Has anyone any had the Stimwave spine stimulator installed?

Posted by WS4K @ws4k, Dec 12, 2018

Hello to ALL! I have a severe back injury and even after three surgeries and several fusions, I am still experiencing severe and chronic pain. My pain management specialist is talking about a spine stimulator. After some research I located the Stim Wave. With this unit, only the leads are implanted. No wires come through. The antenna is worn like a pager on your belt.

Has anyone tried one of the Stim Wave stimulators yet? Any feed back on them?

It is very easy to input and remove. The one thing I will tell you to ask the doctor is as follows:

How durable is this medical device, specifically, in the location you will be implanting it at, how likely is lead migration (movement of lead away from intended site). Is there anything at the site the lead needs to be that will help anchor the lead?
– I had too much lead migration with stimwave to use it as a Peripheral Nerve Stim. I tried and had it changed out twice. But, this was around my sciatic nerve right above the back of my knee (where that nerve splits into 2 branches). Thus, no real way to anchor it other than the 'barbs' of the lead that helps it stay in place. I went to an off-label use of a Medtronic stim because it had a lead with the right rigidity to be more durable.
– This is ALL site specific stuff. If your location of implantation will work better with the system, stim wave rep and your doc should know this. I was one of the first patients in the USA to have this device put in for a sciatic nerve use case. In many other sites…the stim wave holds up great. When mine did stay in place I got AMAZING results. It can go at a higher frequency/rate than any other stim on the market that I tried…and that's what seemed to benefit my pain so much.

We actually implanted all of my atimwave trials and Permanents in a fluoroscopy suite. So, yes. It was that easy. simple!!!

Liked by quark

REPLY
@ahayes

It is very easy to input and remove. The one thing I will tell you to ask the doctor is as follows:

How durable is this medical device, specifically, in the location you will be implanting it at, how likely is lead migration (movement of lead away from intended site). Is there anything at the site the lead needs to be that will help anchor the lead?
– I had too much lead migration with stimwave to use it as a Peripheral Nerve Stim. I tried and had it changed out twice. But, this was around my sciatic nerve right above the back of my knee (where that nerve splits into 2 branches). Thus, no real way to anchor it other than the 'barbs' of the lead that helps it stay in place. I went to an off-label use of a Medtronic stim because it had a lead with the right rigidity to be more durable.
– This is ALL site specific stuff. If your location of implantation will work better with the system, stim wave rep and your doc should know this. I was one of the first patients in the USA to have this device put in for a sciatic nerve use case. In many other sites…the stim wave holds up great. When mine did stay in place I got AMAZING results. It can go at a higher frequency/rate than any other stim on the market that I tried…and that's what seemed to benefit my pain so much.

We actually implanted all of my atimwave trials and Permanents in a fluoroscopy suite. So, yes. It was that easy. simple!!!

Jump to this post

Many thanks for your reply and will be seeing him the end of the month. He has discussed it, and hopefully already have a date in March, or if a cancellation the end of feb. I will definitely ask about the migration, and awhile ago had a trial Boston scientific SCS, but did nothing. Mine will be placed to the right of my stoma, which is near my navel. It sounds encouraging for a change. The picture on the stim wave pamphlet shows exactly where my pain is. Again, thanks for the feedback!

Liked by ahayes

REPLY
@scruffy1

Hello @ws4k , I had a Nevro stimulator implanted in August of 2017 because of general lower back pain that couldn't be relieved through any conventional means. I've had basically ZERO pain since then. Every month or so the last 5 bones in my back get misaligned and I need about a 2-3 minute adjustment by my chiropractor, and then: good as new! I charge my stimulator through induction every day for so – sometimes I forget for a few days but it doesn't matter. They tell me the effect doesn't "wash out" for a few days after the battery depletes. I live a normal life, virtually free of pain for the first time in 27 years. I've travelled to Europe several times and even to S. America and the Galapagos. I pack my charger in carry-on so as not to lose it. I even played 3 rounds of golf for 3 consecutive days just 8 weeks after the device was implanted. I do wear a back support when I play but only because my bad swing puts undue pressure on my back…and entire body 🙂 Since I've had the implant, Nevro had developed and had approved a newer model that is smaller. I think they just developed a smaller battery. Oh, and no parathesia with either device.

Jump to this post

About to have one! Feet neuropathy bad!

Liked by ahayes

REPLY

my Dr wants me to get a ABBOTT nerve stimulator implanted, and I am so undecided as all actions up till now have failed to help stop the pain, there is one that might last 10 years on low, and must have battery recharged each day with a belt, and the other with 5 year battery that must be replaced in 5 years, I use a tens unit now and it helps a little but they say the wires all the way to the spine is a lot better, I read up on i and they are ok for MRI, has anyone had a ABBOTT ProclaimXR implanted? Please let me know as I must make my decision soon…am 85, had this pain since surgery in 1983, cant be up more than about 12 minutes without terrible pain,, I do need help.

