for application at spine, it is worth considering. It is very high frequency, up to 1500, and higher than my Medtronic now can go.

The stimwave worked like a charm for my pain. However, I was having it implanted as a PERIPHERAL stimulator for my sciatic nerve in back of knee, to help my lower leg. The stimwave lead is very flexible, and this made me have problems with lead migration. I had 2 trials and 2 permanents. The reps for this company were working closely with my doc to determine best approach to stabilize the lead. Ultimately for me bc it was a peripheral application. and not a scs, it didnt work bc the lead was too flexible and unstable and they couldn't anchor the lead well. In an SCS application Stimwave is very stable from what my doctor told me and he uses it often.

Due to migration, lead breakage issues, and newness of the product and application for peripheral nerves we took stimwave out after the 2nd permanent system had a lead break or had a lead problem. I would say talk w ur doc closely to determine if this is right for you and your needs. Ask him how stable the lead will be and bring up lead migration. You'll know after the trial if it helps you. It helped me a lot but just wasnt right bc the company had not done many or any sciatic nerve peripheral cases. They do tons of scs cases so you would be having an approach that they vetted and tested more thoroughly.

As an aside, my case was so unique the CEO of the company was talking to my doc to give ideas in how to put in and anchor it to make it stay. This company is amazing and really supported me through the trials and difficulties I had making it work. One rep even stayed on the phone with me for hours as I was crying bc the lead moved and I could tell it wasn't working anymore. Kind people and they really care about patients and the product.

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I had Stimwave test for pens— the test was extremely painful and I am now concerned if the permanent implant will be as painful ( I felt like I had a concrete block attached to my back) my issues are sciatic and 5th vertebrae — I have had major back fusion several RFA-s and injections into sacral joint with little results- I was so excited about the implant until I had the test – now I feel apprehensive

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@miles1037

I had Stimwave test for pens— the test was extremely painful and I am now concerned if the permanent implant will be as painful ( I felt like I had a concrete block attached to my back) my issues are sciatic and 5th vertebrae — I have had major back fusion several RFA-s and injections into sacral joint with little results- I was so excited about the implant until I had the test – now I feel apprehensive

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Oops I meant PNS

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No to Stimwave, but I can tell you about Nevro SCS. I had wires and device implanted in October and it was the best decision I ever made! I finally feel fantastic. I did the trial and it was outstanding. I have 2 small scars on my back, one where the 2 leads were placed in (around?) my spine. The second is on my left flank where the device is implanted. I use a charger (looks like a drink coaster with a wire tail) placed over the unit, and when I'm not using it, it stays plugged into the wall I've had Harrington Rods, fusions, 6 screws, you name it. Today? I haven't felt this good since I was 15. I'm 63 F.

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Congratulations! I’ve had a Medtronics one for 11 months now. It’s made a huge difference. I am beginning to have a bit of discomfort in my R upper posterior thigh when walking which is making me need to increase my level of stimulation. I am going to talk to the rep about programming it. I think my back is likely getting worse in there but I’m able to walk 2+ miles most days whereas before, I was occ using a cane and not walking much at all. I was able to work in my garden all summer too! Miracles! I’m 70.

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@lifetimepain

No to Stimwave, but I can tell you about Nevro SCS. I had wires and device implanted in October and it was the best decision I ever made! I finally feel fantastic. I did the trial and it was outstanding. I have 2 small scars on my back, one where the 2 leads were placed in (around?) my spine. The second is on my left flank where the device is implanted. I use a charger (looks like a drink coaster with a wire tail) placed over the unit, and when I'm not using it, it stays plugged into the wall I've had Harrington Rods, fusions, 6 screws, you name it. Today? I haven't felt this good since I was 15. I'm 63 F.

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Thank you for your your response – I also have rods and screws etc — the Stimwave test took away 90% of the pain but as I said it was painful mainly at the incision sites— so tell me if you feel any pain from the implant. I’m sure I will still go through with the implant and I’m so looking forward to feeling myself again — I live on a golf course and haven’t touched my clubs in 5 years! I just want to be able to walk without fear that my back will go out and leave me unable to move- fingers crossed that it works as well as yours. Merry Christmas and thanks so much

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