REPLY
@wilcy

About to have one! Feet neuropathy bad!

Jump to this post

Please let me know how it works out, and hope the trial is good!

Liked by ahayes

REPLY
@pvarn01

I'm on the fourth day of a Stimwave "Freedom" trial implanted in my upper back for lower leg sciatic pain. Two days to go.

Jump to this post

So how did things work out? I am fairly new here, and have chronic abdominal pain from 1-2 surgergeries. My pain doc recommended Stim Wave, and scheduled for April 10. Did you get the permanent Stim Wave?, and how are things? Is it really MRI comparable? , and easily removable in case of problems? Looking forward to hearing from you.

REPLY

HAS ANYONE had the Proclaim XR SCS system implanted in your back………..pain since 1983, operation didn't help, now at 85 a bit frightened about any cutting or injections but need help to stop pain. won't do opiods, so need info from patients of this product. My Dr wants an answer, must have an answer next week with appointment so PLEASE if you have any info I really need it.. I am without anyone to take this over with, I must depend on you.. thanks..Jeanne..

p

REPLY

I had Stimwave device placed in July 2019 and then had to have one lead replaced in dec2019 due to it migration into my chest that was shocking me so bad took 3 months for them to believe me that something was wrong . Now I’m dealing with constant program changes because it’s over stimulating other areas of my back and causing even more pain then I originally had . It’s been a nightmare . I live in Florida and as far as I have been told insurance and Medicare only pay for 1 unless you can prove device is malfunctioning or infection. If I could do it again I wouldn’t go with Stimwave . Having to wear this device on a belt 24/7 is like being on a leash it’s uncomfortable it moves around while your sleeping, if you take it off your not getting stimulation at least with the implantable battery your not tied to a leash you can go swimming and still get stimulation . I wish I had found this site before I went through with my decision . So please research ask questions . I didn’t want the implantable battery at first but I wish I had now . And went with a company that puts patients first over the almighty dollar .

REPLY

Am 68 with spinal stenosis! Have tried shots, drugs and nothing worked! Pain management suggested stimulator implant , 3 days ago I had a trail done! Wires put in next to spine! I have portable programmer on belt ! Works off radio high frequency radio waves! This doesn’t work for everyone! The wires have to be put in exact spot! So far it’s working! Have to wait 2 weeks before permanent controller can be install inside my back!

Liked by wisco50

REPLY
@wilcy

Am 68 with spinal stenosis! Have tried shots, drugs and nothing worked! Pain management suggested stimulator implant , 3 days ago I had a trail done! Wires put in next to spine! I have portable programmer on belt ! Works off radio high frequency radio waves! This doesn’t work for everyone! The wires have to be put in exact spot! So far it’s working! Have to wait 2 weeks before permanent controller can be install inside my back!

Jump to this post

Great to hear it's helped you. I am scheduled for Stim Wave for the abdominal pain, on April 10. Before that, March 13, having ACDF (anterior cervical disc fushion). on c5-6 and c 6-7. Hopefully, will be relatively pain free this summer.

REPLY

Have lumbar spinal stenosis! Am 68 with 6 years remission of colon cancer! Have had surgery etc! Last week had temporary spinal cord stimulation! 2 wires next to spine! 80% pain free! In 2 weeks going to have wires replaced and battery pack module installed in butt cheek permanently! Will have remote control! Waiting 2 weeks to make sure of no infection before the minor surgery!

Liked by wisco50

REPLY
@wilcy

Have lumbar spinal stenosis! Am 68 with 6 years remission of colon cancer! Have had surgery etc! Last week had temporary spinal cord stimulation! 2 wires next to spine! 80% pain free! In 2 weeks going to have wires replaced and battery pack module installed in butt cheek permanently! Will have remote control! Waiting 2 weeks to make sure of no infection before the minor surgery!

Jump to this post

Great, and good luck to you regarding the permanent one and your cancer too.

REPLY
@quark

Please let me know how it works out, and hope the trial is good!

Jump to this post

Trial went good! Going to have permanent in one more week

Liked by wisco50

REPLY
@wilcy

Trial went good! Going to have permanent in one more week

Jump to this post

Good to hear it, but mine is not a spinal cord stimulator, just a Stim Wave intervention for abdominal pain. And will be in my abdomen, and good luck too!

REPLY
@quark

Good to hear it, but mine is not a spinal cord stimulator, just a Stim Wave intervention for abdominal pain. And will be in my abdomen, and good luck too!

Jump to this post

Good luck to ya

REPLY
Please login or register to post a reply.